Is anyone trying Sutent?

kmeshelper · Posted: Sun Apr 29, 2007 9:16 am Post subject: Is anyone trying Sutent?

Kathleen has been invited to join a clinical trial here in Charlotte for a drug called sunitinib malate (Sutent) that has fairly effective in treating MRRC and GIST. The listed side effects sound a bit worse than the Gemzar/Tarceva she has tolerated over the past year. If anyone is on it, knows someone who is, or would like to offer comment, we would be glad to listen.
Thanks for being out there for us!
Sandy (kmeshelper)
_________________
stage 4 unresectible pancreatic diagnosed
2/23/06 at age 44
Gemzar/Tarceva til 4/24/07

rlee · Site Admin Joined: 15 Jan 2006 Posts: 245

kmeshelper,
Sutent has a range of side effects and most of them are mild. I wouldn't necessarily say they are worse. Remember, everyone responds differently to each treatment. So this could be just as well tolerated or she may have more side effects. If Gem and Tarceva aren't working for her, then consider a clinical trial. Most individuals on sutent report a rash, diarrhea, and fatigue with varying degrees. For a clinical trial, they are required to list everything, thus it may seem worse than it actually is for patients. Good luck.
_________________
RLee, MD

Any information provided is NOT intended to provide specific medical advice to users but rather to provide users with information to help them better understand their health condition and related care. All readers are strongly encouraged to consult with a qualified physician for answers to their personal medical questions.

kmeshelper · Posted: Thu May 03, 2007 7:18 pm Post subject: Re: Is anyone trying Sutent?

Dear RLee,

THANK YOU for your input. Kathleen cannot possibly start the protocol before 5/24. Unfortunately, she is suddenly experiencing a range of very sketchy symptoms which may or may not be precursors of a final slide. Hopefully we'll get them under control and be able to contribute to a better outcome for all with PC.
_________________
stage 4 unresectible pancreatic diagnosed
2/23/06 at age 44
Gemzar/Tarceva til 4/24/07

brainman · Posted: Sat May 26, 2007 7:02 pm Post subject: Re: Is anyone trying Sutent?

Hi Sandy,

I just read an update on your sister-in-law on another thread. I just want to express how sorry I am to hear that she has declined so much. I am glad that she became alert enough to express her wishes and to tell you all that she is ready to just sleep. You and your family are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

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