oligodendroglioma II in 3 year old

andriazapp · New User Joined: 30 Jun 2008 Posts: 2

Please does anyone have any experience with an oligodendroglioma II in children? My three year old son was diagnosed in April 2008. It's such a rare tumor especially in children, and I can't really find a lot of information. My son's oncologist said this particular tumor acts differently in children than in adults, so even what I can find might not be valid information. Any help is very much appreciated. I am especially interested in chance of recurrence since they believe they have a good resection.

THANKS!!
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Andria

Mother of 3yo diagnosed with Oligodendroglioma II
-No 1p/19q deletion
Removed April 2008
-Watch and wait (and worry)

Mama 2 2

Hello Andria,

I am so sorry to hear of your son's tumour. My husband has a grade 2 glioma and it's tough for me to deal with that, but I think if it was one of my two girls - I really don't know what I would do.

I would love to be able to offer you some sort of information on how this tumour affects children, but I don't really know much about that. I can say that when my husband had his last neuro-onc visit, before our n-onc came in we were visited by an oncologist who normally works at the nearby children's hospital. We were asking her about the difference in treatment between adults and children, and she said there isn't any difference. We didn't ask about how it acts, however.

As far as treatment goes, if it is anything like in adults as she said, because his doesn't have the 1p/19q deletion, they may do what they did with my husband - which was wait for any recurrance, then treat with radiation (he also had a second surgery before the radiation). Since there has been another recurrance, they have decided to use chemotherapy called temodal, which has been pretty good as far as a low level of side effects.

I hope you can find some more valuable information from others on this site - this is a great source of support as well if needed. I wish you, your son, and your family all the best in managing this.

My heart goes out to you,
~C~
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~Life's too sweet to be bitter~

Our Story: http://www.cancerforums.net/about7982.html
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brainman

Andria, I am so terrible sorry about your son's glioma. I had a grade II glioma in 1992 but I was 38 at the time.

The good thing, if there can be a good thing, is that the brain of a 3 year older has not fully matured yet. Whatever damage the cancer has caused can be overcome by other parts of the brain taking over the functions of the damaged area. Do you know how big the tumor was? How did you find out about it? My oncologist said that I could have been born with my glioma so I am interested in what cased your son's glioma to show itself earlier than mine.

It is so unfair for someone so young to be going through all of this Sad

You and your son and in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

andriazapp · New User Joined: 30 Jun 2008 Posts: 2

Before the surgery, the neurosurgeon said it was the size of a silver dollar, but I haven't confirmed that post-surgery. Josh was having tons of seizures everyday; as many as 40-50. I don't know if we were just lucky to have all of those seizures or if it had something to do with placement of the tumor, but the oncologist said it's very good that we caught it so early and it was able to be resected so well.

Jim, you're right, we are lucky about his age. They are telling me it's a better prognosis for children, not to mention how quickly he's healed from his surgery. I'm so amazed at how good his incision looks.

On the other hand, it's very scary to see the mortality of your child at such a young age. Especially because it's not something they've found in many other children. I just want to understand everything.
_________________
Andria

Mother of 3yo diagnosed with Oligodendroglioma II
-No 1p/19q deletion
Removed April 2008
-Watch and wait (and worry)

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