I hope no one minds me posting as I haven't been diagnosed with anything but I have a long concerning history and I have a doctors appointment on the 16th and I'm just worried about what to expect or what I should say.
I have recently moved to the States, so it's a new doctor at a private hospital. I have t say I hate going to doctors as I always worry they won't believe me. I am just feeling so ill now though that I really want to push to get looked at properly and get something sorted out. I am in my late 20s.
So here's my history....
A few years ago I had on and off severe rectal bleeding which is still present to this day. Doctor did exam, no haemorrhoids. Blood tests for IBS/Chrons come back negative. Have sigmoidoscopy done and there is no sign of inflammation at all, no tears or reason seen for the bleeding. I also had Lower abdominal pain and sharp pain on my right hand side. Appendix removed as a precaution, but not inflamed. Polyps are seen but not considered a problem.
in 2011 I fell ill with a chest infection. I was in hospital for a week because of this and they also decided to do a D-Dimer test which came back highly elevated. I was rushed to another hospital for a chest scan which showed no blood clots. Another D-Dimer test showed still high elevations so I was put on blood thinners. A re-test was never done after blood thinners.
late 2011- Extreme pain on my right side and shooting pain down my legs. I go to the doctor and just about hit the roof when he touches me. He can tell I'm bloated and orders an ultrasound. Unfortunately, even with chasing this up with the hospital the appointment doesn't come through before we move country in November 2011.
In the last couple of months I have been having extreme exhaustion. I can barely get out of bed and when I am, I am falling asleep. I am needing the bathroom constantly, both to urinate and bowel movements. I am passing a lot of gas and both gas and bowel movements smell really foul. I feel like I am never off the toilet. My abdomen is tender and heavy with pain on my right hand side. I am dizzy and nauseous, but that's probably because I am off my food. I eat, but not a lot. For some reason though I am so bloated and am not losing weight.
The pain feels like I'm constantly on my period, but a very bad one. My cycles have been totally out of whack when normally they are like clockwork. My last cycle was 7 days late and much heavier than normal. In November I had two periods in 4 weeks.
Normally I am very fit and active. I am a regular gym go-er and I eat reasonably healthy. I take vitamins and sleep a heck of a lot so I can't explain my extreme fatigue that way. I think the most upsetting thing is that I just want to sleep all day and I'm a Mother. Today I have stayed on the couch all day and I feel so guilty for it.
I'm not looking for an online diagnosis, my husband and I are just worried and I want to prepare myself as much as possible for when I see the Doctor on Thursday. I know something isn't right and I am worried about the failed D Dimer test last year along with how I'm feeling. I just want to make sure that I'm not dismissed. I have a high incidence of various cancers in my family.
What should I be saying, asking for, looking into, etc?
I too posted here with no diagnosis, so your not alone
I'm no doctor, nor am I suffering from anything similar to you, so anything I say will probably be of no help to you LOL I'm simply acknowledging your concerns & hoping somebody can help you.
Although, I would suggest preparing for a battle with your Doctor as they seem reluctant to want to investigate these things.
Good luck with your appointment when it arrives and keep us posted....
Also....try to stay away from Google! It only results in you diagnosing yourself with all sorts of diseases! I know it can be hard to refrain from doing so, especially when your waiting for an appointment, but it will only worry you even more!
Hello. I am so sorry you are having these concerns.
I do not know the medical situation in the USA.
My advice would be to go to an ER if the pain becomes unbearable and hopefully that might get you moving in the system a bit faster.
For your doctors appointment I would have a written list of timeline of symptoms and what was/was not done about them. If this doctor does not take you seriously then find another, or another till you get answers that satisfy you. The squeeky wheel is the one that gets the most attention.
I was only diagnosed with my cancer as I made myself a complete pain in the neck pestering my doctors.
Good luck and please keep us updated on how it all goes.
Aussie, age 59
1987 CIN 111. Cervix lasered, no further problems.
Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.
Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
Discharged Nov 2014.
I have to admit to googling a bit in regards to failed d-dimer tests. It doesn't sit well with me that it was just left. Every website has a different opinion though so I'm just going to wait to see what the doctor says and/or does. I think I might take what I've just written to him and just be a bit pushy. I just don't want them to dismiss me or think I'm a hypochondriac. I hate the doctor, it takes a lot for me to go to one so when I rang up my husband and said I wasn't well and made an appointment he knew I was feeling pretty bad.
I just want to feel normal again, which feels like a long time ago!
I'm not sure of medical stuff in the US yet either as we only moved here in November but I do intend to be a pushy with my husband's help. Normally I am pretty bad with this sort of thing and just leave it but my husband is finally home from months away this weekend and I know he will push for finally getting some sort of diagnoses on everything. It's just been going on for too long. I have to say though that the extreme tiredness, for me, is the worst symptom so far.
I'll chat to my husband tonight about a 'timeline' to make sure Ive remembered everything correctly. I'm sure the doctor will think I'm a loon for having it all written down but at least it makes sure he has everything in front of him.
I must admit, I'm being slightly hypocrital...I have done nothing but Google since I first fell Ill!!
When you have concerns, a Doctor that isn't interested and an appointment a month away, who else are you meant to turn to for answers? Google, of course!! It's done more bad than good for me though!
Don't allow your Doctor to dismiss you, make sure he/she takes on board all of your symptoms.
If your Doctor suggests 'keeping an eye on you', I suggest you refuse this! I wish I had! All it has done for me is made me wait 6 months for a biopsy.....
Tell your doctor how long you have been Ill and the extent of your illness.
Make them become concerned, even if in the end there is nothing to be concerned about, only this way you will get your answers !
I'm assuming that cancer is concerning you with you being here....
A CT scan is one of the best scans to highlight any tumours in your body. Maybe you should suggest this to the Doctor. Have you had blood work done? The dizziness and weakness your suffering could indicate anemia. Given your symptoms, I doubt the doctor will fob you off, but have an idea of what you want from the appointment before you go, I do suggest a CT scan though.
I agree with Michellej92 that a CT scan would probably be something you should expect. A pelvic and transvaginal ultrasound is also used. CT scans and ultrasounds give different information and often both are ordered. The ultrasound test is easiest and cheapest, so sometimes they do that first and decide on the CT scan after they see the ultrasound results.
I hope the doctor will be very concerned about how much time has passed -- especially the fact that you never got the followup recommended before you moved to the U.S. Whatever is causing all this, I hope you'll get prompt attention. Please let us know how it goes!
What type of doctor are you seeing? (family physician, internist, gynecologist, etc.?) He might give you a referral to a specialist if it's something he can't narrow down or treat himself.
I had the doctor the morning, he's based up at a hospital but it's a family physician. He listened to my history and had a feel of my tummy and said he could feel something on the right side.
I've been referred for a CT scan on the 1st of March and I had bloods and urine done then and there.
He was a really lovely doctor and listened to all of my concerns. He said that going forward if they can't see anything on the CT then I will be referred to a gastroentorologist and if they do see something then he will refer me onto whatever speciality is needed.
I did ask what he was looking for with the blood tests and he said we'll cross that bridge if anything comes up. So I'm just to take it easy until my CT scan and wait it out.
He said if I feel any worse or have any concerns to go straight back up to see him.