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Thread: Rough Colposcopy and Cervical biopsy experience

  1. #1
    Newbie New User
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    Unhappy Rough Colposcopy and Cervical biopsy experience

    Hello. I'm new to this site. I'm 30 years old and have been very healthy up until recently. I've had regular annual pap smears since I was 17 and they always came back normal until 6 months ago. Well, 6 months ago it came back normal/high risk hpv positive. So my doctor just told me to come back 6 months later to retest as it could go dormant. Well, when I went in for my 6 month follow up it came back abnormal ASCUS HPV...so she said again, to come back in 6 months. This didn't seem right to me as it changed in just 6 months...what would happen in another 6? And being that I'm a giant hypochondriac, I couldn't wait 6 months so I set up my own appointment for colposcopy with an OBGYN (my family doc isn't even an MD...she's a FNP).

    My appointment was this past Thursday (it's Saturday now). The doctor reviewed my medical records and decided she'd do a colposcopy and cervical biopsy to be safe. She gave me Demerol and Valium before the procedure to ease my nerves and to help with pain....and let me tell you - it did NOTHING. Not to scare anyone out there who hasn't had this done yet (most say it's easy as pie) but this was hands down the most painful, traumatic experience of my life to date. And I usually can handle pain. The colposcopy was no biggie...just uncomfy and the vinegar burned a bit, but the biopsy was excruciating...she took 4 biopsies total and by the second one I was crying and pleading with her to stop but she wouldn't. My legs were shaking and I threw up afterwards. The nurse told me that happens often...?!?!?!? Is this just a bad doc or is that normal? I mean after what I experienced I think I should've been put under GA. I had to get help walking to the car (my mom drove me) and I cried all the way home...even on strong pain meds. Ugh. I will NEVER do that again...I simply won't.

    And now the aftermath....The bleeding stopped by day 2 but I still have to wear pads to collect this yucky clumpy discharge with huge brown pieces of what looks like flesh coming out of me. I'm using vandazole gel suppositories twice a day too to prevent infection after the biopsy, but it's clear so I am really put off by what these huge chunks are..anyone else experience this?? On top of that, I'm still so traumatized from that experience I can't even get up from the couch 3 days later. I shudder when I remember. And I still have getting the results to look forward to...I go back in 2 weeks for that. I just joined this site to see if there are any other experiences like mine because I thought maybe talking about it with people who understand would pull me out of this depression and funk I'm in.

  2. #2
    Hi,
    I have had several colposcopies, I was never given any pain medication for them. They were uncomfortable, and a bit painful, but not to the extent that you described. The discharge is normal for a colposcopy, kinda coffee grounds like, that lasted for several days for me. I'm not sure why you had such terrible pain, hopefully it has gotten better? My legs always shake during those procedures, more from nerves than pain though...they always ask me if I'm cold... Do you think that you were nervous, and that intesified the pain and trauma of the experience for you? I would hate for you to neglect your health because of the awful experience that you had. Waiting for test results is always the most difficult part for me. Let us know how everything turns out.

  3. #3
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    Unhappy Scared Sh!&less!

    My colposcopy and biopsy results came back moderate dysplasia. I've been sent to another doctor who will perform a cone biopsy procedure in a week. I'm terrified. I have an anxiety disorder and a major surgery phobia to top it off. Everything about it from being put under general anesthesia to what they're actually doing to me down there terrifies me. It's like a major ordeal to take a more invasive biopsy...and what if the results are worse than expected or they don't get it all...then what's next? Hysterectomy? I'm 30 have no children and am hoping to be a mother someday. I hope this is all an easy fix and will be water under the bridge. I let the "what-if's" take over when I really need to learn how to live in the moment....it's just so hard!!

    BTW - Has anyone else had the cone biopsy and could you share your experiences??

  4. #4
    Super Moderator Top User sheila's Avatar
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    msjamielee-fikrst off Im sorry I cant share any biopsy experience but feel the urge to say.....Ok not the news you wanted to hear, but they did use the word "moderate" so it could have been alot worse right?
    I can truly understand where your comming from-I myself have major depressive and anxiety disorder with panic attacks! and lets not forget white coat syndrome. Took me 30 years to get to a dentist had to knock me out and now here it is another 15 years later and I need alot of work done and can-not talk myself into it-took me that long to see a doctor as well but because Im on meds I see him 2 x a year now-because I trust him-Thats a key factor in people with disorders such as ours we really need to feel safe. I would either insist they knocked me out good gave me some happy pills and if they couldnt accomodate that I would find someone who would. just keep saying to yourself the sooner I find out the sooner I can get started to get this out of my way so I can go on with the rest of my life(Im working on myself with that line) Those what ifs are always in my brain too-hard to shake them out. I hope someone can respond that will ease your fears a bit..hang in there keep us posted.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  5. #5
    Newbie New User
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    Feb 2011
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    1
    I just had a Colposcopy and Cervical Biopsy about 2 days ago. Yesterday was fine but today Iím having more cramping pain and yeah the stuff coming out is disgusting! I called my DR.'s office and spoke to the nurse. She told me that the pain was normal and the nasty stuff had to do with the stuff that they put on the biopsy site is what's coming out. I know it's after the fact but wanted you to know that youíre not alone. I have had 2 children via c-section. To me the pain from the biopsy was not as painful as that BUT it definitely was more that what was expected or relayed to me. I'm obviously waiting on the test results but would for sure do it again if i had to in the future. Trust me the "minimal" pain that is experienced is much less than what you could potentially be experienced if u do nothing and develop into something worse. I'm sending good vibes your way and hope everything turns out good!

  6. #6
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    Feb 2011
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    1
    Hi there, I had a coloscopy and cervical biopsy two weeks ago...it is definatley not pleasant!! I bled for a week and had a lot of cramping! I think the brown flesh you are losing are clots...as the wound starts to heal they clot hence the brown clots..I lost clots as well...but if you are suffering a lot of pain and its a bit stinky down there make sure you ring your doc! My results came back as CIN 3..scary stuff and I had day surgery (LLETZ procedure) yesterday under general anasthetic to remove the abnormal cells. It seems really scary but it is way less painful than the biopsy! Even though the thought of having other biopsies is horrifying I will do it again to keep an eye on my cervix as I do not want Invasive cervical cancer! I know it is hard..I suffer from anxiety and depression and the thought of it all makes me shudder but we have to do it to keep ouselves well! Try really hard to focus on getting better..hope you feel better real soon! Ask me anything anytime..look after yourself!

  7. #7
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    Mar 2011
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    I have totally been there. Last Feburary I started with an abnormal pap and strain 16 HPV. I had a colopolscopy and 5 biopsy's then 6mos and repeat so on. Last Friday I had only 3 biopsy's as my cells were getting better. My doc stated that a lot of women are over treated for this and there was no reason to proceed with a cone biopsy. They are very painful (cervical biopsies) and I am not administered any pain medication. But they are worth knowing that things are being taken care of. Hang in there.

  8. #8
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    Mar 2011
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    Hi my name is misty Ijust went through the same this past monday but they didn't give me anything for the pain I think your doc was alot nicer to you.It is now wendsday of the nent week and i jut now stop thowing up and bleeding. I tell you I have had 5 kids and it didn't hurt no where near that bad I couldn't even walk out of the clinic by myself and the clinic is a well known one for the area I live

  9. #9
    Administrator Top User pbj11's Avatar
    Join Date
    May 2007
    Posts
    6,596
    Hi all,

    I'm sorry to see so many logging in here with these cervical issues. All of this is becoming increasingly common as about 70% of women have HPV.

    I have a question. Is the biopsy part of the colcoscopy procedure? I know cone biopsies are different, or I think they are.

    I'm guessing, regarding colcoscopies, that all women are different in how they react. We walked to lunch immediately after my daughter's colcoscopy and she had minimal bleeding and pain that was controlled by OTC medicine.

    OR --- is it a case of a difference in how the doctors actually do the procedure or is it the amount of affected cervical tissue involved?

    Any thoughts or info?

    Thanks,
    PBJ
    Husband diagnosed with NSCLC Stage IV in 3/2005. Fought & lived over 2 1/2 years with multiple lines of treatment.

    Post describing our journey: http://cancerforums.net/viewtopic.ph...er=asc&start=0

    Left my embrace to live with our Heavenly Father in October of 2007 and now breathes with ease forever. I will miss this gentle, giving soul with the easy smile for the rest of my days, but have faith we will be together again. He's just getting a little break from me!

  10. #10
    Super Moderator Top User sheila's Avatar
    Join Date
    Jul 2008
    Location
    bethel park pa
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    pbj-I think the pain that is is referred to here on the original post the colonoscopy biopsy .....but the rest I think are the cervical cone biopsies kidof intermingled.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

 

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