I see that the son of the U.S. Vice President, Delaware Attorney General Beau Biden, has just had a biopsy of a "brain mass" at MD Anderson. Hoping for the best for him, as for everyone else in this club. Sigh.
That's the thing about cancer....pretty much equal opportunity stuff. Am likewise hoping for the best for him, and likewise all our fellow travellers on this journey.
63 yrs old
March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1 (ALK-)
3 rounds of CHOP unsuccessful.
Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Pet scans after 4th and 6th cycles showed no evidence of lymphoma.
Autologous bone marrow transplant in November of 2012.
17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
One year post transplant check-up: Still fine; NED.
18month post-translant scans, etc. All fine, save a bit of arthritis.
11/14/14: 24 month post transplant check-up--still NED. Scanziety still sucks.
5/15/15: No NED this time; reactive nodes in groin; scheduling biopsy.
Relapse confirmed/ started every 3 week brentuximab
Allo transplant tentatively scheduled for November 2015.
I secretly hoped that it isn't what it appears to be. This brain thing is not something I would wish on anyone. However, if it is it might raise awareness. I'm not sure if that helped with research when Sen. Kennedy had his tumor. I'm praying for the best.
Female ,age 73, Diagnosed Jan 2010
Primary CNS DLBCNHL
Treatment every 6 weeks with High dose MTX and Rituxan for 9 months.
Tumors shrunk and one was gone in 4 months and the larger one left some brain damage but has not become active as shown on MRI since Aug 2010.
Since 2012 monthly Rituxan
High Dose MTX and MRI every 4 months.
June 6, 2014 NED
No more chemo 6/2014
Yes, I had the same thought. Really, there wasn't a more famous politician outside the White House than Senator Kennedy, and yet his GBM didn't raise awareness.
Although on second thought, the 2009 Recovery Act did allocate funding to the Cancer Genome Project which did then publish quite a bit on GBM. That may have been related.
Hoping what Beau Biden has isn't GBM. If it is, I suppose the media will refer to it vaguely as a brain tumor without bothering to teach itself or the public anything.
(I remember that Beau Biden and his brother were both critically injured in the 1972 car accident that killed their mother and sister. That blow to the head, possibly, that everyone is asked about at diagnosis. But hopefully it's something less serious.)
I'm always frustrated when the media reports "brain cancer" as we are all so different. Maybe that is just because mine is fairly rare (unless one has AIDS) which I don't have. As I read through these posts I realize how very little I know and I have been trying to educate myself. The average person has no idea how different the cancers are and how different the treatments.
Mary, the one that always gets me is when people talk about *all* cancer as if it was one disease. (Usually in the same breath, they suggest that doctors are hiding a cure for it so that they can make money.)
Pinkcat, yes, Darren Daulton. Catcher for the Phillies. Yet another baseball player. I kind of grew up on the Biden family tragedy, because it really hit home to my mom I suppose. We were living in Delaware at the time and she was active in the 1972 campaign and had children the same age. Now-VP Joe Biden was maybe the youngest senator ever elected.... He only became old enough to serve a couple weeks after the election. Then his wife and children were in a car accident while going out to buy a Christmas tree. The two boys barely survived, and Biden took the senatorial oath of office at the pediatric intensive care unit. It was very sad.
Reading the article by NBC, they say that the results could "take weeks" to come back, which I thought was odd. Being that he was seen at MD Anderson I'd think the pathology results would come back sooner than that. They don't say much other than that he's had some behavior resulting from the mass. Hopefully it will be a lower grade tumor, but it can't hurt to receive some more national attention.
Reading the article by NBC, they say that the results could "take weeks" to come back, which I thought was odd.
Yeah, they'll probably come back within a week. Put that down to the media's total unwillingness to understand anything about brain cancer. I've yet to see a mainstream media article about brain cancer that didn't contain at least one glaring factual error or omission.
In this case, NBC News is relying on their own doctor-journalist who, unless she's a specialist in a related field, probably doesn't know as much about brain cancer as we do. So she's coming up with something general to say... biopsy sounds like it wasn't a complete removal!
(Sounds like a needle biopsy, in fact. Sounds inoperable.)
(Her employer kind of puts her in a weird position. She's expected to say wise and meaningful things when she probably knows very little about the various possible diagnoses, and nothing at all about the particular case.)
Last edited by GBMsibling; 08-23-2013 at 07:42 PM.