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Thread: Spleen pain relief?

  1. #1
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    Spleen pain relief?

    I'm new, Yay me!

    My doctor tells me the pain I'm having on my left side is from an enlarged spleen, which is apparently typical. It's not always bad, just enough to make me miserable sometimes, especially when my shoulder and neck are bothering me as well. It does start to really bother me towards the end of my work day. Does anyone have a sitting position or a solution to kind of keep the pain at bay? I know when I sleep on my back it doesn't bother me, but when I sleep on my sides it does, so I'm hoping there is some special way to sit or a cushion I could use in my chair. Thanks to all.

  2. #2
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    Isn't the enlarged spleen the cause of your shoulder and neck pain? Is the shoulder pain on the left side as well?
    Age 60, married, 4 children and living in the Netherlands.
    First noticed swollen node and tonsil left side in my neck in April 2011, went through the whole protocol and was sent into the woods with dx Mono in July 2011, CT-scan only showed swollen nodes in my neck, so must have been an early stage.
    Dx Angioimmunoblastic T-Cell Lymphoma (AITL) December 2012, stage III, no B-symptoms, just swollen nodes and a terrible itch all over my body without any rash.
    Supposed to start CHOP, BEAM, auto SCT in February 2013, but nodes shrunk/disappeared spontaneously so I postponed it.
    April/May 2013 swollen nodes came back, no itch this time, still feeling ok, bloodwork ok, still no B-symptoms but started CHOP May 29th 2013 anyway (after taking a deep breath and hoping for the best).
    Finished CHOP August 7th and went into hospital for BEAM+SCT on September 25. SCT on October 3 and 4.
    They let me go last Friday the 18th of October.

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    Yes, shoulder pain on the left side. I also have a lymph node pressing on my artery and jugular and my trachea which makes me feel like I'm going to vomit almost constantly. When they are all three going I'm miserable. The spleen pain has been steadily becoming worse, I was taking aleve but it's not working anymore. I started taking 600 mg motrin last night and its helping right now. I was able to sleep without setting it off when I would accidentally roll on one of my sides. It just feels like there's a tickle of some kind right now. I was told that the pain will get worse, I'm trying to avoid taking narcotics as long as possible.

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    The shoulder pain is from the enlarged lymph nodes along my collar bone, not from my spleen, I mean as far as I know. The mass on my chest above my heart has just started ah I don't know pinging or twinging a little. I hate feeling anything at all, it causes me to have panic attacks. I was told to take Xanax when that happens, but I'm so fatigued already that when I pop a Xanax I feel like all I can do is move in slow motion like I'm in a fog and sleep. I can't stand that either.

  5. #5
    Administrator Top User ChemoMan's Avatar
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    Quote Originally Posted by makel View Post
    I'm new, Yay me!

    My doctor tells me the pain I'm having on my left side is from an enlarged spleen, which is apparently typical. It's not always bad, just enough to make me miserable sometimes, especially when my shoulder and neck are bothering me as well. It does start to really bother me towards the end of my work day. Does anyone have a sitting position or a solution to kind of keep the pain at bay? I know when I sleep on my back it doesn't bother me, but when I sleep on my sides it does, so I'm hoping there is some special way to sit or a cushion I could use in my chair. Thanks to all.
    Makel what sort of Lymphoma do you have and what treatment, if any, are you getting?? We are sort of bumbling around in the dark here.

    Thanks
    Age 57
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

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    Quote Originally Posted by ChemoMan View Post
    Makel what sort of Lymphoma do you have and what treatment, if any, are you getting?? We are sort of bumbling around in the dark here.

    Thanks
    I don't know yet, I get to schedule an appointment with the oncologist finally first thing in the morning. I've had several doctors look at my ultrasound and ct scans and apparently between those and my other issues it's flat out obvious, I dunno I was really hoping I just had an infection and they would give me an anitbiotic. Being told more than once that the biopsy isn't to see if I have lymphoma but that it is only to figure out exactly which type more than once has been a little depressing. Apparently there was some debate if the oncologist or a pulmonary specialist should do the first biopsy, so I've had to wait a few more days again. I keep thinking that I should have some kind of hope, but that was dashed when a family friend that is a doctor as well just looked at my stuff as a favor for my aunt and said the same thing again this week.

    I thought the pain in my side was kidney pain, I thought it was because I wasn't drinking enough water and I was dehydrating myself from my workouts. I had no idea it was my spleen, I don't even know what that thing is. This pain has been bugging me on and off since last August, but until recently it really hasn't been an issue. I'm trying to stay positive, but in the last 6 weeks I can't explain how much things have changed, especially the last two.

    The pain in my side is becoming worse, I had to take lots of motrin this weekend to deal with it. I think I over did it yesterday with walking around in the sun. My doctor doesn't work fridays, and when I saw her last Wednesday it wasn't that bad, so her receptionists response was to just go to the ER if it got bad. That seems like a waste of money, especially when I look at how my copays have added up this last month. I'll call first thing in the morning today and beg the oncologist to work me in as soon as possible, even if that means waiting for several hours.

    I tried doing the google thing, you know looking up and comparing symptoms. I decided that google is evil and I won't do it anymore. I'll just leave it up to the professionals.

  7. #7
    Administrator Top User Didee's Avatar
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    Hello. Good luck with the biopsy and a PET scan as well as a bone marrow biopsy will be in your future if the biopsy confirms Lymphoma. The good news is that once treatment is started the masses do shrink quickly in most cases. Maybe it would be an idea to stop the workouts?
    I would take tablets if it was that bad but then, I am a sook.
    Ask to see someone quickly and tell them about your pain when you phone them.
    Please keep us updated as to how you go.

    Good luck and best wishes.
    Aussie, age 57
    1987 CIN 111. Cervix lasered, no further problems.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011.
    Scan Feb 2012 .still in remission.
    Still NED Nov 2012. On to yearly bloods now.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.

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    Quote Originally Posted by Didee View Post
    Hello. Good luck with the biopsy and a PET scan as well as a bone marrow biopsy will be in your future if the biopsy confirms Lymphoma. The good news is that once treatment is started the masses do shrink quickly in most cases. Maybe it would be an idea to stop the workouts?
    I would take tablets if it was that bad but then, I am a sook.
    Ask to see someone quickly and tell them about your pain when you phone them.
    Please keep us updated as to how you go.

    Good luck and best wishes.
    Thankyou.
    The appointment was finally scheduled today, I have to wait until the 14th. That seems like an eternity. I hope they can work me in sooner, I'm waiting on a call back from them on that. I've greatly reduced the workouts, well I was basically forced to, I've been to tired to do much else. Instead of running 6 or 9 miles I'm only jogging for 30 minutes, pretty much the same for all the other workouts I do. Kind of frustrating.

  9. #9
    Administrator Top User ChemoMan's Avatar
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    Quote Originally Posted by makel View Post
    Thankyou.
    The appointment was finally scheduled today, I have to wait until the 14th. That seems like an eternity. I hope they can work me in sooner, I'm waiting on a call back from them on that. I've greatly reduced the workouts, well I was basically forced to, I've been to tired to do much else. Instead of running 6 or 9 miles I'm only jogging for 30 minutes, pretty much the same for all the other workouts I do. Kind of frustrating.
    Great that you are working out. Keep it up and do as much as you can tolerate. It will help with chemo side effects and reduce the chance of relapse and aid with your recovery. Don't worry about the spleen pain that will dissapear most probably in the first week of treament.

    Good Luck and keep us in the loop if you can manage it .
    Age 57
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  10. #10
    Administrator Top User Didee's Avatar
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    I understand how it feels like an eternity for the wait but Lymphoma is rarely an emergency and really makes no difference. Hang in there..we know exactly how you are feeling.
    Aussie, age 57
    1987 CIN 111. Cervix lasered, no further problems.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011.
    Scan Feb 2012 .still in remission.
    Still NED Nov 2012. On to yearly bloods now.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma. A lump in otherwords, nodule if you wish to be specific.

    CancerForums User Policy

    http://www.cancerforums.net/threads/...picture-policy

    Out of all the things I have lost, I miss my mind the most.

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    Thanks, it's good to hear that about the spleen pain. It woke me up today.

    I've resigned myself to be patient. The spleen pain has been going on for about a year and the itching has been going on for over a year and a half now, I thought it was an allergy of some kind. So you're probably right, another week or two isn't going to kill me.

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    Appointment day is finally here. I've got mixed feelings. Probably much won't occur, I suppose we'll see. My anxiety levels have been a yo-yoing rollercoaster this last week, and I'm completely exhausted. Someone told me good luck, but there is nothing good that is going to come out of this appointment, just information and what tests are going to be scheduled. I played nice and said thanks. Last night I had to take 1200mg of motrin.

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    So, the oncologist thinks it's Hodgkins and not non-hodgkins, he sent me straight over to the surgeon to have a biopsy done. They just numbed that spot and cut one of the nodes right out. Hurts more now than it did then, but it's not bad. I was told he will have the results this afternoon. I guess Hodgkins is good news, crossing fingers that his guesstimate is right. Pet scan is scheduled tuesday, hope that goes well also. Got a huge bottle of roxicet and another big bottle of lorazepam. I'm officially terrified now, but I can do this. I can do this. I can do this.

  14. #14
    Administrator Top User ChemoMan's Avatar
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    I can do this.
    yes you can
    Age 57
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

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    I'm going to whine.... They always say we'll tell you results no matter what over the phone, but that's not true. I'm not stupid either, I called today for the results, because they told me to and that I could. I just want to know if it's hodgkins or non-hodkins. I was told, oh no those take at least a week, we'll see you at your appointment after the pet scan. Then 1.5 hours ago I got a call from the other place confirming my pet scan appt. This means insurance approved it, this means they did get the pathology. Frustrated, I hate this holding pattern.

    I'm thinking of naming the second head growing out of my collarbone, so far I've got Sally and Spike Lee. Maybe Harry or Moe?

  16. #16
    Administrator Top User ChemoMan's Avatar
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    I'm thinking of naming the second head growing out of my collarbone,
    How about Zaphod, after Zaphod Beeblebrox the 2 headed president of the milky way ( Hitchhikers guide to the galaxy)
    Age 57
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  17. #17
    Administrator Top User ChemoMan's Avatar
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    Quote Originally Posted by makel View Post
    I'm going to whine.... They always say we'll tell you results no matter what over the phone, but that's not true. I'm not stupid either, I called today for the results, because they told me to and that I could. I just want to know if it's hodgkins or non-hodkins. I was told, oh no those take at least a week, we'll see you at your appointment after the pet scan. Then 1.5 hours ago I got a call from the other place confirming my pet scan appt. This means insurance approved it, this means they did get the pathology. Frustrated, I hate this holding pattern.

    I'm thinking of naming the second head growing out of my collarbone, so far I've got Sally and Spike Lee. Maybe Harry or Moe?
    Hey this waiting part is acknowledged by many of us to be the worst section of our journey not in a physical sense but a psychological sense. it won't be long and you will have a plan with a goal at the end and you will feel better
    Age 57
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011
    NED on the 2/01/2013
    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  18. #18
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    Quote Originally Posted by ChemoMan View Post
    How about Zaphod, after Zaphod Beeblebrox the 2 headed president of the milky way ( Hitchhikers guide to the galaxy)
    OH good one, I have a two friends that would get that, but no one else would.

    I keep remembering things the doctor said, I'm one of those people that notices and remembers all the little things. I wish I could just sleep till Thursday. I have the sick leave for work, but then my coworkers would have to cover, and we're short right now. My family and friends think I should take a week or two off. I hate having a conscience right now.

    How about Borg? As in, The Borg since it's a collective?

    You know what really sucks is that I have two new team kits and a crux that are collecting dust, and training for cross season just began. I was training for a marathon as well. I haven't been able to run in almost a week, can't breathe. Maybe I could try to just do a run walk thing.

 
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