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Thread: Treatment for :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA

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    Question Treatment for :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA

    my 60 years old mom has been diagnosed with :LIMPHO PLASMACYTIC LYMPHOMA WALDERSTROM MICROGLOBULINEOMIA and this was dine through bone marrow biopsy.She has been losing weight in the past 7 months around 8 kg and also had 3-4 times pneumonia so that was the reason she was sent to have the biopsy and was found.Also she was found anemic and in the blood tests the IGM was 10 times more than the normal.She had Ct's to the liver throat,stomac ,brests and all of the organs and nothing was seen there.Also was checked by an optometrist and nothing abnormal was found.Present time she has gained a little weight her anemy is gone so the doctors dont know what to do or how to treat her.I would like to know if there is some treatment for the diseas that can be given in this state so the cancer wont advance or even be stopped.

  2. #2
    Super Moderator Top User po18guy's Avatar
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    Welcome! Fortunately, this is an indolent (slow growing) disease. There are several treatment options, but it is notable that maximum results may not be realized until after treatment stops. This is unusual, but cancer writes the rules. Here is a link to an information sheet about Waldenstrom's:
    http://www.lymphoma.org/atf/cf/{AAF3B4E5-2C43-404C-AFE5-FD903C87B254}/LRF_FACTSHEET_WALDENSTROMS_2013.PDF
    07/08 DX Peripheral T-Cell Lymphoma - NOS, stage 4B. >50 tumors + BMI.
    08/08-12/08 4 cycles CHOEP + 4 cycles GND.
    02/09 PET confirms relapse.
    03/09-06/13 Clinical trial of Romidepsin. NED for 64 (28 day) cycles.
    07/13 Second relapse with numerous auto-immune symptoms.
    08/13 "re-induction" of Romidepsin.
    02/14 Treatment stopped - lack of response. Nodes resolve spontaneously.
    09/14 Nodes appear suddenly.
    10/03/14 Axillary node biopsy
    10/06/14 One cycle Belinostat. Symptoms worsened.
    10/13/14 Third relapse confirmed by biopsy. Bone marrow clear. I now officially have AngioImmunoblastic T-Cell Lymphoma.
    10/25/14 Entered trial of Alisertib (MLN8237)
    11/10/14 Tumors seem to be regressing.
    Currently in my 5th treatment regimen and 11th drug.

    "What is faith? It is that which gives substance to our hopes, which convinces us of things we cannot see" Hebrews 11:1

 
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