Serious Side Effects of Davinci Robotic Surgery
The following are my side effects of the Davinci surgery:
1. Episodes of fast heartbeat which required two trips to the emergency room. Heart beating as fast as 180 BPM. These episodes finaly stopped 3 months after surgery. They were indeed scary. They lasted up to 1 and 1/2 hours.
2. Penis end pain which took roughly 3 months to subside.
3. Very serious groin pain which may require more surgery. I will be seeing a pain physician specialist this week. My guess is that I have a damaged or compressed nerve in the groin due to either scarring or stiching in the operation. It's just a guess, keeping in mind that my lymph glands were removed during surgery. This groin pain is so serious that it incapacitates me. I can only walk short distances without pain, and I can not exercise at all.
Other than that, my PSA is now zero and I have excellent continance, and excellent sexual function. I am greatful to be alive.
Went to pain clinic at McNeal Hospital in Chicago. Their initial diagnosis is groin nerve problems due to scarring from the surgery. They DO NOT recommend further surgery, but are treating me with a drug called Lyrica which tones down the nerve response, and also another drug for reducing inflamation of the tissues. I'll provide an update later. It makes sense that scarring is the issue because I was recovering normally experienceing no pain, then all of a sudden the severe pain came on, and stayed. So far I am real happy with my pain specialist because he is ver y responsive and easy to contact, which is not the case for the University of Chicago clinics.
June 30 - Good News. My groin pain has subsided dramatically. The drugs are working their magic. I can now walk, clean my house, and go food shopping without sufferring dibilitating pain. Thanks to McNeal Hospital Pain clinic and my pain doctor. In late July, I should be off all drugs pertaining to the operation (on February 17).
Re: Serious Side Effects of Davinci Robotic Surgery
After reading hundreds of these kind of posts, why in the world does 80% of the folks do the surgery when there are other options? Some of these butchers (docs) cannot even carve the Thanksgiving turkey far from a human beings. but they are just as good of salesman for thir products than a car salesman lol!
Originally Posted by dannydee
To be fair any protocol has horror stories somewhere
One guy had DaVinci done and doc did not even remove all of his gland and then tried to cover it up and recommended patient for seeing a good ol boy network radiation doc friend of his, as the patients remedy for a rising psa. Only the patient found out the whole story and was in process of suing this doc, whom probably was new at the DaVinci gig. This must be reassuring to new patients!
Another one is a newbie brachy doc whom placed brachy radiation seed into a patients seminal vessical and missing the prostate, it was later fixed. These are your experts???
There are others scenarios out there and of course looking at videos of the surgery you would come to the conclusion how do you know where the good tissue vs. bad tissue starts and stops...see videos...this is not like a car engine with obvious connectable parts that even a layperson can identify.
PCa is many times not staged or even diagnosed completely or correctly and doctors make your huge decisions based upon alot of less than science and more on 'feelings'. We feel it is contained...that is mentioned way to often and is close to meaningless rehtoric but sold to many a patient. Patients are generally way to trusting of their docs and believe they are total experts, well in PCa almost nobody is a total expert. No rules, plenty of inconsistencies, plenty of variant types and DNA ploidities on PCa cells and many variables. Homogenous treatments are not your best friend, case by case analysis is much more important for real considerations. If you have a really honest doc, he would probably inform you of it being somewhat of a crapshoot, hipshot, and gamble. Maybe a fair or decent gamble depending upon ones stats, but it should be mentioned as your gamble. Beware of guarantee scenarios, great for making sales, bad for patients whom found failure thereafter and looking at salvage treatments in hind site. Don't believe me analyze patient scenarios on forums like this over a few years time span...you will see it all.
When considering robo-surgery, you want a surgeon who has done 300 or more, is comfortable doing them, and can show you a long list of successful outcomes.
In the big treatment centers, Robo has all but replaced open surgery because, overall, it works better.. If you don't get the answers you want, you can still find surgeons, usually the older guys, who will be happy to do open surgery...
My surgeon is one of the foremost in the USA. He is rapidly closing in on 2000 davinci operations. However, regardless of the talent and skill of the surgeon, each person's body can react quite differently than the majority of patients. It is unexplained why my heart beat went out of control. Has nothing to do with the surgeon. The same for the pain in my groin. I have had two operations affecting my pelvis: hernias and the Davinci. Maybe a nerve was affected by the combination of both opperations, an anomolous effect, not predictable. It is interesting that I saw at least 15 people from the same surgeon who underwent Davinci. All walked normally except me. I was a bit envious.
Originally Posted by Fairwind
I wonder how much a surgeon gets paid, on average, to do an RP in the U.S.?
Somehow, I get the feeling cancer is a MAJOR industry and spoils get divvied up according to carefully developed protocols..
If cancer were cured tomorrow, it would create a depression in the medical community...Oncology is where the big money is...
They must get paid a lot the way they try scaring a person into surgery rite away when there are just as good alterantives.
Originally Posted by Fairwind
Today, 80% of the RP operations performed in the United States are being performed roboticly..
I am 58; was diagnosed in Oct of 09 with PC; Gleason 3+3; 2 out of 12 cores found; Cancer 5% and 8% in those cores; PSA< 2.6; PC suspected due to hardness of right side of prostate during yearly exam.
Surgeon recommended I get it out; lied and told me seeds were not being done much anymore. i researched it and located an oncologist that had done 1000+ seed implants; decided this was the best option. (My brother had his out 6 yrs ago and I believe is impotent.)
I had my 3+ month checkup today (havent got PSA back yet), but my oncologist says I am doing very well (2-3 times a nite having to pee), and prostate is now flat.
To all: please look at other options other than surgery!
Your low PSA and Gleason made you a perfect candidate for radiation / implants..Buy using the Partin & Han tables, you can pretty much figure out what type of treatment is appropriate for you..
Everyone who is diagnosed should talk to a surgeon who SPECIALIZES in RP, especially if it will be done roboticly. But either way, open or robotic, it's the experience and track record of the surgeon that counts..
After you chat with the surgeon, talk to an experienced Radiation Oncologist who has access to the latest equipment. He is now ALMOST on equal footing with the surgeon when it comes to long-term outcomes..In many cases, radiation is the better choice..
If the outcomes appear to be the same, then you can base your choice on probable side-effects and recovery time. Many men will be diagnosed without having health insurance...Now there is a THIRD factor to be considered. Cost. And a form of treatment not approved in the U.S. but used widely elsewhere called HiFu..Backstage, there is a raging argument going on..