New Member: Post RP Question

dave2 · New User Joined: 26 Sep 2009 Posts: 2

Hello to everyone, I had robotic prostatectomy 10 days ago. Since the catheter has been out (4 days ago) I've had a weak stream. Just wondering if anyone else has experienced this. Thanks for any input.

mkane09 · Posted: Sat Sep 26, 2009 7:05 pm Post subject: Re: New Member: Post RP Question

Entirely normal, Dave. Your stream will get more forceful as you regain control. How long that takes varies greatly. Some here will tell you a week or so, but it took me several months to really gain control. Hang in there...

mkane09
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PSA 6.48, biopsy Gleason 3+4, robotic prostatectomy 9/17/08, pathology Gleason 4+5, pathologic stage T2c, positive margins, first post-op PSA 10-15-08 0.10; 2nd post-op PSA, January, 2009 0.18; SRT completed May 22, 2009. 1st post-radiation PSA, 8-4-09, <0.06. PSA 12-22-09 <0.06

dave2 · New User Joined: 26 Sep 2009 Posts: 2

Thanks Mkane,
I haven't heard about this before and it had me worried.

srtimmons · Posted: Sun Sep 27, 2009 10:52 am Post subject: Post RRP

I am 2 1/2 months post-RRP and just starting to regain some control. Still dripping a lot and stress incontinence is bad, but now seeing signs of more control. For most men, it is 6 months before full control is back. So I'm told.

In my case, still total ED, but i'm taking Viagara, Muse and use a VED pump daily. Seeing some signs of life there, too. I'm hopeful.

Good luck.
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Age 58
Dx 6/15/2009; PSA 7.1; 7/12 cores positive; Gleason 6 (3+3) and 7 (3+4); PNI observed. Bone Scan and CT scan negative.
Robotic RP 7/20/2009

Path report 8/11/2009 - clean margins, negative lymph nodes, negative seminal vesicles, Gleason 3+4, Stage T2c; 15% of prostate involved; NoMx.

PSA .006 September 2009
PSA .005 November 2009
PSA .005 February 2010

denny · New User Joined: 20 Aug 2009 Posts: 5 Location: NZ

Hi Dave2, I had robotic RP surgery on 17 June this year. I am 54, physically fit and trim. The operation saved my life because although both PSA & biopsy were low grade/suspicious, the post-op biopsy revealed 20% cancerous tissue.

I was almost continent immediately after removing the catheter but the normal sensations to urinate were confused, my bladder capacity was very small & leakage was a problem. It only took me 3 weeks to regain almost full continence and my bladder function is almost back to normal after 3 months.

The key is keeping up the pelvic floor exercises even after regaining continence. I suspect I will be doing them for the rest of my life? Two things I have learned about this illness is that life never goes back to exactly the same as before and recovery is a drawn out process.

Erectile dysfunction is still a major problem for me due to the inevitable nerve damage however I am hopeful to regain something(?) back within the next 12 months. Again it won't be the same but it will be better than nothing and I have to be patient.

My doctor say I have made a remarkable physical recovery but mentally I am only maybe 50% recovered? My family & work just assume I have recovered and make the same excessive demands on me as before. I just can't handle the same amount of physical exercise or mental stress any more and lose my temper easily now (before I was never ruffled).

I hope this honest & open feedback helps calm your fears
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denny

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