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3coffeebeans
New User
Joined: 21 Feb 2007
Posts: 4
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 Posted: Wed Feb 21, 2007 9:17 pm Post subject: Introduction! HI |
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Hello all,
I thought I would take a minute to introduce myself. I cannot tell you how happy I am to find an active forums. I am 34 and have an Oligodendroglioma. One thing that I have found is everyone seems to have had some type of surgery. Other than the biopsy I am choosing not to have surgery at this time. I am wondering if I am making a wrong choice. Mine is overlapping the motor cortex for my left side and they cannot remove all of it. I have been seen at Stanford and UCSF. I guess I am more concerned about the outcome of the surgery than what I am dealing with now. Does that make sense? Well, nice to "meet" everyone and look forward to being an active member! |
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michelesmith
Experienced user
Joined: 28 Oct 2005
Posts: 72
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| Posted: Thu Feb 22, 2007 10:00 am Post subject: Re: Introduction! HI |
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3coffeebeans,
It is good to have you join the forum.
_________________
Michele |
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artaran
Regular
Joined: 22 Feb 2007
Posts: 43
Location: Monterey CA
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| Posted: Thu Feb 22, 2007 11:28 am Post subject: Re: Introduction! HI |
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My 23 year old son was recently in your situation. His MRI showed a glioma grade II. It was the size of an avocado in the parietal lobe, fortunately operabel. Doc's said it was probably an oligodedroglioma or astrocytoma. We went to both Stanford and UCSF and opted to operate. The surgeon was Michael McDermott. He has an outstanding reputation at UCSF. He resected all of the visible tumor. A month later my son is fine, only tired, even running again. I highly recommend you see him. I also recommend you work with UCSF. They are the brain tumor experts.
We thought about waiting and seeing or going with a biospy, because the tumor was believed to be low grade, but the pathology report show it to be an anaplastic astrocytoma grade III, so at this point we're glad we had it removed.
BTW--if any of you are in a similar situation especially young people dealing with this kind of tumor please let us know how you are coping and what kinds of treatments you are undergoing. My son begins chemo and radiation on Monday. |
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brunette
Experienced user
Joined: 27 Oct 2006
Posts: 51
Location: UK
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| Posted: Fri Feb 23, 2007 12:31 pm Post subject: Re: Introduction! HI |
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Hi there, welcome to the forum.
I know you will receive alot of love and support here, as I have.
My best wishes to you. Jen xxxx |
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3coffeebeans
New User
Joined: 21 Feb 2007
Posts: 4
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| Posted: Fri Feb 23, 2007 12:42 pm Post subject: Re: Introduction! HI |
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| Thanks for everyone who has responded. I have read some other posts and everyone here seems to genuinely care!! Thats great. Talk at you later! |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5609
Location: Tennessee
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| Posted: Fri Feb 23, 2007 5:55 pm Post subject: Re: Introduction! HI |
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Hi "coffee", welcome to the forums.
Let me first say that the decision to have or not to have surgery is a very personal decision. Only you, in consultation with your doctors, can say whether it is or is not the right choice for you.
My story started back in 1992 when I started to have mild seizures and right-sided weakness. They found a “small” area in my brain that looked like it could be a cancer but the only way to know for sure was to do a biopsy. I gave the surgeon permission to do the biopsy and if it looked like cancer to resect the whole lesion. The doctor said that he thought he might be able to remove the whole thing. However, when he actually saw exactly where the cancer was, he decided not to cut it all out because I might loose the ability to speak, use my right arm… etceteras. That cancer was taken care of with chemotherapy.
When the cancer recurred in 2005, it was in the same area but much larger and deeper. This time, I knew the danger of surgery but also knew the danger of not having surgery. I choose surgery. I do have some loss of my right-side. Nevertheless, I think I made the right choice.
I will be praying and thinking about you.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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Rox
New User
Joined: 26 Mar 2007
Posts: 6
Location: South Carolina
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| Posted: Mon Mar 26, 2007 10:15 am Post subject: Re: Introduction! HI |
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Hi and welcome,
I'm another newbe to this forum. My husband (37)is having his 2nd surgery for the same tumor as yours. It will be done next week and the goal is to keep it from reaching his motor strip that controls his left side. His Dr. plans to do surgery until it is inoperable. After his last surgery, he went back to work at 6 weeks.
I wish you the best as you make this decision.
_________________
<><
God is in control & He wants us to trust Him. |
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