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Thread: when it comes to lymph nodes, how big is bad?

  1. #1

    when it comes to lymph nodes, how big is bad?

    Does an enlarged lymph node have to be very big to be a bad sign? For the last few months i have been very fatigued, and the last couple of weeks have sometimes had chest pain an felt short of breath. Also for at least two months (that's when i noticed them), i have had a swollen lymph node under my jaw,on the left, which is still small (about the size of a kidney bean), but the corresponding one on the other size, which is normal is only pea sized. I also hav a bean sized one on the back of my neck, by my hairline, on the right side but not on the left. I have not had any infection that can account for any of this and tests for glandular fever (mono) came back negative, and my blood count was ok. The doc said it was stress, which it isn't, then said chronic fatigue syndrome, but i'm not convinced. Are these large enough to worry about, or am i being a drama queen? Any advice would be good.

  2. #2
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    hello susie, if you are feeling worried which is quite normal in the circunstances go back to your doctor and ask to be seen by a haemotologist if nothing else just to put your mind at rest, i may be wrong but what i have been told by the lymphoma association is that it basically didnt matter what size the gland was, i dont think glands come up through stress i cant see how that can work, but i may be wrong, perhaps he meant that the chest pains and fatigue can be a result of stress, i hope so because i am feeling extremely fatigues and have been for months and like you was told by my doctor that my gland was nothing to worry about, but i insisted on going to see haemotologist who i have seen who referred me to a surgeon who has booked me in for a biopsy tomorrow. so i am glad that i didnt listen to my doctor. my gland is bigger than a kidney bean but cant think of anything of a similar size to compare it to at the moment! i have another one on other side of neck that is about the size of a bean both ben there for at least a year maybe longer. dont let your doctor fob you off go back in there and say that this has you very worried and you need to be reffered to a specialist. its probably nothing, and i hope that mine is as well but the worry alone can make you feel extremely unwell. good luck dawn
    i have been ill for two years now and am awaiting a biopsy on an enlarged node. i have been told by many doctors that there is nothing wrong and it is all in my head, so now even my family believe this i feel hopeless and very scared/

  3. #3
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    Hey suzie, Dawn is right. It may not be cancer but something is causing your symptoms and a good doctor will find out what. If he or she are just going to assume a diagnosis without facts, its time for a new doctor.
    Your lymph nodes are doing their job and we need to find out why. Good luck to you and keep us posted, Doug.

  4. #4

    Dawn Result in Sept?

    Hi Dawn

    Just wondering what your biopsy results were? I'm in the same predicament you were: nodes enlarge for 6 mos.-drs say it's nothing.

    thanks
    Tani

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    hi tani, my biopsy results came back clear, thank god, no explanation as to why so many nodes are enlarged or why the big one was so big !
    am seeing the surgeon in january just a routine follow up appt, i will be asking hime why some peoples glands get big and stay that way, because im curious!!
    im still feeling really sick daily and still have no answer as to what the cause is.
    forgive me i just read your last post asking what my biopsy results where but dont quite no what your situation is. have you had any blood tests or xrays/scans, as i do know that blood tests do come back clear even if there is a sinister reason for the glands being up.
    the only sure way of knowing is a biopsy, for definate.
    hoping your turns out like mine.
    keep me informed and best of luck
    love dawn xxx
    i have been ill for two years now and am awaiting a biopsy on an enlarged node. i have been told by many doctors that there is nothing wrong and it is all in my head, so now even my family believe this i feel hopeless and very scared/

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    Hello! I came across this while searching about lymph nodes, and I noticed that I am going through something very similar. I was wondering if you guys experienced loss of appetite or headaches. Also, I realize this was posted long ago. I may not get an answer, but it'd be nice to know what has happened with your health since. Thank you.

  7. #7
    Administrator Top User ChemoMan's Avatar
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    Quote Originally Posted by Madimoo View Post
    Hello! I came across this while searching about lymph nodes, and I noticed that I am going through something very similar. I was wondering if you guys experienced loss of appetite or headaches. Also, I realize this was posted long ago. I may not get an answer, but it'd be nice to know what has happened with your health since. Thank you.
    Hi

    We work on the principle that no news is good news so the original poster did not have cancer.

    Have you made an appointment with your Doctor yet? If not why not? Write down the question you might want answered and make that appointment soon.

    Good luck
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  8. #8
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    I have. The first time, my symptoms included swollen lymph nodes that overtime became painful. I also experienced fatigue, suppressed appetite, fevers, aches, and headaches. The doctor said it was a viral infection. After about 2 weeks I felt a lot better but one of my lymph nodes never fully went down, and I was still very tired.
    The same symptoms returned a couple of weeks ago (about three months after the first time). I went back to the doctor and he said it was another viral infection. I asked him why it would be a different infection with the same symptoms. He said it probably wasn't. I've gotten two rounds of white blood cell, and mono tests. I also got one round done for my thyroids. All were clear of abnormalities.
    The only difference this time with the "infection " is that the nodes are not painful, but I have 5 swollen in my neck. They are rather small, but are not getting smaller or lager.

  9. #9
    Administrator Top User ChemoMan's Avatar
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    Hi
    Normal practice is to give antibiotics then wait 6 to 8 weeks and do a follow up. CT scans may be done and then a biopsy but this can be vice versa. Keep seeing your doctor and whenever you get a question pop into your head write it down so you can remember it when you see the doctor. If you do get to the biopsy stage insist on an excisional biopsy rather than a fine needle one

    It is unlikely that you have Lymphoma but you never know. Please refrain from asking anymore questions to us as we cannot really answer them at this point, the doctor is the best person to ask.

    Good luck and please read this:

    http://www.cancerforums.net/threads/...h-NO-diagnosis
    Age 58
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

 
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