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Nodular Sclerosing Hodgkin's Lymphoma What is this ?

 
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bebisimmm
New User


Joined: 10 Nov 2008
Posts: 1
PostPosted: Mon Nov 10, 2008 10:36 am    Post subject: Nodular Sclerosing Hodgkin's Lymphoma Reply with quote
Hello everyone,
Noone knows about any illness untill u face up with.... Sad(
My lovely fıance had been caught by Nodular Sclerosing Hodgkin's Lymphoma.
We completed all the stages before chemotherapy.Tomorrow we're goıng to our doctor ın order to get the protocol (tıme table) of the desease.
Are there anyone caught Nodular Sclerosing Hodgkin's Lymphoma.We don't know anything yet detailly about the illness however i!m aware that we r gonna learn new and protective applications from this desease.
My fiancey is 25 and the grade is II.She realised her illness just 10 days ago.The stage is very early we understand.
I need just any kind of story smilar to ours in order to learn more.

Thank you.
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ksplat
Super Moderator


Joined: 26 Apr 2007
Posts: 563
Location: Brisbane, Australia
PostPosted: Tue Nov 11, 2008 8:27 pm    Post subject: Re: Nodular Sclerosing Hodgkin's Lymphoma Reply with quote
Hi there
I noticed your post attached to this thread & I'm afraid to say but it should be moved to the relative thread "other cancers" or "lymphoma". I will ask the Admin to do this for you. You will hopefully receive support & answere to your questions.
Thinking of you & your Fiance.
Cheers, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"
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ChemoMan
Senior User


Joined: 04 Jun 2008
Posts: 202
Location: South Australia
PostPosted: Wed Nov 12, 2008 9:37 pm    Post subject: Re: Nodular Sclerosing Hodgkin's Lymphoma Reply with quote
Hi

The type of Hodgkins your fiancee has is common in young females who have lymphoma, and is the most common subtype. Stage 3 is not good it would have been better if it was staged 2 or lower, however the cure rates are over 80% with stage 3 or 4. The treatment your Fiance will get depends on where you live. In the USA it is ABVD and in Europe they use BEACOPP. BEACOPP has about a 10% better cure rate than ABVD but slightly higher risk of secondary cancers, which is why US doctors dont generally use it, it is also more expensive.

Don't panic about this, they are very good at treating Hodgkins and have been for many years now. Your Fiancee should pull through this, she is young and the treatments are successful. I cant tell you what the chemo will be like as I dont have any experience with it, but if your Fiancee can still manage a laugh or two through all this it should be tolerable. If your Fiancee has a rapid response to Chemo she may even not have to have the radiation, but you will need to wait and see on this.

Good luck with the future, don't panic and remember that we are here if you need us at any stage. I hope all goes well
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
http://cancerforums.net/viewtopic.php?t=9620
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