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Thread: Joint Pain

  1. #1
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    Joint Pain

    Hi,

    Did anybody with NHL have joint pain as a symptoms of the disease? I have joint pain in my knees, elbows, fingers and ankles. It tends to come and go, was this one of the many symptoms that you had?

    Ta,

  2. #2
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    How old are you???
    Don B
    Dec 07 Dx Follicular NHL, Grade I (Indolent)
    Stage IIIA - No Symptoms
    Watch and Wait - 6 Month Checks
    Jan 09 Scan shows Progression - no symptoms
    May 18, 09 - Started R-CVP
    After Third Round, CT scan showed some tumor shrinkage
    July 31,09 - Completed 6 Rounds R-CVP

  3. #3
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    23 male, had a few tests for NHL - have lots of symtptoms but no test has revealed anything significant. Joint pain all over is my latest symptom

  4. #4
    Administrator Top User ChemoMan's Avatar
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    Hi LukeM69

    Joint pain is not a usual symptom of NHL. No one here can help you diagnose yourself, you really need to see a doctor. Do yourself a favour , write down any symptoms and any questions you have and take it to the doctor.


    Good luck
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  5. #5
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    Quote Originally Posted by ChemoMan
    Hi LukeM69

    Joint pain is not a usual symptom of NHL. No one here can help you diagnose yourself, you really need to see a doctor. Do yourself a favour , write down any symptoms and any questions you have and take it to the doctor.


    Good luck
    I have had a few tests, my last one was a bone marrow biopsy and I will get the results back next wednesday. Wish me luck.

  6. #6
    Administrator Top User ChemoMan's Avatar
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    Hi Luke

    I wish you all the luck in the world and many many more trips around the Sun
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  7. #7
    Luke-

    I have the same issue with extremely painful joint pain. My doctor seems to thing that Lymes Disease may have been the culprit. I also have a low-grade folicular lymphoma, non-hodgkins type. I am in stage 3a. I am convinced that untreated Lymes can lead to lymphoma's of these types. I cannot prove it yet, but many doctors recognize a correlation between these two conditions. Which came first the chicken or the egg.

    I have also read a bunch of other posts on this forum where the patients suspect a connection even if the medical community will not.

    I recommend getting a lymes test done.

  8. #8
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    Well its been 2 mths now from the symptoms onset and I am still in limbo with this thing.

    I have had lots of tests including a full body CT Scan, Bone Marrow Biopsy/Aspirate, Ultrasound of painful underarms, 8 blood tests looking for every bloody thing under the sun...NOTHING HAS SHOWN. My bloods are normal, bone marrow was clean with all the measurements within normal ranges etc. (I have no enlarged lymph nodes anywhere they can biopsy, I just have the painful axilla nodes that are not enlarged but are very painful)

    But, I am still having the symptoms. I still get night sweats, my skin is reddended with little pimple things that come and go, my armpits are still painful (but not enlared) and my lower legs itch and burn without a rash.

    I fell like Lymphoma is there somewhere, they just can't find it.

  9. #9
    Administrator Top User ChemoMan's Avatar
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    Hi LukeM69

    It really doesnt look like you have lymphoma as your symptoms are inconsistent with this. I see you live in Brissy, I wonder if you may have picked up Ross river fever as your symptoms are very consistent with this:

    http://www.health.nsw.gov.au/factshe...rossriver.html

    If you have not been checked for Ross River fever I would strongly recommend someone follow this up

    Good luck
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  10. #10
    Administrator Top User ChemoMan's Avatar
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    Hi Hbee

    We don't get lyme disease in Australia. We got much worse bugs than that
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  11. #11
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    Quote Originally Posted by ChemoMan
    Hi LukeM69

    It really doesnt look like you have lymphoma as your symptoms are inconsistent with this. I see you live in Brissy, I wonder if you may have picked up Ross river fever as your symptoms are very consistent with this:

    http://www.health.nsw.gov.au/factshe...rossriver.html

    If you have not been checked for Ross River fever I would strongly recommend someone follow this up

    Good luck
    Interesting, this is a possiblity but there are a number of symptoms that remain unexplained. My C-reactive Protein which generally rises in the face of infections was completly normal, I would think if I have a virus like this I would have an increase there. But this possibly explains the joint pain component of my problem, it is possible I had this for a few weeks but still have something underlying. I have seen 2 Hematologists in Brisbane, 1 has shrugged my off the other one is taking me more seriously.

    My very initial symptoms were pain in both armpits, followed by night sweats, followed by burning itchy legs. Many other symtpoms have come and gone in the interum. Joint pain is a symtpom that has gone, but the others remain.

  12. #12
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    Quote Originally Posted by LukeM69 View Post
    Hi,

    Did anybody with NHL have joint pain as a symptoms of the disease? I have joint pain in my knees, elbows, fingers and ankles. It tends to come and go, was this one of the many symptoms that you had?

    Ta,
    Hi LukeM69,
    I know I'm a couple of years late in replying to your post but I can confirm that as a NHL patient, I have and continue to suffer from intermittent knee and ankle joint pain. I also get itchy shins. I have discussed this with my specialist at every visit and he claims that he's never heard of this before! It's reassuring to know that others suffer the same symptoms. I've been through the Chemo and am now 2 years into remission with clear blood tests but the joint pain persists. I would be curious to hear of others who share the same experience. We could then pass this onto to our respective specialists. In my case, they think I'm unique. Surely not!!

  13. #13
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    Lots of bone pain, no joint pain
    Chicago 54 years old
    LPL/Waldenstroms indolent nhl, dix Friday the 13th 5/13/11
    R-CVP, 5/23/11 6 cycles, 12/20/11 PR, w&w for now

  14. #14
    I noticed joint pain approximately 2 years before my diagnosis. I had just lost my husband and thought it was simply my body responding to his absence in the house. However, since I finished 4 treatments of Rituxan in September I have noticed increased joint pain and it appears to worsen with cold. It does come and go often being worse at night.

  15. #15
    Hi,
    I am currently in remission for Indolent Stage 4 Follicular Lymphoma with Bone Marrow involvement. I have experienced random joint pain (especially in my knees) for at least two years before diagnosis and it has continued through even into remission. It seems to be aggravated by cold and happens more often at night. After completing 2 Rituxan treatments I added a facial rash to my list of hmmmm's. The face thing has improved the further out I am from my last treatment date. In the meantime I am washing my face with antibacterial soap and coating it in hydrocortisone....guess you just do what works in some cases. I noticed after completing treatment that my right shoulder developed pain right on the edge. Made laying on my side uncomfortable. From there it would radiate down into my elbow and wrist. When that stopped I noticed the pain radiated more along my collarbone (never broken) and followed a downward path to my underarm....bloodwork hasn't changed much since my second or so treatment and CT shows remission was achieved, but still have to wonder if the joint pain is related seeing as how it was both before and after diagnosis. Wish everyone the best of luck and I'm sure you are unique but only in the most positive ways!!
    :0)

  16. #16
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    This comment is years late, but insist on a biopsy where you are having pain (knee). My mother has Non Hodgkin Lymphoma, diagnosed 3 years back, and has since had chemo treatments and is considered to be in remission (according to her blood work). For many months though she has been complaining of extreme knee pain, but doctors brushed it off to arthritis. However, she ended up not being able to walk on that leg at all and resorted to a walker. Doctors finally did a biopsy on the knee area and discovered lymphoma is around the knee and causing the knee to be very weak and brittle. She is now having radiation on the area. This is very, very rare, and the reason why many doctors didn't even consider lymphoma in the knee area.

 
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