This is first time post for me and wonder if anyone could offer some advice please?
Two weeks ago I had a post coital bleed, not loads but as I'm post menopausal I was worried. I went to Dr following day and they did an internal but said couldn't see anything but when speculum removed there was some blood on the end of it.
They referred me for a Transvaginal Ultrasound and I duly went for that.
Got results yesterday and was told by me Dr that the image of my womb lining wasn't clear enough for a diagnosis.
He's put me on a 2 week appointment to go for further tests with a specialised gynaecologist and I think it's at the Oncology Unit, scan and maybe biopsy. He's also going to run a raft of blood tests including one which can detect Ovarian cancer. I know that's another forum but it seems like I'm crossing both areas here!
I had breast cancer, Pagetts Disease, 16 years ago and had a mastectomy and reconstruction. I was only 32 when diagnosed so was told it was very rare in someone of my age.
My nephew also died of bowel cancer aged 29 last year on my birthday,bless him and there is a history in my family of Aunties and cousins dying from breast cancer.
As you can imagine all kinds of things are running through my mind again and I'd just like some kind of idea as to what is going on and what I should expect and am I right to be worried? Was told by Dr to try not to worry so what's the first thing you do - Worry!!
Trying to maintain a sense of humour but struggling x
This is a first post for me too. I am new to this website and your post came up when I googled 45 yr old endometrial cancer. Don't have a diagnosis yet and am hoping for the best. Like you was told "not to worry" but is on my mind 24/7 since some of my symptoms have worsened since June. My mother was just diagnosed with colon, uterine, and pancreatic cancer this week. My research has told me that a family history of colorectal and endometrial and/or uterine cancer especially in someone as young as your nephew could be indicative of Lynch Syndrome. I am not a dr nor an expert in this area so you may want to do your own research and talk to your dr/docs. Try to stay positive and best of luck to you.
Thanks to Maresc for the reply. Very kind and I'm trying to stay positive.
Finally got date for Endometrial biopsy and had it this morning. They said it was because they could see some thickening of the lining of the womb but couldn't get a clear enough picture to accurately measure it.
First attempt not too good as picked up a lot of mucus so had another go!!! That seemed satisfactory. Now have to wait 1-2 weeks for results. Yes, yet more waiting.
My question is:- Is mucus being present quite normal for this biopsy and is it something they'd expect to happen?
Does anyone know please?
I am sorry that you have these things to worry about and I know that waiting for results can be very difficult.
I would keep in mind 2 things. First, you do not know that you have cancer and my guess is that you don't. From what I've heard, most endometrial biopsies come back negative--i.e., no cancer. Secondly, even if you do get the dreaded cancer diagnosis, endometrial cancer is one of the most curable. It is usually caught early enough for a full cure.
For what it is worth, I had postmenopausal bleeding, then a transvaginal ultrasound which showed a thickened endometrium, then an endometrial biopsy. One week after the biopsy, I got a diagnosis of endometrial cancer, grade 1 (later bumped to grade 2). I had a daVinci hysterectomy which was much easier than I ever thought surgery could be. Lab results showed stage 1b, grade 2 endometrial cancer. I was told that I did not need chemo or radiation and that I have only a 5 to 10% chance of recurrence. Of course, every case is different, but from what I have heard a full cure with no chemo or radiation is a very common outcome for endometrial cancer, perhaps even the most common.
I don't know anything about the mucus. My off the top of my head reaction is that I never heard of cancer producing mucus. But I am no expert on this, so best to ask your doctor or just wait for the results.
Thanks to endosophie for your contributions and help. It's great that you can reach out to help others from your own experiences and it's deeply appreciated.
Susanne -- hang in there and try to keep your spirits up. The diagnostic process is a real nail biting stress producer. I'm sorry you're going through this.
Husband diagnosed with NSCLC Stage IV in 3/2005. Fought & lived over 2 1/2 years with multiple lines of treatment.
Post describing our journey: http://cancerforums.net/viewtopic.ph...er=asc&start=0
Left my embrace to live with our Heavenly Father in October of 2007 and now breathes with ease forever. I will miss this gentle, giving soul with the easy smile for the rest of my days, but have faith we will be together again. He's just getting a little break from me!
I've recently been diagnosed with endo cancer and am due to have my hysterectomy next Wednesday.
Waiting for the tests is the worst part. I waiting 4 weeks for a D & C to check my endometrium, then the hospital cancelled, so had to wait another two weeks to see a gyno who did an in office biopsy. Then another week until diagnosis. I've now been waiting 6 weeks for the operation!! So its not exactly a swift process.
But as endosophie said, most biopsies come back negative and even if it is positive, it is a curable disease.
I went in with all expectations that it wasn't cancer and I didn't want another operation to remove organs (had my gall bladder removed 6 years ago). But when I heard the cancer word, I did a complete 360 degree change and I'll be relieved to be rid of my uterus! I was thrown into total despair, but on recollection, I think it was because I wasn't expecting cancer at all, so I was in shock.
I have no relatives who have cancer, so its not a disease I knew anything about.
I decided ages ago that there was no point in worrying about how advanced my disease is until I knew what to worry about, which the doctors can only be sure of once I've had the staging hysterectomy. So I'll think about it when I know all the results.
Anyhow, try not to worry too much. I know its easy to say and not so easy to do.
I'm keeping positive. I remember when I was going through breast cancer and you go through every emotion possible and a few others besides!! As it's now been a week since my biopsy I'm starting to feel that all must be OK as they do say no news is good news - fingers crossed. I'm thinking that my Dr was doing a belt and braces job so to speak and good for her.
Sereena good luck. I'm sure all will be fine for you. One thing about everyone on here it does seem that we have all been sensible and gone to the Drs nice and early.
Take care and good luck to all