Hi there, I am a 27 yr old otherwise healthy female who has been going through a lot of medical issues in the past 14 months. It started with light blood in my urine (visible) with no accompanying bladder pain. That came and went for 4 months or so until I started feeling a very painful burn in my bladder that would wake me up in the middle of the night, and subsequently I would have a bladder full of bright red blood. This is intermittent, it comes and goes frequently and I have had many, many urine tests, cultures etc for stones and infections and they all c ome back negative. Ultrasounds, a CT scan and bladder cystoscope in May showed nothing abnormal. I've also been dealing with major pelvic and ovary pain which is thought to be deep endometriosis for which I am having a laparoscopy done on Feb 8.
The urinary problems have increased in frequency and pain, I now also urinate clots of blood as well as a steady stream during each "episode" and my latest kidney ultrasound ( 1 month ago) shows hydronephrosis of the left kidney due to a partially blocked ureter. My urologist doesn't believe it is endometriosis, he thinks I possibly have tumour blocking my left ureter causing the bleeding and the nephrotic Kidney and accompanying kidney pain. He ordered a 3-day sample for a urine cytology to check for cancer...and also he's scheduled me for a bilateral retrograde ureteropyelogram under general anesthetic. He will also place stents in both kidneys to help with urine flow due to the risk of swelling during such an invasive procedure.