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simon77
Regular
Joined: 25 Dec 2008
Posts: 21
Location: adelaide
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 Posted: Sat May 02, 2009 6:36 am Post subject: anaplastic oligoastrocytoma / anaplastic Oligodendroglioma |
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hello everyone. got pathology report. i have anaplastic Oligodendroglioma and could have anaplastic oligoastrocytoma. just waiting on genetic test results to see what treatment plan to follow. can anyone provide me with information on this type of brain tumor. thanks
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diagnosed low grade 2 brain tumor 2006. latest mri confirms higher grade 3-4. surgery only resected small percentage and no radiation or chemo as of yet |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
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| Posted: Sat May 02, 2009 1:34 pm Post subject: Re: anaplastic oligoastrocytoma / anaplastic Oligodendroglioma |
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Simon, I am so sorry that the results came back as an anaplastic glioma  The difference between an oligodendroglioma and an oligoastrocytoma is not that great in terms of treatment options. Surgery is an option if the tumor is accessible and if they can safely remove a large part of it. Chemotherapy can be Temador or Temador + Avastin (or maybe the oder gold standard PCV). There are some research protocols but I don't think you would qualify for them at this point. Stereotactic radiation therapy is another possibility. Or you may receive all three.
On a more personal note, I to had anaplastic oligodendroglioma in 2005 and I am still here  . My therapy consisted of one cycle of PCV pre surgery, surgery, and stereotactic radiation for 3 months after surgery to make sure that any remaining cancer cells where killed. I do have some weakness on the right side with loss of balance. I also have occasional speech problem and have to the anti-seizure meds for the rest of my life.
Simon, you are in my thoughts and prayers.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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simon77
Regular
Joined: 25 Dec 2008
Posts: 21
Location: adelaide
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| Posted: Sun May 03, 2009 8:43 pm Post subject: Re: anaplastic oligoastrocytoma / anaplastic Oligodendroglioma |
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we were told by our neuro oncologist that with an anaplastic Oligodendroglioma, chemotherapy or radiation are used as first line treatment and not both. use radiation or chemotherapy initially than down the track if their is a reccurence we can use whichever treatment we didnt use first. does that make sense? everything i have been reading says that using radiation and chemo together has the best outcomes.
_________________
diagnosed low grade 2 brain tumor 2006. latest mri confirms higher grade 3-4. surgery only resected small percentage and no radiation or chemo as of yet |
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chatterboxgayle
Regular
Joined: 29 Oct 2008
Posts: 16
Location: Cloverdale, British Columbia, Can.
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| Posted: Tue May 05, 2009 1:53 am Post subject: Re: anaplastic oligoastrocytoma / anaplastic Oligodendroglioma |
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[quote="brainman"]Simon, I am so sorry that the results came back as an anaplastic glioma The difference between an oligodendroglioma and an oligoastrocytoma is not that great in terms of treatment options. Surgery is an option if the tumor is accessible and if they can safely remove a large part of it. Chemotherapy can be Temador or Temador + Avastin (or maybe the oder gold standard PCV). There are some research protocols but I don't think you would qualify for them at this point. Stereotactic radiation therapy is another possibility. Or you may receive all three.
On a more personal note, I to had anaplastic oligodendroglioma in 2005 and I am still here . My therapy consisted of one cycle of PCV pre surgery, surgery, and stereotactic radiation for 3 months after surgery to make sure that any remaining cancer cells where killed. I do have some weakness on the right side with loss of balance. I also have occasional speech problem and have to the anti-seizure meds for the rest of my life.
Simon, you are in my thoughts and prayers.[/quote] |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
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| Posted: Wed May 06, 2009 5:09 am Post subject: Re: anaplastic oligoastrocytoma / anaplastic Oligodendroglioma |
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Simon, that does make sense to me. It sounds like it is not operable. Mine was so they gave me chemo before surgery to try and shrink to tumor. But it does make sense to go with radiation and hold back on the chemo. Hopefully, the radiation will kill all of the cancer and you will have a loooong time before you need the chemo 
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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