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Thread: Treatment for :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA

  1. #1
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    Question Treatment for :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA

    my 60 years old mom has been diagnosed with :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA and this was dine through bone marrow biopsy.She has been losing weight in the past 7 months around 8 kg and also had 3-4 times pneumonia so that was the reason she was sent to have the biopsy and was found.Also she was found anemic and in the blood tests the IGM was 10 times more than the normal.She had Ct's to the liver throat,stomac ,brests and all of the organs and nothing was seen there.Also was checked by an optometrist and nothing abnormal was found.Present time she has gained a little weight her anemy is gone so the doctors dont know what to do or how to treat her.I would like to know if there is some treatment for the diseas that can be given in this state so the cancer wont advance or even be stopped.

  2. #2
    Super Moderator Top User po18guy's Avatar
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    Welcome! Fortunately, this is an indolent (slow growing) disease. There are several treatment options, but it is notable that maximum results may not be realized until after treatment stops. This is unusual, but cancer writes the rules. Here is a link to an information sheet about Waldenstrom's:
    http://www.lymphoma.org/atf/cf/{AAF3B4E5-2C43-404C-AFE5-FD903C87B254}/LRF_FACTSHEET_WALDENSTROMS_2013.PDF
    07/08 DX PTCL-NOS, 50+ tumors + BMI
    08/08-12/08 Four cycles CHOEP14 + four cycles GND
    02/09 Relapse.
    03/09-06/13 Romidepsin. NED for 64 twenty-eight day cycles
    07/13 Relapse/Suspected Mutation.
    08/13-02/14 Romidepsin increased, but stopped due to ineffectiveness. Watch & Wait.
    09/14 Relapse. Visible cervical nodes appear within 4 days of being checked.
    10/06/14 One cycle Belinostat. Discontinued to enter clinical trial of Alisertib.
    10/25/14 Trial of Alisertib/Failed.
    01/12/15 Belinostat resumed/Failed 02/23/15
    02/24/15 Pralatrexate/Failed 04/17/15
    04/15 Genomic profiling reveals that cancer has mutated into at least two types (PTCL-NOS + AITL).
    04/22/15 TREC (Bendamustine, Etoposide, Carboplatin) started. Full response in two cycles, followed by third cycle. PET/CT both clear.
    06/15-07/15 Haploidentical transplant preparation (a lot more than it sounds like).
    07/17/15 Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 High dose Cytoxan.
    07/23-08/03/15 Blood nose dive. Zero white cells. Hospitalized two weeks.
    08/04/15 Engraftment official - released from hospital.
    08/13/15 Marrow is 100% donor cells. Platelets climbing steadily.



    "What is faith? It is that which gives substance to our hopes, which convinces us of things we cannot see"
    Hebrews 11:1

 

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