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how naive i was What is this ?

 
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tawny111
Regular


Joined: 04 Jun 2009
Posts: 37
Location: usa

PostPosted: Tue Jun 09, 2009 4:51 pm    Post subject: how naive i was Reply with quote

my dad, 84 yrs. old, had brain surgery this morning...i assumed they would tell me much about the tumor, what's next, etc, since they took what they could out. the surgeon called me later today and told me they could tell me nothing specific until all of the lab work is in, (1 week wait), and are talking to a radiologist as the next course of treatment.
the only thing he said was that they couldn't get near the tissue where his speech would be compromised....so everything is definitive to the samples that were taken, and that's that!
i am still assuming it's an glionoma because of the rate and size of this growth.
my concern is my dad has had many stomach operations and will he be able to actually endure radiation?? will it just be a lot of suffering?
well, this has been a real bad day for me, i know, you've all been thru it, i'm just beginning to understand.
thanks for listening!
tawny
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5986
Location: Tennessee

PostPosted: Wed Jun 10, 2009 6:19 pm    Post subject: Re: how naive i was Reply with quote

Oh Tawny, I am so sorry about your father's brain cancer. Is he at a major medical center? I was at a regional hospital but we had a very good oncology department so I had at least a clue about my diagnosis by the day after my biopsy. I did have to wait a long time (or at least it seemed long) for the other more specialized tests.

Unfortunately, I tend to agree with you that it sound like his tumor is a high grade glioma. My mother, 78 yrs old, was diagnosed with a GBMIV. It was very large... most of the left side of her brain causing and causing a midline shift. She had other health issues. She made the decision not to have any treatment other than the biopsy and pain control. She died two months after her diagnosis. She too found out within a couple of days.

You and your mother are in my thoughts and prayers.
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tawny111
Regular


Joined: 04 Jun 2009
Posts: 37
Location: usa

PostPosted: Thu Jun 11, 2009 10:51 am    Post subject: Re: how naive i was Reply with quote

thank you for your sincere reply brainman, i've read your story and you have been thru soooo soooo much. also, i wasn't ready for what i saw 1 day post op.....i hardly recognized my dad, i almost felt faint! he's in a very good neuro. center, yet at his age, is this all worth it? i wonder because he also had a stroke a year ago, and advanced parkinsons.
he's going back to the snf tomorrow, thank goodness, cause it's only 10 min. away from my house. it's scary because after all the pain, it's cancerous and i don't honestly know if he can endure anymore!
god bless you!
tawny
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LisainCalifornia
New User


Joined: 04 Jun 2009
Posts: 7

PostPosted: Thu Jun 11, 2009 8:25 pm    Post subject: Re: how naive i was Reply with quote

Tawny,
I am having the same kind of thoughts about my mom. I don't think she can take the radiation and chemo--she is already in such bad shape. I think it is good to take it one step at a time.

Wait until the pathology report gets back, then make the choice to do treatment. A patient can also stop treatment if it affects them too badly.

Hugs,
Lisa
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tawny111
Regular


Joined: 04 Jun 2009
Posts: 37
Location: usa

PostPosted: Sun Jun 14, 2009 4:49 pm    Post subject: Re: how naive i was Reply with quote

hi lisa:
i just caught your reply, i posted to you a minute ago, i agree, one moment at a time... i was really upset last evening when he complained of severe pain from the huge "paper cut" on his head, i do NOT want him in any pain, they upped the pain meds, so he is sleeping, not suffering, and i told the snf RN....if he can't ask, yet gets agitated, give him a pain pill...the empathy i feel for him is making me kinda sick at times.
i think about your mom because we are so closely related by this by timing. and i do know one this...TIMING IS EVERYTHING...my grandma told me that when i was a kid. and to this very day, i live by that.
it is my dad's birthday today,,,,all i could do was stay with him, gave him a big ass poster of a sunset, he loved it, and a homeade cake and my coffee, (ugghh), not the coffee he get's from "there"...i really think..LOL...it's not even close to a nice cup of coffee, they should rename it,,,,brown stuff in a cup!
take care, OK?
tawny xoxoo
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