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Thread: Treatment for :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA

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    Question Treatment for :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA

    my 60 years old mom has been diagnosed with :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA and this was dine through bone marrow biopsy.She has been losing weight in the past 7 months around 8 kg and also had 3-4 times pneumonia so that was the reason she was sent to have the biopsy and was found.Also she was found anemic and in the blood tests the IGM was 10 times more than the normal.She had Ct's to the liver throat,stomac ,brests and all of the organs and nothing was seen there.Also was checked by an optometrist and nothing abnormal was found.Present time she has gained a little weight her anemy is gone so the doctors dont know what to do or how to treat her.I would like to know if there is some treatment for the diseas that can be given in this state so the cancer wont advance or even be stopped.

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    Super Moderator Top User po18guy's Avatar
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    Welcome! Fortunately, this is an indolent (slow growing) disease. There are several treatment options, but it is notable that maximum results may not be realized until after treatment stops. This is unusual, but cancer writes the rules. Here is a link to an information sheet about Waldenstrom's:
    http://www.lymphoma.org/atf/cf/{AAF3B4E5-2C43-404C-AFE5-FD903C87B254}/LRF_FACTSHEET_WALDENSTROMS_2013.PDF
    07/08 DX (AITL-like) Peripheral T-Cell Lymphoma - NOS, stage 4B. "Innumerable" (50+) tumors + Bone Marrow Involvement.
    08/08 4 cycles CHOP+Etoposide plus 4 cycles Gemcitabine+Navelbine+Doxil.
    02/09 Relapse at first post-chemo scan.
    03/09-06/13 Clinical trial of Romidepsin. NED for 64 (28 day) cycles.
    07/13 Whole bunch of stuff happens.
    08/13 "re-induction" of Romidepsin.
    03/14 - Treatment stopped - lack of response. Nodes resolve spontaneously.
    09/14 Nodes appear suddenly. Bunch more stuff happening.
    10/06/14 Infusion begun with Belinostat.
    10/13/14 Relapse confirmed. Fight resumed.

    "Now, faith is the substance of things to be hoped for, the evidence of things that are not seen" Hebrews 11:1

 
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