My husband, Bob (66 years old), was diagnosed in September with GBMIV. Had surgery to remove the tumor from his left temporal lobe. Nobody could believe Bob was sick, except for the shaved head and bandage on the side of his head.
He began his six week course of radiation and Temodar. He continued to feel pretty good for the first 3 weeks. He would go play golf afterwards, go on hikes, and walk the dogs. He was just a spectacle of good health.
On the 4th week, Bob started feeling more run down, got a bad taste in his mouth (which he still has) and feeling a bit achy. He started taking more naps than usual. When he was done with his course of radiation, he was tired, but still fought back with his positive attitude and love of life. He continued with his favorite projects and we went on lots of day trips.
Bob is about to begin his 4th round of Temodar. He is close to his 7 month mark from the time of his diagnosis. He is a happier man, more graciuos. He wants to be with family all the time. He continues with his projects.
However, he is more tired and starting to be more forgetful. He sometimes has trouble getting out words. He feels cool to the touch, which concerns me and I will bring up with our oncologist next week. He is also scheduled for his bi-monthly MRI and I pray that it will be clear once again.
I would love to hear from others about their journey with GBMIV, especially the caregivers.
Thank you and Blessings.