I don't know that you will get any reply as the thread is from 2010.
Aussie, age 56, Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011.
Scan Feb 2012 .still in remission.
May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.
Still NED Nov 2012. On to yearly bloods now.
Well I guess I should stop by here more often than every 6months. I'm happy I participated in this particular trial. To be honest the treatment wasn't all that different from standard ABVD. The purpose was to determine if a PET scan after 2 cycles can predict "sort of" the outcome of the treatment. In the US, mostly ABVD is used for HL. According to study if after two cycles you are PET positive, you switch to BEACOPP for the remainder of treatment. My PET was negative after two cycles so I continued ABVD for 4 more cycles.
The odd thing was that after 6cycles my PET showed a few new areas of concern, 3 months later all clear again.
The main benefits of the trial were that I had more extensive testing on Lungs, heart etc. before treatment started. When I had some pulmonary embolisms and pneumonia during the 5th month of treatment, they had a good benchmark to determine the extent of the damage. I also felt better knowing that the data collected may help others make decisions in the future if you have a choice between ABVD or BEACOPP.
18 months after finishing chemo, still clear and no regrets about choices. Sorry reply took so long, I'll try to stick around for awhile this time if anyone has questions about the trial or cancer care in upstate NewYork.
Age 50 Rochester, NY
2001 Diagnosed Stage 1 testicular Cancer
Orchiectomy, Abdominal lymph system radiation 20 treatments
August 2010 Diagnosed Stage 3b Hodgkins Lymphoma Mixed Cellularity
6 Cycles ABVD Follow up PET June 2011
2 nodes just above heart , suv 5.5 - 6
Some FDG uptake in left lung surrounding embolism scar tissue