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Thread: Joint Pain

  1. #1
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    Joint Pain

    Hi,

    Did anybody with NHL have joint pain as a symptoms of the disease? I have joint pain in my knees, elbows, fingers and ankles. It tends to come and go, was this one of the many symptoms that you had?

    Ta,

  2. #2
    Senior User
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    How old are you???
    Don B
    Dec 07 Dx Follicular NHL, Grade I (Indolent)
    Stage IIIA - No Symptoms
    Watch and Wait - 6 Month Checks
    Jan 09 Scan shows Progression - no symptoms
    May 18, 09 - Started R-CVP
    After Third Round, CT scan showed some tumor shrinkage
    July 31,09 - Completed 6 Rounds R-CVP

  3. #3
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    23 male, had a few tests for NHL - have lots of symtptoms but no test has revealed anything significant. Joint pain all over is my latest symptom

  4. #4
    Administrator Top User ChemoMan's Avatar
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    Hi LukeM69

    Joint pain is not a usual symptom of NHL. No one here can help you diagnose yourself, you really need to see a doctor. Do yourself a favour , write down any symptoms and any questions you have and take it to the doctor.


    Good luck
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  5. #5
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    Quote Originally Posted by ChemoMan
    Hi LukeM69

    Joint pain is not a usual symptom of NHL. No one here can help you diagnose yourself, you really need to see a doctor. Do yourself a favour , write down any symptoms and any questions you have and take it to the doctor.


    Good luck
    I have had a few tests, my last one was a bone marrow biopsy and I will get the results back next wednesday. Wish me luck.

  6. #6
    Administrator Top User ChemoMan's Avatar
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    Hi Luke

    I wish you all the luck in the world and many many more trips around the Sun
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  7. #7
    Luke-

    I have the same issue with extremely painful joint pain. My doctor seems to thing that Lymes Disease may have been the culprit. I also have a low-grade folicular lymphoma, non-hodgkins type. I am in stage 3a. I am convinced that untreated Lymes can lead to lymphoma's of these types. I cannot prove it yet, but many doctors recognize a correlation between these two conditions. Which came first the chicken or the egg.

    I have also read a bunch of other posts on this forum where the patients suspect a connection even if the medical community will not.

    I recommend getting a lymes test done.

  8. #8
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    Well its been 2 mths now from the symptoms onset and I am still in limbo with this thing.

    I have had lots of tests including a full body CT Scan, Bone Marrow Biopsy/Aspirate, Ultrasound of painful underarms, 8 blood tests looking for every bloody thing under the sun...NOTHING HAS SHOWN. My bloods are normal, bone marrow was clean with all the measurements within normal ranges etc. (I have no enlarged lymph nodes anywhere they can biopsy, I just have the painful axilla nodes that are not enlarged but are very painful)

    But, I am still having the symptoms. I still get night sweats, my skin is reddended with little pimple things that come and go, my armpits are still painful (but not enlared) and my lower legs itch and burn without a rash.

    I fell like Lymphoma is there somewhere, they just can't find it.

  9. #9
    Administrator Top User ChemoMan's Avatar
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    Hi LukeM69

    It really doesnt look like you have lymphoma as your symptoms are inconsistent with this. I see you live in Brissy, I wonder if you may have picked up Ross river fever as your symptoms are very consistent with this:

    http://www.health.nsw.gov.au/factshe...rossriver.html

    If you have not been checked for Ross River fever I would strongly recommend someone follow this up

    Good luck
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  10. #10
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Location
    South Australia
    Posts
    8,830
    Blog Entries
    2
    Hi Hbee

    We don't get lyme disease in Australia. We got much worse bugs than that
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

 

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