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Thread: Waiting For Biopsy Results...New Here

  1. #1
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    Waiting For Biopsy Results...New Here

    Hi everyone. I am looking for some information and support.

    Here's my situation: I am 44, never had kids, never been pregnant, ex partner had a vasectomy long ago. I have been reasonably healthy -- though I had one scary brush with cervical cancer and laser treatment in 1995. My weight is normal, maybe a little chunky right now, I'm a non-smoker, non-drinker.

    My last period was late starting. My PMS seemed extra bad -- heavy sore breasts forever and my period started a week after I expected it to. It started on Xmas Day. Then it never stopped -- and seemed to get heavier and heavier. I wasn't cramping or uncomfortable -- though I was just bleeding so much. I bled through my protection and clothing in one hour ! I use a menstrual cup (medical grade silicone cup that catches the flow -- this is emptied and rinsed then reinserted). I am used to emptying it perhaps three times a day on my heaviest days. I was emptying it every one - two hours as it was overflowing. After 10 days of this I started to feel concerned and called my doctor. I saw her and was referred for an ultrasound. Bloodwork revealed that I was anemic -- but there were no sign of thyroid issues (after two weeks I estimated that I had bled approximately 350+ ml -- over 30 ml a day). Ultrasound revealed that my endometrium was thickened and there was a cyst on one ovary. No suggestion of thyroids. I was referred to a gynecologist, who described my bleeding as "grossly abnormal". He said that my uterus was enlarged, and took an endometrial biopsy. He said the results would come back in 2-3 weeks, and I am booked for a sonohysterogram after a second ultrasound.

    I have been prescribed Cyklokapron(Tranenexamic Acid) which has helped to get the excessive bleeding under control. I am also now taking an iron supplement. I do look pale !

    I had no previous symptoms -- only that my periods were a little more irregular -- but I figured that this was due to severe stress and perimenopause. My older sister said she went through menopause at age 43. There is no history of uterine cancers in the family, though one aunt developed and survived breast cancer.

    Needless to say I am feeling pretty unnerved by the possibility of cancer. The gynecologist felt that it was a type of growth that was causing the very excessive bleeding. Does any of this sound familiar ? Any advice/anecdotes ? The wait for the results is killing me

  2. #2
    Administrator Top User Didee's Avatar
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    Hello, welcome to the forums. I am so sorry that you are facing these challenges. This time of tests and waiting for results, the what ifs and just not KNOWING is the absolutely worst time. Once you have been cleared or have some acceptable answers at least there is something to clear up easily or fight.
    All of us here whether a cancer patient or carer can totally relate to how you are feeling.
    You have done exactly the right thing having tests done to determine if anything is wrong.

    So many people present differently with symptoms or no symptoms that it is very hard to say whether you have great cause for cancer concern.

    I hope very much that the growth that your doc expects it to be is benign.

    Good luck and please get back to us if you wish when you know anything. If you do have cancer then this is a very supportive forum with great people to help you through it.

    If you don't, we love nothing more than saying phew and sincerely waving people on after their scare. I hope you will be one of them.

    Di
    Aussie, age 58
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Out of all the things I have lost, I miss my mind the most.

  3. #3
    Top User april51's Avatar
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    Birdy, I don't know where you live, but I wish they had those cups here in the US! But I would have probably overflowed like you at that age.

    With me it was menopause onset matched with an early battle with cervical cancer. I had fibros the size of grapes. So after a few years of this, and after finding a cyst on an ovary, I just opted for hysterectomy.

    My life was changed forever! I wish I had done it ten years prior. Done, over, no more! Finished! Thank you gyno surgeon. a
    May The Odds Be Ever In Your Favour. Born 1960. Diagnosed 4/2011 with one tumor, LUL, NSCLC. Tumor size 1.1 inches. Thoracic surgery 6/1/2011. No action taken. Eight weeks of radiation and chemo. Carbo and Taxol. Follow up with four rounds of Carbo and Alimta.
    December 2011 CT scan shows all clear.
    April 2012 CT scan shows all clear. July 2012 had several x-rays taken at the chiropractor for shoulder pain. Took them to the onc and nothing suspicious noted. See them again in Oct.
    October didn't work out. Pain in the left shoulder continued to worsen and lymph nodes in the supraclavical swelled so I called the onc and they bumped the regular scan up to September 19 and we went for the results on the 24th. The tumor is back and the spread is extensive. Option 1: Try targeting chemos that may work and then on to clinical trials. These would give me about a year or so if the cancer responds. Option 2: Do no treatment and let nature take its course. This will give me six months give or take. As good as I feel right now, Iím going for door #2 and will continue to live well and enjoy myself until I donít. Iíll keep you posted. Live it up everyone!

    7 months into hospice and palliative care. It has been a very good relationship with the organization as a whole with a minor glitch. April 2013 spent the night at hospice facility, PICC line inserted for morphine drip. I said I wouldnít but, had a hospital bed delivered. Started 10 rounds of palliative radiation to shrink the neck tumor. Busy month for me!

    I've taken a couple of nasty falls this last week. (first of & mid-May) Right on the cancer shoulder. So I have a life alert necklace on me now. I wish I could get my hands on a small scooter!

    There is another node swelling on the other side of my neck. Still small.

    April51's (Jody) daughter posted that her Mother's journey in this world had ended on July 8th 2013.You touched so very many lives. Soar high Jody!

  4. #4
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    So hard to wait. My biopsy results came in exactly one week, so 2-3 weeks sounds long to me. My bleeding was very different from yours. I was post menopausal and my bleeding was very light. But I do think that endometrial cancer can present with different kinds of bleeding. The nice thing about this kind of cancer is that it usually presents early with bleeding that gets it noticed while it can still be cured.

    The cyst on the ovary is of course a concern, but my understanding is that most ovarian cysts are not cancerous. I have a friend who had ovarian cancer about 10 years ago. Her cancer started with what was described as a cyst, but I remember that she was repeatedly told that the vast majority of ovarian cysts are benign. The doctors kept telling her not to worry about it. Unfortunately she was one of the ones who actually did have cancer, and a lot of nasty stuff followed (major staging surgery, chemo). But she is alive and well now, with no signs of cancer.

    If you are looking at the possiblity of cancer, you might want to see if you can find a gyn oncologist in your area who has been trained in the daVinci robotic surgery. See davincihysterectomy.com for a list of doctors who are qualified to do this. Preferably find someone who has done a lot of these procedures and is affiliated with a major cancer center. My gyn said that she could do the surgery herself, but I figured that if I had cancer, I wanted to be in a cancer center, not a local hospital. So I got 2 second opinions, one from each of the major cancer centers in my area, both from doctors who say that they offer minimally invasive daVinci surgery. I am glad that I did. That may or may not be possible depending on your insurance and/or where you live. The daVinci offers less pain, easier recovery and lower chance of infection. But those issues are minor compared to the major issue of getting the cancer (if it is diagnosed as cancer) out of your body.

    Keep in mind, that there are lots of reasons for bleeding other than cancer. And even if you do have cancer, most endometrial cancers are completely cured with a hysterectomy.

    Best wishes. Let us know how it goes.
    Endometrial adenocarcinoma
    stage 1 (10% penetration of myometrium), grade 2
    daVinci hysterectomy March 2011
    No further treatment. Feeling great!

  5. #5
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    Hey April 51 -- I live in Canada. I am using a menstrual cup with the brand name Diva Cup (made in Canada but distributed across North America). I know there are other brands in the US and Europe including the Keeper, Lunette, etc. There is a whole LiveJournal group where everything you would ever want to know about menstrual cups is discussed, including size and brand comparisons. They are usually sold at health food stores, but are also available BNIB on Ebay, etc. They are a really great eco-friendly (and economical in the long run) product. One will last for years. I believe there is also a disposable cup called Instead(?). There was a little bit of a learning curve learning how to insert it correctly(there are different ways to fold it, and my uterus is retroverted).

    It certainly helped(and is still helping me) to assess what volume I was actually bleeding(fluid measurements are marked inside it. At first I thought this was nuts -- now I think it is a really good idea). I am now aware that my excessive volume seems to be because of large and very large clots that I am passing -- which are a new thing as of the last 38 days.

    The only drawback to the menstrual cup is that not all medical professionals are familiar with them. My first (exterior abdomen)ultrasound was performed while I was still wearing it. I tried to explain it to the female ultrasound operator before we did the procedure -- and asked if I should remove it -- but she just did not understand what I was talking about. After I was able to empty my bladder we did the endovaginal ultrasound, and removed my overflowing cup. I warned her that I was bleeding extremely heavily, and suggested she put down a large pad or towel. I don't think she believed me -- but within the 10 minutes or less there was a large pool of blood underneath me and the ultrasound operator was visibly appalled. I tried to warn her...

    Endosophie: I live in one of the largest cities in Canada (Toronto). I live close to downtown, and the specialist was close to a very busy hospital, so I suspect that is why the lab results will be a little slower. I just read an article in a free paper here where the writer was trying to access a pretty routine surgery for her child (tubes in the ears) and had months of run around until she saw a specialist in suburb, and was able to have the procedure done very quickly. Most medical stuff is covered by the provincial health care plan. I am unaware of how available the robotic surgery may be in Canada, but if a hysterectomy is in my future I will be sure to ask lots of questions. I have never had a surgical procedure besides laser surgery. The prospect of it really frightens me ! The cancer possibility just makes me feel physically weak. But I guess that everyone here already knows how this feels.

  6. #6
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    Hi Birdy -- Someone on this forum from Canada had one of the first davinci hysterectomies that was done at her hospital. I think she was from Ottawa, but not sure. You could look through some of the old threads--I think it was not too long ago. Hard to imagine that this would not be available in Toronto. Like you, the idea of any kind of surgery competely terrified me. But my surgery was unbelievably easy. I was in the hospital for one night and my pain was never more than a 2-3 on a 10 point scale. I had absolutely no idea that surgery could be so easy. The worst part was starting the IV (for some reason, the idea of a needle in my hand drives me nuts), but I managed to live through that. Of course, there is a very good chance that you won't need surgery. But if you do, the good news is that surgery for endometrial cancer is life-saving! They take the cancer out and it is GONE! End of story. But hopefully you don't even have cancer and there will be a good non-surgical treatment for you. Let us know how it goes.
    Endometrial adenocarcinoma
    stage 1 (10% penetration of myometrium), grade 2
    daVinci hysterectomy March 2011
    No further treatment. Feeling great!

  7. #7
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    Birdie, I too am waiting for test results. I am praying that both of us are greeted with GOOD results!

  8. #8
    Top User april51's Avatar
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    Birdie,

    It certainly helped(and is still helping me) to assess what volume I was actually bleeding(fluid measurements are marked inside it. At first I thought this was nuts -- now I think it is a really good idea). I am now aware that my excessive volume seems to be because of large and very large clots that I am passing -- which are a new thing as of the last 38 days.

    The only drawback to the menstrual cup is that not all medical professionals are familiar with them. My first (exterior abdomen)ultrasound was performed while I was still wearing it. I tried to explain it to the female ultrasound operator before we did the procedure -- and asked if I should remove it -- but she just did not understand what I was talking about. After I was able to empty my bladder we did the endovaginal ultrasound, and removed my overflowing cup. I warned her that I was bleeding extremely heavily, and suggested she put down a large pad or towel. I don't think she believed me -- but within the 10 minutes or less there was a large pool of blood underneath me and the ultrasound operator was visibly appalled. I tried to warn her...

    I know that story. No one thinks it is that bad. I used to sleep with so much protection it was rediculous. And it looked like I fought a wild cat during the night! Walking down the hall at work and it would just fill my shoes without warning.

    If you are getting those large clots it might be fibroid tumors that are benign, but very troublesome. My scans looked like bunches of grapes...

    The cup sounds a lot like a diaphram that I used many years ago.

    Hope your results come back just fine. a
    May The Odds Be Ever In Your Favour. Born 1960. Diagnosed 4/2011 with one tumor, LUL, NSCLC. Tumor size 1.1 inches. Thoracic surgery 6/1/2011. No action taken. Eight weeks of radiation and chemo. Carbo and Taxol. Follow up with four rounds of Carbo and Alimta.
    December 2011 CT scan shows all clear.
    April 2012 CT scan shows all clear. July 2012 had several x-rays taken at the chiropractor for shoulder pain. Took them to the onc and nothing suspicious noted. See them again in Oct.
    October didn't work out. Pain in the left shoulder continued to worsen and lymph nodes in the supraclavical swelled so I called the onc and they bumped the regular scan up to September 19 and we went for the results on the 24th. The tumor is back and the spread is extensive. Option 1: Try targeting chemos that may work and then on to clinical trials. These would give me about a year or so if the cancer responds. Option 2: Do no treatment and let nature take its course. This will give me six months give or take. As good as I feel right now, Iím going for door #2 and will continue to live well and enjoy myself until I donít. Iíll keep you posted. Live it up everyone!

    7 months into hospice and palliative care. It has been a very good relationship with the organization as a whole with a minor glitch. April 2013 spent the night at hospice facility, PICC line inserted for morphine drip. I said I wouldnít but, had a hospital bed delivered. Started 10 rounds of palliative radiation to shrink the neck tumor. Busy month for me!

    I've taken a couple of nasty falls this last week. (first of & mid-May) Right on the cancer shoulder. So I have a life alert necklace on me now. I wish I could get my hands on a small scooter!

    There is another node swelling on the other side of my neck. Still small.

    April51's (Jody) daughter posted that her Mother's journey in this world had ended on July 8th 2013.You touched so very many lives. Soar high Jody!

  9. #9
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    Hi Birdy and Andi

    I hope you both get good results but remember there's always support on the forum.

    I had no symptoms and was having IVF treatment and was diagnosed with endo cancer, so I think it's hard to judge or guess what the cause of the bleeding could be. But you've done the right thing and fingers crossed your biopsies will be clear.

  10. #10
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    Birdy: First Test Result Confusion

    I contacted my doctor, and they faxed me the first pathology results. It is described like this: "Cytopathology Report. Type of Specimen: PAP/Liquid Based. Interpretation: Atypical Squamous Cells of Undetermined Significance".

    I am confused. This seems to be the result of a PAP test. Is an endometrial biopsy described like this ? Or is this just a PAP test result ?

    I have done some looking online, and the results are consistent with HPV infection. BUT -- I was infected with HPV in 1986, and possibly reinfected with a different strain sometime between 87 - 93. I was treated with laser surgery in 1995, after a pre-cancerous growth was detected. My PAP smears were all perfect since then -- though I admit that I did not have one done since 2007. From 1993 I was in a monogamous relationship until 2010, and I have not had sexual contact with anyone since then. I have tried to get information about how long HPV can live after the initial infection but after much searching online and calling local sexual health clinics I still don't have any answers. Obviously the most logical answer is that my ex was NOT monogamous -- though he continues to swear up and down that he was.

    Can anyone tell me more about this result ? Is anyone out there an HPV researcher that can clarify ?

    I have not been able to speak with my doctor yet -- only her receptionist. The only information I could get was that I was supposed to have the test repeated in 6 months.

    BUT -- the only time that I stop bleeding is after taking cyklokapron, and if I have not taken it for 36 hrs the bleeding starts right up again -- 46 days straight now.

    Advice/insight, please ! I am feeling so stressed out and frustrated. I thought that the test results would give me some calm -- but now I am more confused and uncertain.

 

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