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Thread: Glioblastoma multiforme survival stats

  1. #1
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    Glioblastoma multiforme survival stats

    I know someone who was diagnosed with a GBM recently. The prognosis is not good. I have been doing some research online to try and find some information to give some hope, but instead I am getting the impression that this is a very bad kind of cancer. Does anyone survive this? How many live 5 years? 10 years? The doctor has recommended Temodar (sp?) chemotherapy and radiation. Are there any new or better treatments available if this doesn't work? Thanks for any info you can provide.

  2. #2
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    Hello

    Unfortunately GBM has a long history of unfruitful studies, and very little improvement in prognosis over several years. The treatment that was recommended is the standard of care, and there is nothing better currently available...

    The 2 year survival rate is about 9%, 5 year: 3% and 10 years around 1.7%. The big problem with glioblastoma is the aggressiveness of the tumor, and the difficulty of drug penetrating the brain tissue.

    best regards,
    Leo
    Leonardo F - Webmaster Cancer Forums
    Disclaimer: this information is for informational purposes only. It is not medical advice.

  3. #3
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    Thank you for the information. Even though it is not what we wanted to hear, it helps to know. This is a wonderful site for cancer patients. If there is anybody on this site who is in the 1.7% who made it to 10 years or know someone who has survived GBM, please post and let us know what treatment you received and how you are doing. Thanks.

  4. #4
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    Ben W 10 yr survivor web page

    Lorelei, Hi go here for info...http://www.virtualtrials.com/surviveben.cfm
    May you and your family receive the support and information you need in this
    journey. Fred

    Quote Originally Posted by Lorelei
    Thank you for the information. Even though it is not what we wanted to hear, it helps to know. This is a wonderful site for cancer patients. If there is anybody on this site who is in the 1.7% who made it to 10 years or know someone who has survived GBM, please post and let us know what treatment you received and how you are doing. Thanks.
    b/o Bob 58yo
    dx 10 06 04
    GBM 4

  5. #5
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    HI Lorelei,

    I just happen to come across your post as I was logging into the breast cancer board. I just wanted to let you know about the American Cancer Society site. I know of two people on the brain cancer discussion board with gbm both of whom were dx at about the same time and live almost in the same area. Both men in their early 50's were dx in early 2003 (i think). Anyway I highly suggest going to that site as there are a lot of posts in the brain cancer board. Also there is a live chat there too!
    I am afraid what Leo says is holding pretty true for GBM patients, its very sad.
    Good Luck,
    kristen

  6. #6
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    Fred and Kristen, thanks to both of you for these excellent links. I will go check them out. My friend has since opted not to do any trials and instead go for quality of life rather than quantity at this point. I am supporting this in every way I can. Our new motto is: No day but this day.

  7. #7
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    Glioblastoma

    My father was recently (Dec. 22,04) dignosed with a brain tumor, at this point the doctors are suggesting radiation therapy. Does anyone know how well this therapy works? The doctors are still not sure if the cancer has came from any other part of his body, does anyone know what the likelyhood of it starting some where else and spreading to the brain?

  8. #8
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    re: radiation to brain

    dolittle: whether rt will work from your dad's brain tumor depends on the diagnosis. if the disease is a mets from another organ (e.g., lung), radiation will provide palliation. if it is a GBM or other primary brain tumor, radiation only helps the symptoms too unless a special type of radiotherapy, stereotactic radiosurgery, is used.
    you should talk to your dad's doctor to find out the diagnosis and th purpose of the treatment first. his radiation oncologist should have all info you need to know.

    Let us know if you have further questions. You can also visit:
    http://www.thecancer.info/brain/index.asp for more info on brain tumors.

    Regards,

    J. Jay Lu, M.D.
    Diplomate, American Board of Radiology (Radiation Oncoogy)

  9. #9
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    So am I to understand that the rt treatment will not work on this tumor? According to his doctors it will shrink the tumor. They have also recently found a mass in the chest, and are considering kemo. What do you think?

  10. #10
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    Dolittle,

    Radiation therapy can work. What he is saying is that it works better in metastatic tumors of the brain. Unfortunately, there are no guarantess that it will work.

    best regards,
    Leo
    Leonardo F - Webmaster Cancer Forums
    Disclaimer: this information is for informational purposes only. It is not medical advice.

 

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