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Strange disease attacks mucous membranes!!! What is this ?

 
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Author
joe2hewes
New User


Joined: 14 Jul 2007
Posts: 2
Location: Walhalla, SC

PostPosted: Sun Jul 15, 2007 12:57 am    Post subject: Strange disease attacks mucous membranes!!! Reply with quote

So far, serum oncology, dermatology, 2 ENT's, and opthamologists cannot diagnose.
My upper eyelids have lesions and hematomas. Lower lid area very dark. Also on tongue, inner cheeks, face (after carefully shaving) rectum.
Was supposed to be atypical amyloidosis secondary to possible multmyeloma. Rectal, marrow, fat pad, tongue, inner cheecks, and eyelid skin and corneal biopsies all negative for Congo red staining. Smoldering myeloma downgraded to MGUS. I'm on coumadin for leg DVT's.
Has any one heard of coumadin, or anything else, causing these problems??? INR is only maintained at<2.0, and I'm also on hemodialysis.
Thanks,
Joe
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