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Thread: Can a CT Scan give wrong readings?

  1. #1
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    Can a CT Scan give wrong readings?

    My CT scan shows both lung with tiny to large spots of cancer. I feel just fine , no pain, not short of breath, no weight lose. Just hoping its wrong. Has any body gone through this?

  2. #2
    Administrator Top User pbj11's Avatar
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    Hi Les,

    The only way to know what it is for certain is a biopsy. My husband was loaded with spots all over both lungs, mediastinum, and one supra-clavicular node. Even after they lit up like Christmas tree lights in a PET scan, we refused to believe they were cancerous. We hoped for sarcoid. Once he had a wedge section biopsy, there was no denying it was cancer.

    Keep on the doctors to get a fine needle biopsy, so you know for sure. It's shocking, I know. We felt that he didn't have lung cancer until the doctors told us it was lung cancer.

    He was also fine up until the largest mass grew enough to block one of the main bronchial tubes. He had lost 18 lbs though. He even passed a treadmill test about 1 1/2 months prior to suddenly becoming short of breath.

    I'm sorry that you are going through this testing phase. Let's pray it is something else. It is maddening to not have the answers.

    God bless,
    PBJ
    Husband diagnosed with NSCLC Stage IV in 3/2005. Fought & lived over 2 1/2 years with multiple lines of treatment.

    Post describing our journey: http://cancerforums.net/viewtopic.ph...er=asc&start=0

    Left my embrace to live with our Heavenly Father in October of 2007 and now breathes with ease forever. I will miss this gentle, giving soul with the easy smile for the rest of my days, but have faith we will be together again. He's just getting a little break from me!

  3. #3
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    Hi Les; CT scans can show a lot of things but a doctor looks to read a CT the way he thinks is likely for you. Pbj shares her situation right and for me it was the opposite, it was was my profession along with the fact I never smoked that lead my first several doctors to believe that I had Sarcoidosis and told me I didn't have cancer. My cancer was spread all over but did not have large enough tumors to hit with a needle biopsy. 3 years later it took a bronchoscopy to prove that I did not have Sarcoidosis, but I did have lung cancer. At the same time I had blood clots in my lungs but they were not looking for them and they didn't see them, Later they did a scan to find them and they did. Then they were treated. Bottom line, doctors can only guess with there education, a biopsy proves it if they can get a piece of what they are looking for. PS, doctors are right only most times not always.
    Best of luck finding out
    Dan
    57 year old male, Diagnosed Nov. 9,2007 with NSCLC IV with Mets to the lymph's and brain and now my pancreas (9/1/11)
    Had full brain radiation treatment in Jan 08 treatments now every 3 weeks with Alimta, stopped taking Lovenox for clots, working full time
    http://cancerforums.net/viewtopic.php?t=9993

  4. #4
    Administrator Top User pbj11's Avatar
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    Agree Dano -- one can only hope to hit a spot with a fine needle biopsy or a broncoscopy. The latter didn't work to produce any cancer tissue, but did show calcified matter, which we already knew was there from years prior in x-rays. Never knew why they did a wedge section biopsy instead of a fine needle, because he did have one main mass.

    I believe CT's will differentiate between calcified (good) and non-calcified spots.

    I still can't believe they left you in the lurch without a diagnosis for so long Dano. You are one of such great faith and stand as a role model for all of us.

    PBJ
    Last edited by pbj11; 02-02-2011 at 07:57 PM.
    Husband diagnosed with NSCLC Stage IV in 3/2005. Fought & lived over 2 1/2 years with multiple lines of treatment.

    Post describing our journey: http://cancerforums.net/viewtopic.ph...er=asc&start=0

    Left my embrace to live with our Heavenly Father in October of 2007 and now breathes with ease forever. I will miss this gentle, giving soul with the easy smile for the rest of my days, but have faith we will be together again. He's just getting a little break from me!

  5. #5
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    Hello everyone,
    I had bronchoscopy & mediashnscopy biopsy done Feb 9 th still don't have results. The waiting is very frustrating. My gp says not to phone them for at least 10 days. Will post results.
    Les

  6. #6
    Top User maryaz's Avatar
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    Les, Sometimes the waiting game is almost worse than the treatments. I hope it all comes out in your favor. Did the GP do these tests. If not I wondered why he said to wait 10 days. I don't think it took that long for my husbands.
    Husband (year of birth 1941) dx'd 2008 NSCLC - Squamous Cell Carcinoma
    Chemo and Radiation Treatments together. Allergic reaction to Taxol & Taxotere.
    The Story 2008 to 1/2011: http://www.cancerforums.net/about9079.html

    2010/2011: Returned & spread to lower lumbar bone/marrow. Stage 4.
    Chemo & Radiation together. Allergic reaction to Erbitux. Chemo was only Navelbine.
    The Story continues 2/2011: Story continues 2/2011: http://tinyurl.com/68qpmym

  7. #7
    I will contribute to the subject with a situation I experienced 8 years ago.

    I am a mechanical engineer now, but when I finished school I was determined to be an air force pilot. So I went to HAFA (Hellenic Air Force Academy). Really tough training, lots of studying and very strict health regulation. Every year we had our annual full body scans and detailed checkups. I met a guy who had been diagnosed with brain cancer at age 20, and he was discharged from the academy on the grounds that he had cancer. He travelled to a health center in Paris to deal with his sickness, but as they found out there, he was healthy. He was misdiagnosed with cancer because he had igmoritis( I don't know if it's the right word in english), fluid gathered in head cavities, and the doctors misinterpreted the MRI results as tumors. It took him 3 years, a tremendous amount of money and effort and lots of courts to get accepted back in the academy. Finally he was discharged again for another lame excuse...Note that Hellenic Air Force hospitals are concidered the best hospitals in Greece and they are not open to public. They are only for HAF staff, and yet they did such a lousy mistake.
    So keep in mind that doctors make mistakes too.

    And yes, waiting is always worse than the treatment. When we found out my mother had cancer back in May 2010 we waited 2 months to get scheduled for surgery. When we were finally accepted into the hospital it took them 2 weeks to operate my mother. Everyday they came and told us "you are scheduled for tomorrow, first surgery of the day", and at noon they would cancel it .Can you even imagine the emotional stress??? Finally the surgeon who had our case went on a summer vacation(!!!!!!!!) and left us there without surgery. Finally an other surgeon from the hospital accepted our case and operated my mother the next day.

    Hope the best for you mate.

  8. #8
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    Hi Les,
    As a new member of this forum, I'm hoping the best for you. Let us know when you get the results, seems you should have them by now.

  9. #9
    Regular User 1Barbara's Avatar
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    Hi Les;

    I am so glad you brought this topic up! I am in exactly the same situation. The Dr's told me I had about 6months to 18 months to live last spring. Personally I am afraid to get a fine needle biop, as I was under the impression the lung could collapse, which causes a lot of anxiety for me. The Dr. also said chances of hitting a nodule, because they are to small, would be difficult.

    It has been in the last several months, I have periods to time that I find it difficult to breathe, but then
    they go away, go figure.

    Please keep in touch.

  10. #10
    Regular User 1Barbara's Avatar
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    Hi Les;

    I thought I would just drop in and see how you are feeling and doing today.

    Barb

 
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