My mother has been diagnosed with multiple myeloma.

Canova · New User Joined: 14 Nov 2008 Posts: 1

The doctor said that it is "smouldering" as in "inactive". However, she has had to have blood transfusions monthly and now more and more frequently. She just had one last week and now has to have another tommow because her hemoglobin is dropping so low. Her doctors can not figure out what the heck is going on or where the blood is going. Has anyone here ever experienced this before? I need some answers quick because it is not looking good for her.

brainman

Hi Canova. I am sorry to hear about your mother's diagnosis. My ex father in law had MM for 6 years before it finally killed him.

It is my impression that "smoldering" just means that the MM is not spreading. It does not mean that it is not causing problems or it would never be diagnosed. I think it is a matter of degree... that is, how far off from normal are her CBC results? Hemoglobin is the iron carrying protein in the red blood cells. Is her red blood cell count also very low? Is it possible that she was at least slightly anemic before the MM? These are a few questions I would have for my doctor if this were me. Let us know what you find.

You and your mother are in my thoughts and prayers.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
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wendi · New User Joined: 15 Feb 2009 Posts: 9

Hi my name is wendi ,My mother was diagnosed in janurary and has gone through the chemo feb-april three times a week I have seen her deteriate,she has had two compression fractures in her spine due to the diease, she has been in the hospital twice once for her back and this time for the major chemo and to build up her stem cells with nuprin?? spell ck ,she gets shots in her stomach,but she has a problem her previous cancer (breast) treatment has left her with defecient stem cells and after speaking with the doctors she has decieded not to go through with the process, she does not feel she is strong enough to go through it. and no more chemo, I feel she is not telling me the entire story .I feel so lost and confused I need a real explaination of what is happening to her and why she has decided to give up the fight .
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wendi

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