Hi everybody. I'm new here and I'm looking for some insight. A little background on me since I know it will help: I'm 26/f and generally in good health. On to my problem: About a week or so ago I discovered a "lump" or "bulge" in the left side of my neck. It doesn't move, it's hard, when touched it does NOT hurt but I get an achy, sharp and stabbing pain in that side of my neck, into my shoulder and into my upper back ONLY on the left side. I have pain in my spleen that comes and goes as well. About 4 days ago while looking in the mirror (inspecting the "lump") I noticed another lump but this one isn't as big, and it's right above my collar bone, again on the left side. No pain when touched. I thought maybe it was my thyroid but I had a test done 7 months ago and it came back fine. Plus, that would mean the frotn of my neck would be swollen or I'd have a lump in the front of my neck but I don't. I have lost 5lbs in a week and I am EXHAUSTED. I mean, BEYOND exhausted. The only time I ever felt this tired was when I was pregnant and I can rest assure everyone that I am NOT pregnant. I went to the ER the other night only to be seen for a good 5 mins. The doctor felt my neck, called it a mass, told me he'd put me in for an MRI with a neck specialist the following day. I went for the MRI only to find out that the doctor I was seeing was an ear, nose and throat specialist. He didn't do an MRI, not any blood work, just a camera down my nose to check out the back of my throat. He called what he THINKS I have "Lymphenditis". I have no signs of an infection. He put me on Clyndamayin but I can't take it because it makes me very, very sick. He told me to come back in 2 weeks and he'd do a CT scan and bloods. I don't wanna wait so I'm off to another hospital tonight. I'm just curious what this lump or lumps could be. If anyone can help that would be great. Thanks!!
Keep going to doctors until you get a diagnosis. That's about it. J
May The Odds Be Ever In Your Favour. Born 1960. Diagnosed 4/2011 with one tumor, LUL, NSCLC. Tumor size 1.1 inches. Thoracic surgery 6/1/2011. No action taken. Eight weeks of radiation and chemo. Carbo and Taxol. Follow up with four rounds of Carbo and Alimta.
December 2011 CT scan shows all clear.
April 2012 CT scan shows all clear. July 2012 had several x-rays taken at the chiropractor for shoulder pain. Took them to the onc and nothing suspicious noted. See them again in Oct.
October didn't work out. Pain in the left shoulder continued to worsen and lymph nodes in the supraclavical swelled so I called the onc and they bumped the regular scan up to September 19 and we went for the results on the 24th. The tumor is back and the spread is extensive. Option 1: Try targeting chemos that may work and then on to clinical trials. These would give me about a year or so if the cancer responds. Option 2: Do no treatment and let nature take its course. This will give me six months give or take. As good as I feel right now, Iím going for door #2 and will continue to live well and enjoy myself until I donít. Iíll keep you posted. Live it up everyone!
7 months into hospice and palliative care. It has been a very good relationship with the organization as a whole with a minor glitch. April 2013 spent the night at hospice facility, PICC line inserted for morphine drip. I said I wouldnít but, had a hospital bed delivered. Started 10 rounds of palliative radiation to shrink the neck tumor. Busy month for me!
I've taken a couple of nasty falls this last week. (first of & mid-May) Right on the cancer shoulder. So I have a life alert necklace on me now. I wish I could get my hands on a small scooter!
There is another node swelling on the other side of my neck. Still small.
April51's (Jody) daughter posted that her Mother's journey in this world had ended on July 8th 2013.You touched so very many lives. Soar high Jody!
Aussie, age 58
1987 CIN 111. Cervix lasered, no further problems.
Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.
Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
Discharged Nov 2014.
Sounds like the doc's in the right ballpark looking at your lymph nodes. But their job is to swell up and get busy when you're sick, so don't presume cancer. Good to hear you're trying another hospital. Sounds like you don't have a regular doctor? Whether or not your current problem is serious, it is your wakeup call to find a good GP who will get to know you and be able to navigate your health ups and downs efficiently.
Dxed with Stage IB2 cervical cancer by one doctor and IVB by another in 10/11. Finished six weeks of pelvic chemorad in 12/11. Lung tumor found in 10/11 dxed as IB NSCLC in 8/12. Dec. '12 scan showed clear pelvis, no growth in lung tumor and new activity in remote lymph nodes. Is it a Stage I and a Stage IV, three Stage Is, or a cured cancer with something benign going on? Lost interest and went off the reservation after a year of unsuccessfully fighting for a good biopsy.