A website for discussions about any type of cancer, including lung cancer, breast cancer, prostate cancer, laryngeal cancer, leukemia, lymphoma, multiple myeloma and others
+ Reply to Thread
Results 1 to 4 of 4

Thread: Sickle Cell Anemia & Multiple Myeloma

  1. #1

    Sickle Cell Anemia & Multiple Myeloma

    I have been living with Sickle Cell Anemia since it was discovered when I was 3 years old. Recently, I have been diagnosed with multiple myeloma and solitary plasmacytoma. I thought that having sickle cell anemia was bad enough. I have been living with pain all my life and have mastered it quite well through many operations like removing a ruptured gall bladder (a colestectomy), clippping 2 aneurysms( undergoing a caniotomy due to subrachnoid hemorrhage) and having 4 children by c-section. My crises pains over the years always trumped the pain I experienced on each of these occasions, partly due to my sense of pain management and not being a big fan of medicine, especially painkillers. Now, I find that I am dealing with a different kind of pain. I am also faced with the challenges of side effects from treatments and medications, other related maladies like uric acid elevation, a larger decrease in Hemaglobin and possible osteoporosis, to name a few. However, hard as it might be, I try not to feel sorry for myself or angry at my situation, and try to process one thing at a time, one step at a time, one day at a time.

    Living here in Japan as a Sickle Cell Anemia individual, I have had to always be on the alert everytime I went into crisis and had to go to the hospital. Although the Hematologists are all qualified, I found that sickle cell anemia was a challenge to the majority of them. I found myself many times having a big say in my emergency care treatments. Now, with multiple myeloma and solitary plasmacytoma, I find myself in research mode before and after every visit to my hematologist, in order to understand treatments, medications etc. I just finished a cycle of radiation therapy for the treatment of the tumour on my leg, due to the plasma cytoma. I am now trying to find any cases of sickle cell patients with multiple myeloma.

    Meanwhile, as a former performing artist, dancer, and now mother and housewife, I am still continuing my activities as Interior Organiser, working and training young staff in conference secretariat coodination, and still travelling. Although I pay strict attention to precautions I should take with foods, medications, and activities relating to my present circumstance, I am not keen on slowing down unless I am forced to. My activities in my community, with my children and their schools, help me to have a keen awareness and better understanding. That sinking feeling at the end of each day is quickly overshadowed.

    Thank you for taking the time to read my thoughts.

  2. #2
    Administrator Top User brainman's Avatar
    Join Date
    Oct 2005
    Location
    Tennessee
    Posts
    7,966
    Blog Entries
    5
    Oh Eydie my heart goes out to you. I am so sorry that on top of Sickly Cell Anemia you are now having to deal with MM. I cannot imagine how hard this must be for you and your family.

    I do not know how MM is affected by Sickly Cell. Blood cells are made in the bone marrow. I would want to talk with a hematologist/oncologist who knows what he/she is talking about. It does not sound like the ones you have know much about these two conditions. You might be able to find online help from major cancer centers in the USA.... MD Anderson for example. Even if it is a phone consultation, they might be willing to point you to helpful sources of information.

    I will look in the Medical Library at my hospital to see if I can find something.

    You are in my thoughts and prayers.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  3. #3
    Newbie New User
    Join Date
    Apr 2011
    Posts
    1
    A – Answer not required

  4. #4
    Administrator Top User brainman's Avatar
    Join Date
    Oct 2005
    Location
    Tennessee
    Posts
    7,966
    Blog Entries
    5
    buddy, what do you mean?

    Also notice that this topic is more than a year old and that Edie has not responded. That is not to say that he will not but I would not hold my breath.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

 
+ Reply to Thread

Similar Threads

  1. Multiple myeloma, smoldering
    By Blu in forum Multiple Myeloma Forum
    Replies: 7
    Last Post: 12-28-2012, 01:34 AM
  2. multiple myeloma ugh..
    By jillyrenee in forum Multiple Myeloma Forum
    Replies: 4
    Last Post: 10-13-2012, 02:12 PM
  3. Multiple myeloma vertebroplasty - Does it help?
    By Althea in forum Multiple Myeloma Forum
    Replies: 1
    Last Post: 03-27-2011, 10:19 PM
  4. Brachytherapy and Multiple myeloma
    By frankfinneran in forum Prostate Cancer Forum
    Replies: 1
    Last Post: 09-18-2009, 04:54 PM
  5. multiple myeloma
    By annie25 in forum Coping and Support
    Replies: 1
    Last Post: 11-20-2005, 03:29 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts