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Hi
I have been having numerous tests to find the cause of some gastro problems and change in bowel habits, I got a letter this week saying I was being urgently refered to a Haematologist as my last bloods had identified an Ig M Kappa Paraprotein, saw my GP last night and he mentioned this was usually associated with blood cancers, but this was not his field and I really needed to be refered to get a proper diagnosis....
Have already had an Endoscopy and I am having a colonoscopy tomorrow.
I don't know the full blood results or levels but all that comes up on web with the information I have is Multiple Myeloma.... What does anyone else think?
I am a 43 yr old female.
Many thanks for reading and thanks for any advice in advance
I am sorry but we are not doctors and can't help diagnose you.
It is frightening not knowing what test results will tell us.
Trying to self diagnose on the web with doctor google only tends to make us freak out more, often for no reason.
Good luck with your tests and I hope sincerely that you do not have cancer.
Aussie, age 56, Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011.
Scan Feb 2012 .still in remission.
May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.
Still NED Nov 2012. On to yearly bloods now.
Results were clear but some ducts were left behind and operation had to be repeated, the leaking has stopped sort of.. I do still get some discharge but not liquid like anymore so I'm not really concerned.
Just been not right in myself for quite a while, Have had a few results come back with varying degrees in my Kidney Function, so they have listed me as at risk of Chronic Kidney Disease, but this latest test was mainly because of Gastric Inflammation which can be quite painful and uncomfortable, I get really tired and seem to pick up all the infections going....
Maybe I just need a long hot holiday lol....
I am one of those people who would rather be prepared for the worst then anything better than that is a bonus plus I would then be prepared with what questions I would need to ask.
We know when there is something wrong with us and we have to keep pushing, as you are doing to try to find out what is wrong with us. It can be a long and daunting journey till we get some answers that satisfy us.
Aussie, age 56, Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011.
Scan Feb 2012 .still in remission.
May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.
Still NED Nov 2012. On to yearly bloods now.
Got a phone call today from the Gastro specialist who ran the tests that showed up this problem, he was just ringing to see if I had received an appointment with Haemo and how I was doing... Who said the NHS didn't care!!!!
He did just confirm these Ig M Kappa Paraprotein (not one to try typing if drunk lol) are high and could be indicating Multiple Myeloma or Mgus, so just a waiting game I suppose.
Does anyone know how long it takes from seeing the blood specialist I will get a proper answer.
Got a phone call today from the Gastro specialist who ran the tests that showed up this problem, he was just ringing to see if I had received an appointment with Haemo and how I was doing... Who said the NHS didn't care!!!!
He did just confirm these Ig M Kappa Paraprotein (not one to try typing if drunk lol) are high and could be indicating Multiple Myeloma or Mgus, so just a waiting game I suppose.
Does anyone know how long it takes from seeing the blood specialist I will get a proper answer.
Hi Flame
You will get your answer soon. Its alright no need to panic, even if by chance you have cancer this little wait will not kill you. This period of waiting for results is acknowledged around here to be the most difficult part of the journey, so many what ifs it drives you crazy.
If you think of a question for the doc remember to write them down and take the question to the doctors appointments, that way you will not forget them.
Good luck
Age 56
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission reconfirmed 1st October 2008
Remission reconfirmed 17th June 2009
Remission reconfirmed 7th June 2010
Remission reconfirmed 6th July 2011
NED on the 2/01/2013
No more scheduled visits to the Prof http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... NEVER GIVE UP
RULE NUMBER 3..... Don't forget the first 2 rules
No matter how hard you struggle and strive
You never get outta those shoes alive
Nowhere to run, nowhere to hide
All you gonna get is a ticket to ride..Will Powers 1983
I may not have gone where I intended to go, but I think I have ended up where I needed to be.
Seen haematologist today and paraprotein has gone........
Just wants to repeat blood test in 3 months to keep an eye on things but all looks good.
Will update after repeat test
Aussie, age 56, Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011.
Scan Feb 2012 .still in remission.
May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.
Still NED Nov 2012. On to yearly bloods now.
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Originally Posted by flame
