Hi janet and welcome. I don't think you should take a wait and see approach given your family history. Read JoePet's post on this board regarding advice to patients without a diagnosis, it should help you. Consider finding a new doctor, request a referral to a hematologist, do what is necassary to get a definitive diagnosis or peace of mind.
That's my take...good luck.
When the world says, "Give up," Hope whispers, "Try it one more time."
Follicular lymphoma diagnosed August 08, Stage 1
2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
Restaged to Stage 3 May 2010
Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
Significant progression detected in PET scan - December 2012
Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
June 2014 - started 2 year maintenance Rituxin, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much. Also found two eye lesions and have to see an ocular plastic surgeon for removal and biopsy in March. Also referred to pulmonary specialist for ongoing lung issues, possibly related to immune system problems.
Janet, with the family history, it is something that will not allow you to have peace of mind until you know. My dad and two of his sisters all perished to cancer - one aunt before I was born, which would have put her in her early 20s. I found a single node behind an ear, and went to the doctor as soon as an appointment became available. However, the vast majority of causes for reactive lymph nodes are not cancer. Yet, you do have that history. Lacking any other symptoms, it may not be anything to worry about, but you will not know until professional eyes have a look. Let us pray that it is just doing its job against some common virus.
07/08 DX PTCL - NOS, 4B >50 tumors + BMI
08/08-12/08 4 cycles CHOEP + 4 cycles GND
03/09-06/13 Clinical trial of Romidepsin. NED for 64 (28 day) cycles
07/13 Second relapse. Auto-immune symptoms
08/13 Romidepsin increased. Failed 02/14
09/14 Third relapse
10/06/14 One cycle Belinostat. Ineffective
10/13/14 AngioImmunoblastic T-Cell Lymphoma also found
10/25/14 Trial of Alisertib (MLN8237). Failed 01/05/14
01/12/15 Belinostat resumed. Failed 02/23/15
02/24/15 Pralatrexate started. Failed 04/17/15
04/09/15 Gene mapping reveals both PTCL-NOS and AITL
04/22/15 Experimental Bendamustine/Carboplatin/Etoposide (TREC) started.
"What is faith? It is that which gives substance to our hopes, which convinces us of things we cannot see"
I agree with the others, Janet. It may very well be nothing but best to make sure.
Aussie, age 58
1987 CIN 111. Cervix lasered, no further problems.
Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.
Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
Discharged Nov 2014.
Hi Janet, I have NHFL. I had swollen lymph nodes that 2 different doctors assured me were nothing to worry about, which delayed my diagnosis by 3 years, and I am stage 4 now. Several months ago my Daughter found a fairly large lymph node on her neck. I told her to tell her doctor that I have lymphoma and that she wants a biopsy, and not to let them put her off. She did and thankfully the biopsy showed no cancer. BUT a biopsy on a lymph node is not an invasive surgery, it's out-patient, and with your family history, your doctor should have no problem ordering one. As others have said, you do need to get it checked out. My Daughter's was swollen as a natural response to an infection, and yours may very well be too. Best wishes to you, and do post and let us know what you find out.
69 yr. old female, retired
Diagnosed NH Follicular Lymphoma 2/11/2011
Upgraded to Stage 4
5-6 nodes on left side of neck, 2 on right side
biopsy left neck node: grade 1-2
radiation not an option
bone marrow: positive
small tumors abdomen
currently doing W & W approach
TRUSTING IN MY AWESOME SAVIOR - DAY BY DAY
Blessed w/ loving supportive family
Grieving the loss of my Mother/best friend