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plugh
Experienced user
Joined: 18 Oct 2007
Posts: 50
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 Posted: Wed Apr 08, 2009 9:42 am Post subject: Latest update |
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Just had my 4 monthly MRI. Described as stable compared to last MRI BUT in going back over MRI results since Jan 08 there is now showing a very small incremental change compared to Jan 08. I was told millimetres. The results are going to a board review on Monday and it was suggested I should still be on a watch and wait at this point, another MRI in 4 months. This since I am not experiencing any symptoms. Freaking out a bit at this point so any insite would be really welcome. Is this significant enough to be considered regrowth? The NeuroOncologist seemed to think this was not al all unusual immediately post surgery and that they often stabilize later.
Background,
Grade II Oli 90% removed in August 07. No defects from surgery or cancer. Gene deletions present. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
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plugh
Experienced user
Joined: 18 Oct 2007
Posts: 50
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| Posted: Fri Apr 10, 2009 7:12 am Post subject: Re: Latest update |
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Thanks for the reply Jim and really good to hear from you. Given your recent reports everyone on the board was concerned but glad to see from your post on another thread that it was valuable family time.
Based on what I was told it seems like my Grade II never went away after surgery - just kept impercepibly growing with nothing detectable on the MRIs until now when they have enough history to go back far enough they can see the change. Dr was not going to send this to the review board until he heard how worried I was. It's only 18 months since surgery so for this to be regrowth seems to be very bad news. |
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artaran
Regular
Joined: 22 Feb 2007
Posts: 49
Location: Monterey CA
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| Posted: Fri Apr 10, 2009 9:47 am Post subject: Re: Latest update |
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I'm so sorry for your concerns. Waiting is often the hardest part.
On the bright side. You at least have the gene deletions, so if they decide to begin with a chemo-radiation treatment, it has a good chance of being effective.
I know it's scary to think of undergoing additional treatment, but it's pretty well tolerated my most people, especially younger people.
I wish you the best. Keep us in informed. |
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plugh
Experienced user
Joined: 18 Oct 2007
Posts: 50
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| Posted: Wed Apr 15, 2009 12:36 pm Post subject: Re: Latest update |
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| So just spoke to my NeuroOncologist. Board review wants to proceed with watch and wait till my next MRI in 4 months. surgery was 21 months ago. Growth over the last 18 months is 2mm and no discernible growth in the last 4 months. Dr believes there will be treatment in the future but not sure when and not sure if chemo or repeat surgery. If I get symptoms or the tumor absorbrs the contrast on an MRI (this is apparnetly indicative of a change in grade) that will trigger an immediate response. So 2mm in 18 months not a lot and it is even possible it has stabilized again. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
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plugh
Experienced user
Joined: 18 Oct 2007
Posts: 50
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| Posted: Fri Aug 07, 2009 10:44 am Post subject: Re: Latest update |
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Thanks for the thoughts which are greatly appreciated. Just had the new MRI results and no change at all so very good news. No change from the prior MRI or the MRI done after surgery so what's left is remaining stable. So after freaking a bit last time the next one is in December and back on the treadmill  |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
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plugh
Experienced user
Joined: 18 Oct 2007
Posts: 50
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| Posted: Fri Aug 07, 2009 4:53 pm Post subject: Re: Latest update |
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Thanks Brainman! 2 years 3 weeks since diagnosis, 2 years and 5 days since surgery. This time 2 years ago I was Mr Zippy Head  |
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Tammy
Senior User
Joined: 27 Nov 2007
Posts: 117
Location: New Brunswick, Canada
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| Posted: Mon Aug 10, 2009 12:55 pm Post subject: Re: Latest update |
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Plugh, I am happy to hear you are doing good, keep beleive and I think it will take you a long way...I wish you all the lucks and *cheers* tomore stable infotmation mri's!!  < happy for you
A friend Tam xx
_________________
~Tam-xx~
Life shouldn't be about you waiting for that nasty storm to pass, it should be all about you learning how your going to dance in the rain.. 
Diagnosed with an Oligodendroglioma Gr 2, in 2007. |
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plugh
Experienced user
Joined: 18 Oct 2007
Posts: 50
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| Posted: Fri Dec 11, 2009 1:11 pm Post subject: Re: Latest update |
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4 months fly's by and another MRI - stable again Good news right before the holidays. Being considered to move to a 6 monthly MRI program. Wishing everyone all the best and keep up the fight.
_________________
Craniotomy Aug 2007 diagnosed as Gr II Oligodendroglioma |
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artaran
Regular
Joined: 22 Feb 2007
Posts: 49
Location: Monterey CA
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| Posted: Fri Dec 11, 2009 2:12 pm Post subject: Re: Latest update |
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So Happy to here about your good news and OHBob's as well!!
My son's MRI on Wednesday showed no new growth, so we also are feeling very thankful this holiday season. Take care all!
---------------------------
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.
complements of Reinhold Niebuhr
Arleen
_________________
Arleen Tarantino
http://www.willpowerresearchfund.com |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
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Tammy
Senior User
Joined: 27 Nov 2007
Posts: 117
Location: New Brunswick, Canada
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| Posted: Mon Dec 14, 2009 1:57 am Post subject: Re: Latest update |
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Plugh I am so happy for you!! Keep your chin up and stay strong, its working!!
Take care of yourself!!
Tam
_________________
~Tam-xx~
Life shouldn't be about you waiting for that nasty storm to pass, it should be all about you learning how your going to dance in the rain..
Diagnosed with an Oligodendroglioma Gr 2, in 2007. |
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