daughter stoping chemo

terrismom · Regular Joined: 19 Mar 2009 Posts: 46

Well Terri decided to stop her chemo. Well at least for two weeks then make a decision. I don't thinks she will continue with it. It just made her so sick. I can't say that I blame her, but sure hurts to have to except no more hope. I knew from the start that there wasn't but as long as there was treatment you always hope. She does feel much better, still not eating much but at least eating some. She is up and about acting like nothing is wrong. Her and I brought the rv over to the little town she was raised in, and she is running around town with some of her friends. Wonderful to see her out of the bed. So I have spent this time doing the pitty me thing and crying.

And now to top everything off, My son in law has been bleeding pretty bad for the past month or so. He finally went to the dr a couple days ago. They put him in the hospital, and did the scope today on his colon. They told him they found several lesions. did a byopsy, and sent him home. Told him to go back to the dr in a week. Is there a difference in pylops and lesions? I know with Terri they said they found lesions on her brain. I don't want to jump to conclusions, but the word lesions really scares me.

Thanks all
Monell
(Terri's Mom)

pbj11 · Site Admin Joined: 12 May 2007 Posts: 2403

((((Monell))))),

I'm sure this is just a hellish time for you. I certainly understand your thinking of "where there is treatment, there is hope." I never faced my husband not doing chemo, so went to the end with that hope.

You never know if the chemo will be extending her life either. She certainly seems to be doing well off of it and maybe that's the best form of "hope" you can have -- seeing her living a little bit and feeling good.

My heart goes out to you to know there are other issues in the family too. When it rains it pours. I sometimes wonder how God thinks we can handle all of this on our plate at one time.

I'm very sorry. Keep writing and letting us know what's happening.

You'll be in our prayers.

Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.

Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0

terrismom · Regular Joined: 19 Mar 2009 Posts: 46

WEll it's been awhile since I posted. Son in law is fine. But Terri is worrying me. They changed her chemo to one that he said he gives to his elderly patients because of the lack of side effects, because the gmezar/chisplatin was so hard on her that she could not continue it. But her throwing up did not stop. Even with the two different meds for it. Two weeks ago she was so sick that he stop even the new one. He told her it was for 3 weeks to give her body a rest. He told me that her body had all it could take. He ordered a brain mri, and it was better than the last time. with only one that stil lhad a little swelling behind it, but not enough to put back on steriods. He also ordered a liver scan last week. they thought they had seen a shadow, but could not tell what it was, so did a ultra sound today. They found nothing. And on the scan the one that was on the adrenal gland was gone. She should be feeling better right? NOT. She has no energy hardly to even get out of bed. One day she stays awake and then sleeps most of the day for the next three. She did eat a lilttle two days in a row this weekend. But now hardly nothing. She still throws up a couple times a day. He says the chemo is not causing it especially now, nothing in the brain is causing it or the liver. Her blood work is great. Her CA125 is normal now.(cancer marker). He doesnt seem to know what could be causing it.
And she is so cold all the time. She cries because she is so cold. It is still 73 here today and she is in bed with 4 blankets on her. Has anyone experienced this? If so what did you do.
Another question I have is if the cancer is not spreding then why does she seem to keep going downhill every day? They havn't cked her lungs in three months. But it had spread the last time they did one. Two weeks ago in the hall he told me that she was in the last stages. How can this be if it has not spread to the liver, or pancrease, kidneys. etc? And maybe that is a stupid question, I don't know.I just know I don't understand it. (maybe none of us do)

Thanks to all
Monell

JaLee · Regular Joined: 20 Aug 2009 Posts: 26

My mom had a rough time with her first cycle of chemo... she's been in bed with a heated mattress and two blankets. The thermostats sitting on 76 (me sweating) and her body temp reads below normal. I thought it was weird but maybe its a latent chemo thing. There's a lot I don't understand as well...

terrismom · Regular Joined: 19 Mar 2009 Posts: 46

yes is there so much I don't understand. Guess no one does. I made the coment to my husband the other day that " if god had made me smarter instead of good looking maybe I would have all the answers" LOL I'm 60 years old so that was sure ment to be funny hahaha.
My heart goes out to you and your mother. I lost my dad with lung cancer when I was 30, and my mom with her heart when I was 32. Life is never the same when you don't have mom to call for advise. You both have my prayers.
I have asked her dr's. and dr west, and no one has any answers as to why she is so cold. So maybe it is the chemo. One day I guess we will have all of our answers.
God Bless to everyone

Monell

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