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Thread: My cancer

  1. #1181
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    jody, hoping you are free of pain and at peace; with love leah
    mom, 76, diagnosed 1/12 with stage 3a nsclc;
    during surgery, two nodes that showed positive on PET proved to be negative;
    restaged to 1b (yea!)
    3 rounds chemo, cisplatin (can't recall other)
    having balance/cognitive issues; brain scan clean; meeting with neuro for possible parkinson's disease

  2. #1182
    Senior User David52's Avatar
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    Hey Jody.....just popping in to wishing you a peaceful and pain free Sunday....know I and everyone else around here are praying for you and sending you tons of love and hugs.....

    David
    Last edited by David52; 07-02-2013 at 12:19 AM.
    62 yrs old
    March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1
    3 rounds of CHOP unsuccessful.
    Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Pet scans after 4th and 6th cycles showed no evidence of lymphoma.
    Autologous bone marrow transplant in November of 2012.
    17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
    100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
    One year post transplant check-up: Still fine; NED.
    18month post-translant scans, etc. No evidence of lymphoma, but funky spot between cervical vertebrae c-2 and c-3, which, after 2 MRI's, seem to be degenerative disc disease, not cancer.

  3. #1183
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    Quote Originally Posted by David52 View Post
    Hey Jody.....just popping in to wishing you a peaceful and pan free Sunday....know I and everyone else around here are praying for you and sending you tons of love and hugs.....

    David

    I second that, Jody.

    Hugs,

    Nyla
    Caregiver to 71 YO Husband Ex Stage SCLC:
    Chest x-ray Feb 2012 negative
    Chest X-ray Sept 27, 2012 large mass right lung. CT scan confirms lung mass with liver involvement.
    Oct 4 Liver biopsy confirms Ex Stage SCLC
    Pet Scan-large (6 X 8 cm) mass right lung with smaller masses both lungs, lymph node involvement, innumerable masses in liver, bony mets to L-4 & T-8
    Oct 17 Begin Chemo (Cisplatin-Etoposide)

  4. #1184
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    Jody like many others I search for you everyday because you are such an inspiration for me. You have been absent for awhile now and you are scaring me please if you are unable to pop in could you get someone else to so we all know how you are doing. I hope I'm not being out of place here but I am sure I am not on my own with this request. We love you Jody you have become part of our lives.

    Bless you, Raewyn

  5. #1185
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    Hi Jody,

    Sending prayers of comfort and peace to you and your family. Your forum family are holding you in their hearts. The courage, wisdom and love you've shared here will live on for a long time. Know that many are thinking of you and your family. God Bless.

    Irish
    Irish,
    Caregiver to my Dad, who was diagnosed in June 2010 with Stage 1V NSCLC with single met to brain,
    He sadly lost his battle in August 2010 and we miss his smiling Irish blue eyes terribly.
    My Dad's story:
    http://www.cancerforums.net/threads/...th-how-he-died.

  6. #1186
    Administrator Top User Didee's Avatar
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    Sending more love and hugs.

    http://www.youtube.com/watch?v=l2nMFrkL4l8
    Last edited by Didee; 07-01-2013 at 04:06 PM.
    Aussie, age 57
    1987 CIN 111. Cervix lasered, no further problems.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011.
    Scan Feb 2012 .still in remission.
    Still NED Nov 2012. On to yearly bloods now.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.

    CancerForums User Policy

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    Out of all the things I have lost, I miss my mind the most.

  7. #1187
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    Hi Jody,

    Sending love & prayers for you.

    Maria
    73 y/o MIL- dx Ex Stage SCLC 4/30/12
    Liver biopsy 06/21/12
    Mets to lymph nodes & spine
    July 4, 5, 6. Chemo
    July 16, in hospital for pain
    July 18. CAT scan.Brain ok,Spine has mets
    July 23-27 radiation to prevent fracture
    Chemo Aug 8, 9, 10
    Chemo Aug 29, 30, 31
    Chemo Sept 26,27,28
    Cat Scan Oct 3, Oncologist Oct 15
    More mets, no further treatment
    Jan 8/13- CT confirmed large brain mets
    Hospitalized...declining.
    Feb 19, 2013 Carol passed away with all of us at her side.

  8. #1188
    Moderator Top User lisa1962's Avatar
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    Jody: Keeping you in my thoughts and prayers. You are awesome!

  9. #1189
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    Prayers for you Jody.

    Amanda
    Caregiver to son, 32 , 5/18/2011 Stage IV
    Sigmoid colectomy , liver biopsy 5/18/2011
    6cm sigmoid tumor, low grade (well-to-mod. differentiated)
    6 of 33 lymph nodes +
    FOLFOX /Avastin 6/2011-8/2011
    Rt hepatectomy on 9/20/2011---70%
    2012
    FOLFOX /Avastin 4 cycles 1/31 stopped-low platelets
    3/5 CT clear
    4/ PET scan showed peritoneal mets
    4/24 splenic embolization for low platelets
    FOLFIRI/ Avastin 5/12-8/12
    Consult for HIPEC 8/12 denied---tumors too many, possibly in ureter.
    5FU/ Avastin 8/2012-2/2013
    12/5/12 scan tumors stable
    12/12 aranespt
    2013
    3/5 tumor progression in abdomin
    Restart FOLFIRI/ Avastin with lower dose of Irinotecan 3/11-3/25
    nuelasta shots
    ER - bowel obstruction 4/4
    Port removed 4/12
    Port replaced 5/9
    ER 30 hrs
    Erbitux in, Irinotecan lowered 5/20 & 6/17
    9/17scan indicates stable
    9/18-27 & 10/7-11 small bowel obst.
    Erbitux & Irinotecan 11/5, 12/2
    Bowel obst. 12/31
    2014
    1/8 urether stent
    1/17 Hospice
    3/27 started his new journey

  10. #1190
    Super Moderator Top User sheila's Avatar
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    prayers for comfort
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  11. #1191
    Super Moderator Top User Hope2012's Avatar
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    I think of you often and I pray you are comfortable....
    This dark night shall end and the sun will rise again...
    Believe

    - Dad diagnosed in 1992 with primary bladder cancer
    - bladder removed and new one made from resected intestine
    - chemotherapy regimen started
    - mets to large intestines discovered in 1993...more chemo...tumors disappearing
    - complained of neck pain Dec 1994. Mets to brainstem confirmed
    - passed away Feb 24, 1995

  12. #1192
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    I spent all day throughout today reading through this thread. I wasn't always able to read all the replies from others, but most of them, and every post from Jody. I would love to see this put into a book form, for caregivers and those facing the disease alike. You were able to make me laugh, and cry, and root for you, hoping you would beat it, and watching you defy their guesstimates. It has been heartwarming to see all the lives you have touched, how people from all over the world have come together to love and support someone they have never actually met. How you have faced this nasty disease with the courage of a warrior and the heart of a lion. I truly hope that when the time comes you can pass with all the grace and dignity that you have fought this fight, and may your loved ones find solace in having been blessed with your presence.

  13. #1193
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    jody, holding you in the light, namaste leah
    mom, 76, diagnosed 1/12 with stage 3a nsclc;
    during surgery, two nodes that showed positive on PET proved to be negative;
    restaged to 1b (yea!)
    3 rounds chemo, cisplatin (can't recall other)
    having balance/cognitive issues; brain scan clean; meeting with neuro for possible parkinson's disease

  14. #1194
    Super Moderator Top User po18guy's Avatar
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    Daily prayers. Amen.
    Dx 07/2008 Peripheral T-Cell Lymphoma - NOS, stage 4B. "Innumerable" (50+) tumors above/below diaphragm + Bone Marrow Involvement.
    4 cycles CHOP+Etoposide plus 4 cycles GND. NED at mid-point and completion of chemo 12/2008.
    Relapse 02/2009 at first post-chemo scan.
    Scheduled for palliative care.
    Entered clinical trial of Romidepsin (Istodax) 03/2009. CR, remained NED for 56 (28 day) cycles.
    07/13 Possible relapse/autoimmune condition.
    08/2013 "re-induction" therapy of Romidepsin.
    Mixed results on 11/01/2013 scans.
    Treatment stopped 03/03/2014 - lack of response.
    02/10/14 five core needle biopsy samples indicate no lymphoma or possible mutation into AngioImmunoblastic T-Cell Lymphoma(?)
    03/17/14 Excisional biopsy finds no evidence of lymphoma.
    CT scans 04/24/14 reveal nodes and spleen reduced 60% on their own.
    Currently a medical enigma.

    "Now, faith is the substance of things to be hoped for, the evidence of things that are not seen" Hebrews 11:1

  15. #1195
    Senior User Falanga's Avatar
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    Amen brother....

    We miss you Jody. Say something

  16. #1196
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    I miss you too Jody, you have a forever place in my heart. If it is too hard it is okay, just know that you are loved.
    Mom's xray July 2011 looks suspicious, CAT scan July 2011 SCLC ES diagnosed August 2011
    Etoposide Carboplatin begins august 24th 2011
    CAT December 2011 lung tumors gone or greatly reduced, liver tumor not detectable PCR January 2012 CAT March 2012 more shrinkage
    CAT July 2012 tumors growing July 2012 Topotecan CAT October 2012 Liver tumor has grown October 2012 Taxotere begins CT scan - no growth - brain mets, WBRT in February, CT Scan in March 2013 shows more growth, begin Gemzar.
    Mom passed away July 8, 2013.

  17. #1197
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    Thinking of you daily Jody, and praying for your comfort.

    Janice
    Caregiver for Mom, age 89 with Adenocarcinoma Stage IV Lung Cancer
    Diagnosed: March 8, 2013
    Symptoms: Back ache, fatigue, weight loss, painful chest lump
    Treatment: Palliative Care to relieve symptoms; Referred to Pain Specialist on May 3
    Meds: (Update May 27, 2013) Fentanyl Patch, Oxycodene, Folic Acid, Dexamethasone, Decadron IV, Zofran IV, Cymbalta
    April 12, May 3, May 24: Chemo Alimata (Pemetrexed)
    June 17, Re-evaluation: Mets tumors 'stable', primary tumor slightly grown; new round of chemo Gemcitabine (Trade Name: Gemzar) prescribed; moderate right pleural effusion has developed.
    July 2-8, Hospitalized with edema, water on the lung; Discharged to Hospice care.
    August 2, 2013, Mom slipped quietly into a coma at the end of July and passed on August 2nd.
    My Story

  18. #1198
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    Jody,
    I just pray you are surrounded by love and are at peace and pain-free! Sending you lots of love and big big (((hugs)))! Anj.
    Caregiver to mom, 64 Ovarian Cancer Remission since 1997.
    6/19/12 Annual blood work - CA125 came back elevated.
    6/21/12 CT abdomen, RUL 2.8cm spot, LLL 5mm spot, lt. adrenal gland mass 8.3cm, rt. adrenal gland mass 4.6 cm.,
    6/28/12 Brain MRI-Clear,
    6/29/12 Lung Biopsy=Stage 4 NSCLC.
    7/11, 8/3, 8/23, 9/13/12 Chemo (Carb/Alimta).
    CT Scan 10/4/12 1 of 4 tumors decreased. 20% Kidney function. Blood transfusion
    10/9/12. Mets to liver.
    12/11 chemo (carb/taxotere) continued thru March.
    March 27, 2013. Told no more chemo, cancer now in the brain, to call out Hospice. Set up hospice March 31, 2013. Mom passed April 12, 2013. She will always be in my heart, never forgotten and always loved. May we reunite soon....after only a temporary separation!

  19. #1199
    Senior User David52's Avatar
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    Quote Originally Posted by Ababb View Post
    Jody,
    I just pray you are surrounded by love and are at peace and pain-free! Sending you lots of love and big big (((hugs)))! Anj.
    Jody......what Anj said......Thinking of you and sending love and hugs

    David
    62 yrs old
    March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1
    3 rounds of CHOP unsuccessful.
    Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Pet scans after 4th and 6th cycles showed no evidence of lymphoma.
    Autologous bone marrow transplant in November of 2012.
    17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
    100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
    One year post transplant check-up: Still fine; NED.
    18month post-translant scans, etc. No evidence of lymphoma, but funky spot between cervical vertebrae c-2 and c-3, which, after 2 MRI's, seem to be degenerative disc disease, not cancer.

  20. #1200
    Top User april51's Avatar
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    I lovev and by

    will probably die inhere to
    night.. too mch morphin....Jody C.a.ELEBRATE YUOR LIV3S!
    May The Odds Be Ever In Your Favour. Born 1960. Diagnosed 4/2011 with one tumor, LUL, NSCLC. Tumor size 1.1 inches. Thoracic surgery 6/1/2011. No action taken. Eight weeks of radiation and chemo. Carbo and Taxol. Follow up with four rounds of Carbo and Alimta.
    December 2011 CT scan shows all clear.
    April 2012 CT scan shows all clear. July 2012 had several x-rays taken at the chiropractor for shoulder pain. Took them to the onc and nothing suspicious noted. See them again in Oct.
    October didn't work out. Pain in the left shoulder continued to worsen and lymph nodes in the supraclavical swelled so I called the onc and they bumped the regular scan up to September 19 and we went for the results on the 24th. The tumor is back and the spread is extensive. Option 1: Try targeting chemos that may work and then on to clinical trials. These would give me about a year or so if the cancer responds. Option 2: Do no treatment and let nature take its course. This will give me six months give or take. As good as I feel right now, Iím going for door #2 and will continue to live well and enjoy myself until I donít. Iíll keep you posted. Live it up everyone!

    7 months into hospice and palliative care. It has been a very good relationship with the organization as a whole with a minor glitch. April 2013 spent the night at hospice facility, PICC line inserted for morphine drip. I said I wouldnít but, had a hospital bed delivered. Started 10 rounds of palliative radiation to shrink the neck tumor. Busy month for me!

    I've taken a couple of nasty falls this last week. (first of & mid-May) Right on the cancer shoulder. So I have a life alert necklace on me now. I wish I could get my hands on a small scooter!

    There is another node swelling on the other side of my neck. Still small.

    April51's (Jody) daughter posted that her Mother's journey in this world had ended on July 8th 2013.You touched so very many lives. Soar high Jody!

 
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