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4lindsay
Regular
Joined: 12 Apr 2008
Posts: 31
Location: Seattle
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 Posted: Mon May 04, 2009 10:46 am Post subject: Re: My hubby has what they call a "mixed" brain tumor |
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Krista~I totally understand your feelings you had while doing the prom girls makeup. My daughter said she'd love to come up with a t-shirt line that says things just as you suggested, "I don't care, my husband has a brain tumor!" or "Brain cancer sucks...just ask me!" We actually came up with some pretty good ones.
Don't EVER be afraid of asking your husband's doctors too many questions. We are a medical consumer. It is our responsibility to gather as much knowledge as we can and ask every question possible. Afterall, when you're making a major purchase at a store, don't you find out which is the best brand, model etc. and find out every detail you can about it? Arm yourself with a list before you go in. They may seem frustrated (because most people go in blind) but they're actually impressed because you're doing your "consumer" research.
Yes, brain cancer really does suck but you do the best you can to get through it and help your loved one through it. My daughter (23 yr. old w/ an oligoastrcytoma grade 2) says, "If God wants to do a miracle and heal me, that would be wonderful! But if not...I want to touch as many lives as I can in the process!" What an amazing young woman! By the way, she LOVES MAC and would love to be a makeup artist for them!
Take care and keep your head up for Mark.
Dianne |
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Kristalee
Regular
Joined: 06 Nov 2008
Posts: 43
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| Posted: Fri Oct 30, 2009 7:16 pm Post subject: Hi guys |
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Hello to everyone  I havent posted in quite sometime and feel the need to!
Mark has been involved in a trial called VEGF trap......so far the tumor has shrunk more than 60% ! All three MRI's has showed tumor shrinkage ! Our last one was yesterday. Our doctor also gave us some hope saying he wouldnt be surprised if Mark was doing this well five years from now....sounds to good to be true, but Dr.N is very honest 
We all talk about having "hope" and sometimes its hard to actually feel it and believe it...I say I am hopefull but truthfully I am never not feeling what I call the BT feeling...I feel a little better, but am still on my guard Mark feels great and is confident and that is what is most important!
If anyone is going to Dana Farber Boston let me know we are there ALL the time!
krista |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5612
Location: Tennessee
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| Posted: Sat Oct 31, 2009 12:06 am Post subject: Re: My hubby has what they call a "mixed" brain tumor |
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Hi again Krista . It is so good to hear your wonderful news about Mark! I am glad that you came to update us on his condition. I am glad the trial is going so well and, more importantly, that it is WORKING!!!
In about a week, it will be 1 year since your first post. I am sure it feels much longer to you. I am glad you are still here and that things are going well. Stay in touch.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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Kristalee
Regular
Joined: 06 Nov 2008
Posts: 43
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| Posted: Sat Oct 31, 2009 4:36 pm Post subject: Re: My hubby has what they call a "mixed" brain tumor |
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| Jim youre right! It's been a year since everything started! It does seem much more time has passed! Time to get our lives back so to speak much love! Krista |
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Mama 2 2
Senior User
Joined: 29 Nov 2007
Posts: 107
Location: Sunshine Coast, BC
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| Posted: Wed Nov 04, 2009 5:06 pm Post subject: Re: My hubby has what they call a "mixed" brain tumor |
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Hi Kristalee,
I've been thinking of you, and was SO happy to hear the great news. I can't believe it's been a year now - I really hope things continue to go so well for you and for Mark.
Thanks for sharing,
~C~
_________________
Our Story: http://www.cancerforums.net/about7982.html
www.caringbridge.org/visit/eliasminatsis |
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Kristalee
Regular
Joined: 06 Nov 2008
Posts: 43
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| Posted: Fri Nov 20, 2009 8:27 pm Post subject: Re: My hubby has what they call a "mixed" brain tumor |
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Chelsea!!!
How are you and the girls!?! Think about you all the time. Thanks for posting  Mark's tumor has shrunk some more woot! Hope everyone is doing good! Hugs
Krista |
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