low psa and found cancer

turkee56 · New User Joined: 14 Jun 2009 Posts: 2 Location: western pa

i had a physical exam the first of the year and during the exam the found a lump on prostrate. so i had a biopsy and found cancer. a gleason score 3 + 4 = 7 . my psa was .95. now the urologist said, prostrate must come out. so i was sent to pittsburgh to see if i can have it done robotic. he said, since i had prior surgeries, like herina repair and gall bladder removed and all done by laposcope. he can't do it because of mesh repair and scar tiisue. retropubic was out the question. now my choice is perineal.
after what he told me how the surgery was performed, it made me want to cry.
thats horrrible to have it done that way, i was hopeing for robotic.
has anyone had this kind of surgery done perineal?.
what did you have to go through, like pain, having catheter in for a week,
trying to sit etc. i had second opinion, and they said same thing.

Hawk · Senior User Joined: 22 Nov 2006 Posts: 406

You do not mention your age, how many cores were taken and how many were positive, etc.

There are few times (if any) in which the prostate MUST come out. There is always seed implant, external beam radiation, HiFU, etc. All are legitimate primary treatment options. I suggest a consultation by a radiation oncologist specializing in prostate cancer. Their success rate is comprehensible to surgery, the side effects comparable, and the advantage of it NOT being a surgical procedure with none of the immediate trauma of surgery.
_________________
History: PSA's 6.7 neg. biopsy - PSA 16.6 neg. biopsy - PSA's 8.2, 8.1, 8.7 - Biopsy. 4+4 Gleason 8. Lap RP Apr 2004, age 52 All neg margins, nodes, and structures. (T2a). Post RP PSA: every 6 mo. <.1 until Feb, 08 (46 mos) PSA .1 - I then got sensitive tests (all in 2008) showing:
Feb .06, May .09, Jun .10, Aug .10, Nov .15 -SRT

notme · Guest

I want to cry thinking about it as well.

Please call the HIFU team and ask them what they think. This is ultrasound, and no doctor will tell you about it because our FDA won't let them. It'll be approved in the USA in a few years, but that doesn't help you today. Today you must go to Europe or Canada, Mexico or Japan, or Australia--anywhere but here! go figger!

Their phone is 888-874-4384

They are keeping clinical data and so they won't want to treat you unless they are sure you can be treated with success, they want it approved! I know 2 guys who were sent away. And so, the info you get from them will be good. I went to Mexico with a US doctor and his team and it was over in 2.5 hours.

good luck!

Have you looked at the yananow.net site? They have stories from guys who have had all procedures done, here are the surgical ones: http://www.yananow.net/ExperiencesSurgery.htm#surgery

notme · Guest

I found two guys who had perineal surgery on the yananow list. I stopped searching after Evan Gray.

Here are the links:
http://www.yananow.net/Mentors/JohnC4.htm (this guy just had it done and hasn't posted his story yet, but you can email him.)

http://www.yananow.net/Mentors/JeremyF.htm (good story and yoou can email him as well)

turkee56 · New User Joined: 14 Jun 2009 Posts: 2 Location: western pa

[quote="Hawk"]You do not mention your age, how many cores were taken and how many were positive, etc.

my age is 52 and had 8 cores and last two were positive.
he says, i am too youngfor my age for seed implant, also he says the side effects that could damage to surrounding tissues. i am going back to talk to his side kick who also will be performing the operation.should i talk to a oncologist instead of my urologist ?.

There are few times (if any) in which the prostate MUST come out. There is always seed implant, external beam radiation, HiFU, etc. All are legitimate primary treatment options. I suggest a consultation by a radiation oncologist specializing in prostate cancer. Their success rate is comprehensible to surgery, the side effects comparable, and the advantage of it NOT being a surgical procedure with none of the immediate trauma of surgery.[/quote]

Hawk · Senior User Joined: 22 Nov 2006 Posts: 406

I cannot immagine that ANY form of radiation would damage surrounding tissue or cause any worse side-effects than the proposed surgery.
_________________
History: PSA's 6.7 neg. biopsy - PSA 16.6 neg. biopsy - PSA's 8.2, 8.1, 8.7 - Biopsy. 4+4 Gleason 8. Lap RP Apr 2004, age 52 All neg margins, nodes, and structures. (T2a). Post RP PSA: every 6 mo. <.1 until Feb, 08 (46 mos) PSA .1 - I then got sensitive tests (all in 2008) showing:
Feb .06, May .09, Jun .10, Aug .10, Nov .15 -SRT

notme · Guest

My urologist told me that any form of radiation will cause another cancer ten years later, that's why his doc doesn't want to give him seeds or radiation, he is too young.

Seems to me that you didn't even consider what I wrote, HIFU is a real option, it just takes 17 years to get a new treatment approved here (according to Obama yesterday on TV). But it is such a good option, you read very very few guys who had some problems. I wish you would phone them and find out if they can help.

It's like I never had cancer at all, as I never had any trouble at all, treatment took 2 hours and then I was out on the town. Life is the same as prior to diagnosis. It's not too good to be true.

The toll free number is 888-874-4384

CS53 · Regular Joined: 13 Apr 2009 Posts: 15

Hey turkee56

My uncle was in a similar situation as you. Prior surgery's in the prostate area etc. He went to Dr Cookson at Vanderbilt in Tn. He specializes in this type of problem. He did my uncles RP surgey and everything worked out great. Might want to call him for a consultation?

Hawk · Senior User Joined: 22 Nov 2006 Posts: 406

Notme,

If your doctor told you any form of radiation WILL cause cancer in ten years he/she is a quack or a fool. Maybe a combination. I personally know many that have had radiation more than 10 years ago. Statistics are clear. I frankly find it hard to believe a licensed doctor could make such an ignorant statement. Surely you have taken the 15 minutes of time necessary to verify that this is misinformation of the worst kind. If not you should take that 15 minutes right now.
_________________
History: PSA's 6.7 neg. biopsy - PSA 16.6 neg. biopsy - PSA's 8.2, 8.1, 8.7 - Biopsy. 4+4 Gleason 8. Lap RP Apr 2004, age 52 All neg margins, nodes, and structures. (T2a). Post RP PSA: every 6 mo. <.1 until Feb, 08 (46 mos) PSA .1 - I then got sensitive tests (all in 2008) showing:
Feb .06, May .09, Jun .10, Aug .10, Nov .15 -SRT

notme · Guest

Hawk,

That's what my local urologist told me, he said it takes 10 years, but in 10 years or more odds are another cancer in the same area will show up. Doctors don't talk about it except with each other, but it's why they don't prescribe radiation for people (unless there's no other option) under 75 years for prostate cancer.

I opt on the side of caution, and listen to him. I have a friend who also sees this doc, he had no other option except radiation and so this doc did not tell him the same thing he told me. My wife was there, and she agrees, that is what he said.

Sorry to upset you, hope he is wrong, but as I said, I opt for caution on this, and think it should be told as a warning.

I've already taken that 15 minutes, and you can find it discussed, the data isn't conclusive, but no one will say it doesn't cause cancer later. Here's what seems to be the truth, "The statistics on radiation induced cancers vary dramatically from different sources." but I also know a lady who had breast cancer and 10 years later she had it return in the exact spot that was radiated.

So, I wouldn't chose radiation over surgery.

johnT · Senior User Joined: 27 Apr 2009 Posts: 173

Turkee,
A psa of .95 with a gleason 7 doesn't make any sence. There is a standard formula that is used to determine the psa that a gleason 7 tumor throws off and it is far greater than .95. I would see a good prostate oncologist and get an explaination as you could be facing a varient of PC.
I would not start any treatment untill all your numbers, psa, tumor volume, and gleason correllate.

30 years ago when radiation was given to a large area there were some reported incidences of secondary cancers. With the new machines and accurracy there is NO evidence that modern radiation causes cancer, in fact it is just the opposite. Radiation gets similar cure rates to surgery with equal or lesss side affects.
JohnT
_________________
psa at diagnosis 40 in nov-08
gleason 6 and 7
Treatment choice seeds and IMRT

Hawk · Senior User Joined: 22 Nov 2006 Posts: 406

NOTME,

The only thing that "upset me" is that you again anxiously put out false information. You said: "doctors do not talk about it except with each other". That is absurd. You imply you or your doctor must be special since he obviously spoke with you about it ??? Doctors DO talk about it. All my doctors readily talked about it. The difference is that my doctors gave the verifiable statistical probability of secondary cancer risk derived from extensive clinical studies rather than the misinformation that you seem anxious to keep repeating. Facts seem to roll off of you like water off of a ducks back because you will no doubt repeat it again even after being informed, even though the facts and studies are at your finger tips. I guess the difference is that your mission is to push HIFU and my agenda is accuracy and objectivity.
_________________
History: PSA's 6.7 neg. biopsy - PSA 16.6 neg. biopsy - PSA's 8.2, 8.1, 8.7 - Biopsy. 4+4 Gleason 8. Lap RP Apr 2004, age 52 All neg margins, nodes, and structures. (T2a). Post RP PSA: every 6 mo. <.1 until Feb, 08 (46 mos) PSA .1 - I then got sensitive tests (all in 2008) showing:
Feb .06, May .09, Jun .10, Aug .10, Nov .15 -SRT

notme · Guest

"again" I put out false information? Because your experiences in life are different than mine doesn't mean it is false, and what's up with "again"?

I repeat what a qualified doctor finds in his practice. And what several web sites say, and a case that I personally know of. I simply caution not to chose radiation over surgery because of the unknowns.

It remends me of the WHI study that says women should not take estrogen because it causes heart attacks, when doctors continue to prescribe estrogen because they do not find an increase in heart attacks in their practice.

My doctor (I assume) told me what he finds in his practice and that of his two partners. Or, I guess I could believe he was just trying to sway me away from radiaton as he is a surgeon.

John T said, "Radiation gets similar cure rates to surgery with equal or less side affects. "
Surgery doesn't cause bowel incontinence does it?

johnT · Senior User Joined: 27 Apr 2009 Posts: 173

Notme,
Rectal proscititis occurs in about 1% of radiation patients. Incontenence is rare in radiation, common in surgery. ED is about the same in both; it occurs immediately in surgery and 3-4 years later in radiation. Surgery has some other complications that are rare. This is from full dose IMRT; brachatherapy has even less side affects.
As Hawk said, you spert out information that has no basis in fact and is at best misleading and not supported by any evidence.
JohnT
_________________
psa at diagnosis 40 in nov-08
gleason 6 and 7
Treatment choice seeds and IMRT

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