I don't have primary lung cancer but...

sohereweare · New User Joined: 24 Jun 2009 Posts: 3 Location: Australia

didn't know where else to post this. I was diagnosed with primary liver cancer in 2007, which spread to several lymph nodes and both my lungs. My liver had been operated on twice in 2007.
This year I had 2 VAT with wedge resections on both lungs in March and April, I had 2 x mets in my right lung and 1 x mets in my left lung. My latest CT scan done in September showed no new mets hence my lungs appear to be clear. (The 2 right lung mets first appeared in Sept 07 and the 1 left lung mets first appeared in November 2008) What I want to know is the likelihood of more mets in my lungs in the future? I am continuing an oral chemo I've been for more than 12 months, I know every cancer is different and it is therefore impossible to predict the outcome, but have other people who have had VAT wedge resections experienced recurrences even after appearing clear for some time? If so what are the symptoms you have experienced?
Thank you in advance for any replies.

dano

Sohereweare, Hello!
I'd like to be able to say something real inspirational and heart lifting, but you got cancer and Cancer has a lot more wins than losses and is always the odds on favorite. But if your lucky you can slow it down, and buy more time. I'm still hoping for that cure to come along. Cancer has the ability to move to places you don't expect, if cancer comes back to any thing, you would want it to show up in your lungs because the other places are much worse. It seems like liver and bones are very common places for mets to move to and can be very painful and difficult to treat. I'm surprised that more suggestions have not been coming in, but it is hard to say things that might make you feel worse. I was diagnosed in November of 2007 and was pretty scared about it all not knowing things was the worst. Adjustments are made as the doctors learn to read your cancer and how it reacts to treatments. your body will react to the meds as well and there will be times that those are changed to work with your system better. But the Patient has to be willing to get the Doctors to may the right read. They need your input to do their job, if not, find a new oncologist or clinic. Learn who gives you what when you ask questions. I love my oncologist, however at first she skirted some questions because she didn' want to sound negative. I got those tough questions answered by other doctors, but my Onc was a great listener and made quick changes to meds and treatments when I let her know what was going on. And I could get her to smile more than most doctors, a real serious doctor does not give you the feeling that you are winning, and winning is a good feeling. Stay in touch please!
God Bless
Dan
_________________
55 year old male, Diagnosed Nov. 9,2007 with NSCLC IV with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08 treatments now every 4 weeks with Alimta, taking Lovenox for blood clots, Now working full time
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