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Thread: Carcinoma of hip

  1. #1
    Super Moderator Top User
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    Carcinoma of hip

    Being a moderator on the colon cancer forum, I know squidge about carcinoma on the hip bone.
    Just got the wind knocked out of me as my good ladies cousin was just diagnosed yesterday, she is in her mid 60's and had been treated for a herniated disc problem for years.
    She called my wife and asked did I have any info, as she had been told it was a rare form of carcinoma and was highly unusual that she developed it so late in life.
    She has been told she will have both radiology and chemotherapy.
    The doctor said for her not to worry as it was not life threatening.
    Based on the small amount of information given appreciate if any members can shed some light on treatment and what to expect.
    Thanks a bunch
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    6 months after feeling great.
    Recent PET scan indicates no recurrence.
    12/09 Colonoscopy clear.
    Check CT scans for both CRC and for surgery. All clear
    Aortobifemoral surgery 5th May. yughh
    DEXA scan clear, Endoscopy all clear.
    CT showed "unknown" but no concern from docs.
    28/10 Thallium scan. More radioisotopes and 1 hour scan.
    Symptom recurrence, hard and painful Inguinal lymph nodes, referred back to CRC team for investigation 24/03/14
    Recurrence confirmed, but appears localised. Upcoming surgery again.

  2. #2
    Administrator Top User Kermica's Avatar
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    Hi Barry and I am sorry to hear of your friend's diagnosis. I've done some research and I think she has the type incorrect as carcinoma refers to a soft tissue disease. Cancers originating in the bne are called sarcomas. Here is a link to the US NCI web site with a reference document for you: http://www.cancer.gov/cancertopics/f...tes-Types/bone

    Surgery is often the first line of therapy but that may not be feasible for the hip. Chemo and radiation are also cited as treatments. I hope this is helpful and I hope that your friend has the best possible outcome.

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 63
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites
    Remission confirmed July 09

    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.

    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.

    Significant progression detected in PET scan - December 2012

    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.

    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.

    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".

    February 2013 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.

    Very grateful and will await the next chapter with confidence...may it never come.

    Remember the Rules!

  3. #3
    Super Moderator Top User sheila's Avatar
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    Hi Barry- not much here either except that Ive heard several times and even read about it that most hip cancer is treatmable and the goal for this is complete remission which can last a very long time(but there is a chance of return) more easily treatmet than others. If the cancer has spread to the bone and far advaced they may be another whole ballgame. but most cases are able to be kept under control or irradicated with treatments.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  4. #4
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    Thanks Kermica for putting me right.
    I enquirer and it is a sarcoma, yet they intend radiotherapy and chemo.
    Maybe different regimes here in the UK.
    Your a pal thanks again
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    6 months after feeling great.
    Recent PET scan indicates no recurrence.
    12/09 Colonoscopy clear.
    Check CT scans for both CRC and for surgery. All clear
    Aortobifemoral surgery 5th May. yughh
    DEXA scan clear, Endoscopy all clear.
    CT showed "unknown" but no concern from docs.
    28/10 Thallium scan. More radioisotopes and 1 hour scan.
    Symptom recurrence, hard and painful Inguinal lymph nodes, referred back to CRC team for investigation 24/03/14
    Recurrence confirmed, but appears localised. Upcoming surgery again.

  5. #5
    Super Moderator Top User
    Join Date
    May 2011
    Location
    UK
    Posts
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    Shiela,
    Margaret is very upbeat as the specialist at the Newcastle hospital has told her its definately not life threatening.
    Radiation and chemo they say is the course they intend to follow.
    I guess as its not life threatening then it is confined.
    Thanks for the info
    Best wishes to Wonderwoman, yourself and family.
    Keep cooking lol
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    6 months after feeling great.
    Recent PET scan indicates no recurrence.
    12/09 Colonoscopy clear.
    Check CT scans for both CRC and for surgery. All clear
    Aortobifemoral surgery 5th May. yughh
    DEXA scan clear, Endoscopy all clear.
    CT showed "unknown" but no concern from docs.
    28/10 Thallium scan. More radioisotopes and 1 hour scan.
    Symptom recurrence, hard and painful Inguinal lymph nodes, referred back to CRC team for investigation 24/03/14
    Recurrence confirmed, but appears localised. Upcoming surgery again.

  6. #6
    Super Moderator Top User sheila's Avatar
    Join Date
    Jul 2008
    Location
    bethel park pa
    Posts
    6,621
    Barry-thats good to hear not to make light of any situation but sounds like shes not in too much trouble- thats great.
    wonderwomen just called me and asked if she was allowed to come to my house- I told her-"only if she behaves herself
    were going there tonight to get her walking. no will not be an option.
    she wanted to go to her house but shes not aloud to be alone shes too weak right now- I say she will be at her house by the weekend long as she keeps heading in this dierection.
    I will be cooking too darn youbut I need to find out what shes eating at this point. I have a few things in mind already -were good. I sure hope things work out for your friend and that things continue to be ok with you.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  7. #7
    Super Moderator Top User
    Join Date
    May 2011
    Location
    UK
    Posts
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    Shiela,
    Naw no chance other behaving herself as she'll be as you say feisty getting out and about again.
    Still it's great news that she's heading in the right direction with the right frame of mind.
    Give her a hug from her UK admirer.
    KEEP COOKING.
    Cousin Margaret is definitely up for the treatment as she's bright, cheerful and told Anne let's get this over and done with.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    6 months after feeling great.
    Recent PET scan indicates no recurrence.
    12/09 Colonoscopy clear.
    Check CT scans for both CRC and for surgery. All clear
    Aortobifemoral surgery 5th May. yughh
    DEXA scan clear, Endoscopy all clear.
    CT showed "unknown" but no concern from docs.
    28/10 Thallium scan. More radioisotopes and 1 hour scan.
    Symptom recurrence, hard and painful Inguinal lymph nodes, referred back to CRC team for investigation 24/03/14
    Recurrence confirmed, but appears localised. Upcoming surgery again.

 
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