A website for discussions about any type of cancer, including lung cancer, breast cancer, prostate cancer, laryngeal cancer, leukemia, lymphoma, multiple myeloma and others
Orly I'm so sorry for your loss you will be in my thoughts and prayers......I'm at a loss don't know what to say except to send lots of {{ Hugs }}
Oct 9,2012 Hubby's ( 65 ) ERCP, Stent put in also told might be cancer
Oct 23,2012 ( ERCP ) diagnosed. PC on head of pancreas.
Nov. 5,2012 Whipple at Loma Linda Hosp.... could not be finished due to heart issues
( 4 1/2 hours into surgery )told it's also attached to Portal Vein, now only Chemo & Radiation
11-27-12 Surgery site Infection
Waiting for Chemo/Radiation
1-6-13...Still waiting
1-18-13 appt with Radiologist on 22nd.
1-30-13 Hubby started on his radiation and Pill Chemo ( Xeloda 3200 mg per day ) for six weeks
3-12-13 ( Bowel blockage) in Hospital Fluid being drained
3-21-13 Last day of Chemo/radiation...Now on a much needed break
4-18-13 New Stent put in metal with mesh
4-19-13 2nd round of ( Xeloda ) 2 weeks on 1 week off till ? 4000 mg per day for 6 months
6-12-13 Large Hernia at surgery site/won't be repaired due to his heart condition
6-12-13 losing his toenails from Xeloda no sign of new nails and very raw and sore
Orly, I'm so sorry to hear this. Sending your family my sincere condolences at this very sad time.
((hugs))
Martha
Husband 51 yrs. old diagnosed May 11, 2012 StageIV PC, 7.3 cm tumour on tail of pancreas with mets to liver, lungs, caked omentum, malignant ascites.
June 2012 started Folfirinox
CT scan after 6 treatments shows cancer is stable with slight shrinkage to studding on abdominal wall.
Going for 6 more treatments then another CT.
October: oncologist says bloodwork is excellent, same as someone not having chemo!
After 12 treatments the CT shows folfirinox no longer working.
Cancer has grown and spread more in lymph nodes in chest.
Started abraxane /gemcitibine December 6th.
Bone scan on Jan 24th shows mets to bones.
No more abraxane / gemcitibine treatments
Meeting with radiation oncologist & primary oncologist Feb. 14th.
Since January been having thoracentisis for fluid around the lungs in addition to the paracentisis for ascites.
Went to Emergency Feb.12/13 due to numbness in legs. Started 1st of 5 radiation treatments for acute spinal cord compression. Also diagnosed with blood infection, iv antibiotics started and blood cultures done.
No improvement from radiation treatments. Paralyzed from waist down.
Blood cultures identify bacteria, antibiotic is correct according to infection specialist but after 10 days still septic.
Doctors meet with us and state they have no other treatment available and hubby's health is too poor for a clinical trial
Feb.24/13 come home from hospital
March 7, 2013 @ 11:55 am passed away with his loving family at his side.
"Forever In My Heart" - Derek Joseph Greene, 1961 - 2013
I'm so, so sorry to hear this. It brings tears to my eyes and your family, and especially you, are in my thoughts during this difficult time.
Many hugs to you,
Debbie
March 21, 2011 - Dad diagnosed. PC on head of pancreas.
April 2011 - Gemcitabine and radiation for a total of 12 weeks.
October 14, 2011 - Successful Whipple procedure. Cancer free! Best 5 months of my life!!!
March 2, 2012 - CT scan and discovery of possible mets to both lungs.
March 23, 2012 - Biopsy confirmed recurrence.
May 2, 2012 - Folfiri regimen started. Stopped after 2 treatments due to infection.
June 2, 2012 - Switched to Xeloda
Sept. 21, 2012 - No more chemo...treatment not working anymore. Now we wait and pray. October 6, 2012 - My dad is now at peace in Heaven, watching over us until we meet again.
♥ Forever in my heart! Miss you every day more than words can say! ♥
Orly~ My heart hurts for you. You and your dad had a wonderful relationship, it was evident in all of your postings, your concern and your final gift to give him peace from pain. You have been a good and loving son and I pray that you will be surrounded by friends and family who will hold you tight and help you grieve and heal. Sending you hugs and hoping you find peace! ♥
I'm so sorry Orly. I know how hard this has been on you and you have been very brave....
May 2012 - dad jaundice and weight loss, ultrasound sees lesion on pancreas
Summer 2012 - all tests possible, biopsies inconclusive
Nov 2012 - sees oncologist, put on gemcetabine - doesn't work
Dec 2012 - discharged under hospice care... Frail but ok...
December 2012 - Ascites
February 2013 - Now very weak..... 23rd February 2013 - Dad passes away, no more pain.....
Hi Orly, Please accept my sincere condolences. I'm so sorry.
Queensville
July 22 2011 Hubby (64) Diagnosed PanCan. Sept2011- Feb 2012: Abraxane/Gemcitabine. Feb-May 2012:Gemcitabine only. June-Sept 2012 5FU. Sept 4-no more chemo - Just living life. Multiple stents. Jan 2013/18 month mark. Mets everywhere. Looking for a bumper sticker that says 'Stay at safe distance - Driver suffering caregiver burnout'. Hospice Thurs Feb 28 2013. March 12 2013 he went off to his new adventure where we will one day meet again. It was 20 months from date of diagnosis until now.
May The Odds Be Ever In Your Favour. Born 1960. Diagnosed 4/2011 with one tumor, LUL, NSCLC. Tumor size 1.1 inches. Thoracic surgery 6/1/2011. No action taken. Eight weeks of radiation and chemo. Carbo and Taxol. Follow up with four rounds of Carbo and Alimta.
December 2011 CT scan shows all clear.
April 2012 CT scan shows all clear. July 2012 had several x-rays taken at the chiropractor for shoulder pain. Took them to the onc and nothing suspicious noted. See them again in Oct.
October didn't work out. Pain in the left shoulder continued to worsen and lymph nodes in the supraclavical swelled so I called the onc and they bumped the regular scan up to September 19 and we went for the results on the 24th. The tumor is back and the spread is extensive. Option 1: Try targeting chemos that may work and then on to clinical trials. These would give me about a year or so if the cancer responds. Option 2: Do no treatment and let nature take its course. This will give me six months give or take. As good as I feel right now, I’m going for door #2 and will continue to live well and enjoy myself until I don’t. I’ll keep you posted. Live it up everyone!
7 months into hospice and palliative care. It has been a very good relationship with the organization as a whole with a minor glitch. April 2013 spent the night at hospice facility, PICC line inserted for morphine drip. I said I wouldn’t but, had a hospital bed delivered. Started 10 rounds of palliative radiation to shrink the neck tumor. Busy month for me!
I've taken a couple of nasty falls this last week. (first of & mid-May) Right on the cancer shoulder. So I have a life alert necklace on me now. I wish I could get my hands on a small scooter!
There is another node swelling on the other side of my neck. Still small.
Aussie, age 56, Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011.
Scan Feb 2012 .still in remission.
May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.
Still NED Nov 2012. On to yearly bloods now.
Orly, I am sorry to hear about your dad. You are in my prayers. Maureen
Jan 25, 2012 Mom dx: tumor on head of pancreas and spread to nearby blood vessells - nonresectable
Feb 3, 2012 Plastic stent put in to unclog bile duct. Replaced in April with metal stent.
Feb 24-Aug 3, 2012 Gemcitabine
Aug 2012 CAT scan: no growth of tumor. Now on chemo break.
Oct 2012 CAT scan: no growth of tumor. Continue chemo break.
Jan 2013 CAT scan: showed mets to lymph node above pancreas
Feb 4, 2013 New plan: 7 wks of 5FU and Radiation
Only, I am so very sorry for your loss. What a great man and father. You had something special there. I hope that your pain will ease soon and you will be able to cherish your memories with a peaceful heart.
Lise
"May you be held in compassion; May your pain and suffering be eased; May you be at Peace"
Orly I am very sorry to hear of your Dad's passing. My heart goes out to you.
He is now at peace and no more suffering.
I know that you are in shock, but now your healing process can begin. It's a rough ride, but just let all your grief and anger out, and you will get there, just like us, that have lived this dreadful journe6 as well.
Orly I am so sorry to hear this, may your treasured memories comfort you at this time. I took the time this evening to read up on your father, wow he was awesome and has left behind a great legacy. You have every right to be so proud. Please know you are in our thoughts and prayers. We are all here for you.
Deb
49 yo female. 4/12 became jaundiced went to doc. Test revealed mass on head of pancreas.nodule on lung and one lymph node involved 5/12 chemo(Zeloda) and radiation for 5 1/2 weeks. Tumor shrank, lymph node shrank, no basic change in nodule.
Vats surgery on 7/17/12 showed nodule was in fact pancreatic cancer that has spread. Whipple no longer an option. Start iv chemo on 8/02/2012 with 5fu irinotecan and oxaliplatin.
09/11/12 stent replaced (was originally placed 04/12).
Jan 2013- scan reveals no growth or spread
Feb 2013- dropped oxaliplatin due to repeated low WBC counts so now on folfiri.
April 18th 2013- scan reveals again no growth or spread! Good news
Dear Orly I am so sorry for your loss. Sending you and your family prayers for peace and comfort..
BobbyJo
Husband Diagnosed "Borderline Resectable" pancreatic adenocarcinoma January 2012. Chemotherapy for six months. Successful Whipple August 2012 with clean margins, 3 out of 12 nodes positive. Post Whipple Chemo/Radiation for 5.5 weeks ended Dec. 2012. Currently NED, but scans every two months.
Orly My thoughts are with you you at this sad time. So very sorry, Vicki
Diagnosed March 2012 non operable Pan Can with mets to liver and adrenal glands. Otherwise quite well. Started Gemzar in April did several rounds Then had scan in July showing no good results tumour imploding and mets had advanced. xeloda tablets were started with good results first scan came back with shrinkage every where not a lot but encouraging. Dec scan showed liver mets returned and gained in size Folfox started January 8 2013 Dr proposed 4 rounds then a scan. Completed 4 rounds scan results not so good pancreas tumour stable and 2 spots on liver also ok but small increase in size of 3 liver spot and more spots forming biloma a formed in liver. doctors describe me as asymptomatic. Currently on chemo break until further notice.
I'm so sorry, Orly. ((Hugs)).
I do believe that we'll be reunited with our loved ones eventually, so it's not really goodbye, more like "see you later". But we still miss them terribly while we're apart.
Take care of yourself...
12/17/2012 Father diagnosed with 5 x 3.8 cm malignant tumor on head of pancreas
12/19/2012 Father's 80th birthday. 12/21/2012 Father hospitalized with severe abdominal pain and jaundice, pending stent
12/24/2012 Plastic bile duct stent successfully installed, biopsy taken
12/31/2012 Tumor confirmed as pancreatic adenocarcinoma
1/17/2013 Chemo (Gemcitabin/5-FU/Leucovorin) and IMRT radiation has finally begun.
Orly,
I'm so sorry for your loss. I hope that your father had as peaceful a passing as possible and that you get some peace from knowing that he knew you were there and that he was loved.
I'm very sorry to hear this news. My thoughts are with you, your family and all who called him friend. Keep his music alive Orly.....
This dark night shall end and the sun will rise again...
Believe
- Dad diagnosed in 1992 with primary bladder cancer
- bladder removed and new one made from resected intestine
- chemotherapy regimen started
- mets to large intestines discovered in 1993...more chemo...tumors disappearing
- complained of neck pain Dec 1994. Mets to brainstem confirmed
- passed away Feb 24, 1995
I googled your Dad's name. Wow!!! It looks like he was an amazing composer. When I get time and I am alone I would like to listen to his music.
Your Dad has certainly left a legacy behind for his family. Something to be very, very proud of. I know it's no consolation, but you can immerse yourself in his music when you miss him, and he will be all around you.
Wishing you strength for the coming days, when you need to deal with the horrible stuff.
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May The Odds Be Ever In Your Favour. Born 1960. Diagnosed 4/2011 with one tumor, LUL, NSCLC. Tumor size 1.1 inches. Thoracic surgery 6/1/2011. No action taken. Eight weeks of radiation and chemo. Carbo and Taxol. Follow up with four rounds of Carbo and Alimta. 
Diagnosed March 2012 non operable Pan Can with mets to liver and adrenal glands. Otherwise quite well. Started Gemzar in April did several rounds Then had scan in July showing no good results tumour imploding and mets had advanced. xeloda tablets were started with good results first scan came back with shrinkage every where not a lot but encouraging. Dec scan showed liver mets returned and gained in size Folfox started January 8 2013 Dr proposed 4 rounds then a scan. Completed 4 rounds scan results not so good pancreas tumour stable and 2 spots on liver also ok but small increase in size of 3 liver spot and more spots forming biloma a formed in liver. doctors describe me as asymptomatic. Currently on chemo break until further notice.
