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Thread: Posting for my Dad..

  1. #1
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    Posting for my Dad..

    Hello to everyone.

    My Dad, 59, has been battling Renal cancer for a few years now. Started out with a nephrectomy and he was "Cancer free" for about 6 months or so. Later it spread to his lungs and now his entire body (Stage IV). It has destroyed his hip killing the bone, and broke his neck with a tumor on his spine (C2 vertebrae). He has gone through many different treatments (TKI's, Radiation, Chemo) and so far none of them seem to be slowing down the cancer.

    The newest problem has been a Pericardial effusion. They currently have drained the fluid around his heart and his quality of life has gone up significantly. The next issue is the Doctors (some are for this and some are against it) want to perform Pericardial sclerosis / Intrapericardial sclerosis. To help prevent this happening again. We are aware of the side effects of the treatment and the "big" deal breaker is the amount of pain this is going to cause my Dad, as we are not sure how much fight he has left in him.

    My brother and I have been searching for an answer and have been unable to find an answer (amount of pain this will cause) , so now I'm hoping to find someone who has been through this or knows someone who has to try to get some sort of answer.

    Any help would be greatly appreciated.

  2. #2
    Administrator Top User Kermica's Avatar
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    Hi Theurgist and welcome. My apologies that I didn't see your post until now but I don't drop into this Forum every day. You know the side effects of this treatment and that it has the potential to extend life for a moderate period of time. The risk of pain is there but, based on my review of the literature, does not happen all the time and is relatively uncommon (7% in the most recent study Icould fine (from 2004)) and higher in earlier studies. The procedure clearly has the potential to extend life, on average for around 90 days but much longer in some cases.

    As always in situations like this, the decision belongs to one person only and that is the patient. I hope someone who has experienced this will chime in with their experience but this is what I was able to find when I looked for answers. Good luck to you and your Dad.

    Good helath,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 63
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxin, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.

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