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Thread: Hello! Happy Monday!

  1. #1
    Senior User
    Join Date
    Jun 2012
    Location
    Washington, DC
    Posts
    347

    Hello! Happy Monday!

    Just saying "Hi!" ....the group on here has really changed since last summer it's like I don't 'know' anyone anymore.

    Anyways it's really not a happy monday - I am sitting here getting CHEMO right now until late tonight (from 7am) which sucks and I absolute HATE but I had to check in with my oncologist this morning and she is still amazed and thrilled for how well I'm doing. WOOHOO!!!

    My birthday is in a few weeks which I didn't think I'd be celebrating from how bad I was last year...YAY!

    Hope everyone is doing well and is kickin pancreatic butt!! xoxo
    www.CancerKickinGirl.com

    Fall 2011 - SO SICK. Should have seen a Dr. for diagnosis!!
    Beg. of 2012 Age 26 - Almost DEAD & diagnosed Stage 4 Metastatic Pancreatic Cancer - Spread to Liver, Lymph nodes, Stomach, Cervix, Abdomen & Bowels... VERY SEVERE CASE of PC
    8/12 - Hospitalized for a week for spleen rupture
    2/13 Chemo stable/ cysts shrunk, no growth - I'll take that
    3/13 Hospitalized for hole in fistula in colon caused by cancer. Got stent and healing!

  2. #2
    Super Moderator Top User DebbieC's Avatar
    Join Date
    Apr 2011
    Location
    New Hampshire
    Posts
    2,673
    Ashley, I know what you mean. I was saying to someone the other day that there used to just be a few of us regulars who posted all the time. I welcome everyone here with open arms, all you newbies, I just don't know if the amount of people on the board now is a good thing. Not because we don't love you guys...I don't know if that means more pancreatic cancer!

    Wish none of us had to be here, but I'm glad that we have this place and I'm glad that you all found us here!

    I saw your picture on Facebook! LOL...I would have thought that you were getting radiation the way your "after" picture looked! You were radioactive in that one...ha ha!
    March 21, 2011 - Dad diagnosed. Pancreatic Adenocarcinoma on head of pancreas.
    April 2011 - Gemcitabine and radiation for a total of 12 weeks.
    October 14, 2011 - Successful Whipple procedure. Cancer free! Best 5 months of my life!!!
    March 2, 2012 - CT scan and discovery of possible mets to both lungs.
    March 23, 2012 - Biopsy confirmed recurrence.
    May 2, 2012 - Folfiri regimen started. Stopped after 2 treatments due to infection.
    June 2, 2012 - Switched to Xeloda
    Sept. 21, 2012 - No more chemo...treatment not working anymore. Now we wait and pray.
    October 6, 2012 - My dad is now at peace in Heaven, watching over us until we meet again.

    ♥ Forever in my heart! Miss you every day more than words can say! ♥

  3. #3
    Senior User
    Join Date
    Dec 2012
    Location
    Calgary, Alberta
    Posts
    110
    WOOHOO!!!!! I finally caught up on your story, and even though I don't know you... I'm so bloody proud of you!!! Kick some ass Ashley!!!! You're a fuckin rockstar!!! xoxoxox

    Best,
    Elle

  4. #4
    Top User Carol Wal's Avatar
    Join Date
    Nov 2012
    Location
    High Desert of California
    Posts
    1,204
    I love looking at your blog in your signature it always brings a smile to me you really know how to LIVE......You keep fighting and we are all in the Ring to kick CANCER'S BUTT..............
    Oct 9,2012 Hubby's ( 65 ) ERCP, Stent put in also told might be cancer
    Oct 23,2012 ( ERCP ) diagnosed. PC on head of pancreas.
    Nov. 5,2012 Whipple at Loma Linda Hosp.... could not be finished due to heart issues
    ( 4 1/2 hours into surgery )told it's also attached to Portal Vein, now only Chemo & Radiation

    1-30-13 Hubby started on his radiation and Pill Chemo ( Xeloda 3200 mg per day ) for six weeks
    3-12-13 ( Bowel blockage) in Hospital Fluid being drained
    4-18-13 New Stent put in metal with mesh
    4-19-13 2nd round of ( Xeloda ) 2 weeks on 1 week off till ? 4000 mg per day for 6 months ( changed to 3000 )
    6-12-13 Large Hernia at surgery site/won't be repaired due to his heart condition also losing toenails ( Xeloda )
    8-9-13 Taken off all Chemo just Living Life now and Keeping him Pain Free "In God's Hands"
    REMISSION NOW PRAYING IT WILL LAST 1-10-14
    3-12-15 Cancer is Back..Now in Hospice 4-10-15
    Passed on to Heaven 4-30-2015 Till you Hold me again...XOXO

  5. #5
    Senior User
    Join Date
    Jun 2012
    Location
    Washington, DC
    Posts
    347
    Hi Debbie - Yeah it just seems like before there were regulars and not as many and you could keep up and now I can't remember who has what or whats going on and some people post one intro and that's it. I don't find it a good thing because of those reasons and like you said, seems like possibly more being diagnosed.

    HAHAHA!! You saw the pic! I had to make a laugh about it! soooo funny!!!!
    www.CancerKickinGirl.com

    Fall 2011 - SO SICK. Should have seen a Dr. for diagnosis!!
    Beg. of 2012 Age 26 - Almost DEAD & diagnosed Stage 4 Metastatic Pancreatic Cancer - Spread to Liver, Lymph nodes, Stomach, Cervix, Abdomen & Bowels... VERY SEVERE CASE of PC
    8/12 - Hospitalized for a week for spleen rupture
    2/13 Chemo stable/ cysts shrunk, no growth - I'll take that
    3/13 Hospitalized for hole in fistula in colon caused by cancer. Got stent and healing!

  6. #6
    Experienced User
    Join Date
    Jul 2012
    Posts
    99
    AshleyMarie, you are a true pancreatic cancer warrior. Keep up the good fight for everyone and of course, yourself. I am very happy that you are kicking some PC butt.

  7. #7
    Senior User
    Join Date
    Jun 2012
    Location
    United Kingdom
    Posts
    415
    I have been wondering same thing if the amount of people on the forum now means more PC or is it just we have a fab forum? I looked at posts, of other boards, cervical, brain, etc... Not nearly as any posts as us, how can they justify underfunding this cancer. I'm going to write a VERY long letter to my department of health.
    May 2012 - dad jaundice and weight loss, ultrasound sees lesion on pancreas
    Summer 2012 - all tests possible, biopsies inconclusive
    Nov 2012 - sees oncologist, put on gemcetabine - doesn't work
    Dec 2012 - discharged under hospice care... Frail but ok...
    December 2012 - Ascites
    February 2013 - Now very weak.....
    23rd February 2013 - Dad passes away, no more pain.....

  8. #8
    Senior User
    Join Date
    Jun 2012
    Location
    Washington, DC
    Posts
    347
    ElleM - haha! You are awesome!! Thank you soooo so much!!!! xoxox

    Carol - thank you! Thats what its all about and I like to live life Cancer can kiss it! xoxo

    daughter12 - Thank you, I do truly appreciate that! I sure will keep it up

    Susy100 - yea! I have looked before at others and they are pretty quiet and such and it seems pancreatic had a lot of talk and affects great people with big voices so we should be able to be heard and get the funding required! Yes! Write that letter! I need to do some more writing this weekend when I am good again, we deserve to be heard
    www.CancerKickinGirl.com

    Fall 2011 - SO SICK. Should have seen a Dr. for diagnosis!!
    Beg. of 2012 Age 26 - Almost DEAD & diagnosed Stage 4 Metastatic Pancreatic Cancer - Spread to Liver, Lymph nodes, Stomach, Cervix, Abdomen & Bowels... VERY SEVERE CASE of PC
    8/12 - Hospitalized for a week for spleen rupture
    2/13 Chemo stable/ cysts shrunk, no growth - I'll take that
    3/13 Hospitalized for hole in fistula in colon caused by cancer. Got stent and healing!

  9. #9
    Top User Carol Wal's Avatar
    Join Date
    Nov 2012
    Location
    High Desert of California
    Posts
    1,204
    "Susy100 - yea! I have looked before at others and they are pretty quiet and such and it seems pancreatic had a lot of talk and affects great people with big voices so we should be able to be heard and get the funding required! Yes! Write that letter! I need to do some more writing this weekend when I am good again, we deserve to be heard "

    Oct 9,2012 Hubby's ( 65 ) ERCP, Stent put in also told might be cancer
    Oct 23,2012 ( ERCP ) diagnosed. PC on head of pancreas.
    Nov. 5,2012 Whipple at Loma Linda Hosp.... could not be finished due to heart issues
    ( 4 1/2 hours into surgery )told it's also attached to Portal Vein, now only Chemo & Radiation

    1-30-13 Hubby started on his radiation and Pill Chemo ( Xeloda 3200 mg per day ) for six weeks
    3-12-13 ( Bowel blockage) in Hospital Fluid being drained
    4-18-13 New Stent put in metal with mesh
    4-19-13 2nd round of ( Xeloda ) 2 weeks on 1 week off till ? 4000 mg per day for 6 months ( changed to 3000 )
    6-12-13 Large Hernia at surgery site/won't be repaired due to his heart condition also losing toenails ( Xeloda )
    8-9-13 Taken off all Chemo just Living Life now and Keeping him Pain Free "In God's Hands"
    REMISSION NOW PRAYING IT WILL LAST 1-10-14
    3-12-15 Cancer is Back..Now in Hospice 4-10-15
    Passed on to Heaven 4-30-2015 Till you Hold me again...XOXO

  10. #10
    Senior User
    Join Date
    Jun 2012
    Location
    United Kingdom
    Posts
    415
    Yes I will, i don't know what's its like in USA but in UK pancreatic cancer=book your funeral. Disgusting... It's the NHS constrictions, they are unwilling to fund cases and waste their time... I won't say anymore...I feel my blood boiling....
    May 2012 - dad jaundice and weight loss, ultrasound sees lesion on pancreas
    Summer 2012 - all tests possible, biopsies inconclusive
    Nov 2012 - sees oncologist, put on gemcetabine - doesn't work
    Dec 2012 - discharged under hospice care... Frail but ok...
    December 2012 - Ascites
    February 2013 - Now very weak.....
    23rd February 2013 - Dad passes away, no more pain.....

 

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