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Thread: Too much weight gain after surgery - Why?

  1. #1
    Regular User TraceyW's Avatar
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    Thumbs down Too much weight gain after surgery - Why?

    I know this sounds petty amongst everyone elses problems on this page but just wondering if anyone can shed some light on my weight gain.
    I keep reading on here how everyone else loses so much weight post surgery because they are always on the toilet, some of them have to take supplements to stop them losing too much weight.
    Well not me.
    I am 8 weeks post surgery now and my bowel is sluggish to say the least. I have 3 or 4 doses of stool softener daily just to keep the sludge going through and not impacting for a fourth time. This is as per doctors instructions. I don't take any pain meds or chemo or radium. My bowel still isn't squeezing it's contents through. It only exits the bottom end when I put something in the top end. Surgeon says some bowels take a long time to wake up so I take my laxatives every day to keep me comfortable while I wait.
    In the 8 weeks since surgery my stomach has become huge, I literally look pregnant. eg: I have gained 4kg in the last 2 weeks even though I am eating as healthily as I can ie: yoghurt & fruit shake for brekky, crackers with tuna for lunch, chicken & some veg for tea. I am also walking on my treadmill 30 mins daily for the last 2 weeks but I'm still packing the weight on.
    Why oh why is this happening. Am I full of soft slow moving faeces? I could go and get an xray to find out but that'll cost another $54 which I really can't afford.
    I wonder what is happening and how I can sort if out.
    Anyone got any ideas.
    Diagnosed with Stage 1 bowel cancer on 12/12/13.
    CT scan showed no further incidences of cancer.
    Operated on 16/12/13 & 1 foot of descending colon removed plus most of my rectum, my gall bladder was removed with a large stone & they also removed endometriosis found during surgery.
    Discharged from hospital after 6 days later and no chemo or radium for me. Yeah
    Got myself impacted three times since discharge with first and third visit to hospitals, all treated with laxatives by doctors.
    Bowel finally started working again 8 weeks post surgery when a Chiropractor reset my digestive system.
    3 months post surgery now and using fibregel to control constant diahorrea as everything I eat gets me running
    Life is manageable again. Looking forward to being 12 months post surgery when my symptoms will be even better.
    Tip: Don't expect a fast recovery after surgery. Insides take ages to heal.

  2. #2
    Super Moderator Top User
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    Tracey,
    I'm stunned that your loading on weight so quickly it seems.
    One good thing in all this is despite your short colon you seem to be converting calories more than well, which is astounding 8 weeks post surgery and despite all the other problems you have posted you are dealing with.

    As your on a "controlled diet" I've got no idea as to why you are piling on weight.
    Maybe others can shed some light on this, but I surely can't.
    Best of luck
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    Stop grumbling Baz, your alive and kicking and too much to do in my life.
    Motto
    Do what I enjoy doing, when I want until I can't.

  3. #3
    Senior User Buzzard's Avatar
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    I know that the "10 or more pounds of fecal material clogging up your colon" peddled by the manufacturers of strong laxatives to "cleanse" your colon is a crock. So while you might have some material in there, it sounds like it is moving along, albeit more slowly than you would like. For reference, every time I have had a colonoscopy, where my insides were flushed clean as a whistle, I lost 3-4 pounds.
    We are not doctors, you really need to ask one of them. If finances are an issue, there are programs for people who need care but are struggling with the money end of it. Don't know much about how that might work in Australia, though.
    DX with Lung Carcinoid Tumor 12/04
    Double Lobectomy 3/05
    DX with Rectal Cancer 12/26/07 Merry Christmas!
    Radiation/Chemo 1/08
    Rectal Resection 3/08, permanent colostomy. Stage 2C
    More chemo 5/08
    Chemo fries bone marrow, 9 days in hospital isolation 7/08
    Recurrence confirmed in pelvic region 12/09
    Tumor radiated with Cyberknife treatment 3/10
    Recurrence/metastasis in pelvis/abdomen 11/10
    Xeloda/Avastin 12/10 to 01/13
    Progression to lungs found 1/13
    Erbitux 01/13 to 01/14
    Acute renal failure, six days in hospital, all chemo stopped for now, 11/13
    Restarted Erbitux, lower dose 12/13
    Kidney function dips again, chemo suspended again. 2/14
    New chemo regimen of low-dose Irrenotecan started 4/14.
    Sounds like a lot of fun, doesn't it?

  4. #4
    Regular User TraceyW's Avatar
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    Thanks guys,

    I'll just keep exercising, taking my laxatives so at least it is moving and trying to eat as healthily as I can within reason.

    Tracey
    Diagnosed with Stage 1 bowel cancer on 12/12/13.
    CT scan showed no further incidences of cancer.
    Operated on 16/12/13 & 1 foot of descending colon removed plus most of my rectum, my gall bladder was removed with a large stone & they also removed endometriosis found during surgery.
    Discharged from hospital after 6 days later and no chemo or radium for me. Yeah
    Got myself impacted three times since discharge with first and third visit to hospitals, all treated with laxatives by doctors.
    Bowel finally started working again 8 weeks post surgery when a Chiropractor reset my digestive system.
    3 months post surgery now and using fibregel to control constant diahorrea as everything I eat gets me running
    Life is manageable again. Looking forward to being 12 months post surgery when my symptoms will be even better.
    Tip: Don't expect a fast recovery after surgery. Insides take ages to heal.

  5. #5
    Super Moderator Top User sheila's Avatar
    Join Date
    Jul 2008
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    bethel park pa
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    Its usually once people staart the chemo treatments because they lose their appetite or have mouth sores etc that the weight starts dropping -If your going to have the chemo down the line here its better to have the weight to lose. I wouldnt be too worried as long as it isnt uncomfortable
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  6. #6
    Newbie New User
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    Oh my gosh I was always in great shape. I'm 54 years old with colon cancer and have had 4 surgeries and I have gain 15 pounds. I think from hospital stays with only IVS and no food it plays games with our System!!!

  7. #7
    Super Moderator Top User sheila's Avatar
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    Jul 2008
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    bethel park pa
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    could be alot of bloating and water weight -mom always looked heavier with Ivs and also right after operations untill her system got back in balance- I wouldnt be worrying about that.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  8. #8
    Top User DulcimerGal's Avatar
    Join Date
    Apr 2008
    Location
    Virginia
    Posts
    1,224
    TraceyW

    Just sending you sympathy vibes! I too struggle with weight gain. On my chemo regime it's the steroids that bloat me up. I never really feel nauseas a lot and when I do compazine takes care of things pretty well. My husband is always making meals and feeding me, I shouldn't complain but it's not always real healthy stuff and it's hard to say no when he goes to such trouble....so I try to eat half size portions.

    I agree with Julie, theirs something about all the surgery and meds that just change our metabolism. I even have a colostomy, so food shouldn't be staying in my system long enough for me to gain.....

    And of course then there's the fact that I just finished a chemo break and ten day cruise....only gained three pounds there but it's hard to get back off!

    Wish I could be more help, but going from from a runner who was thin to a cancer survivor who us now fifteen pounds heavier has got me beat too!

    Cheers for now
    DulcimerGal
    Rectal Cancer diagnosed Valentines Day 2008 - stage 3
    Finished 6 weeks of radiation and chemo 4/23/08
    Surgery to remove tumor - June 18th 2008
    Colostomy Reversal August 20th 2008
    Chemotherapy 5 months (Xeloda) finished Christmas 2008
    Local recurrence found May 2011
    Permanent colostomy and salvage APR surgery June 3rd 2011
    Stage 3C - 4 of 12 lymph nodes involved
    Finished 12 treatments of FOLFOX 6 - January 17th 2012 - Happy Dance!
    March 2012 - clean CAT Scan
    August 2012 - Cancer moves to stage 4
    CAT shows cancer cells implanted in pelvis/abdomen
    September - PET shows lung lesion 1.4 x 1 cm
    October - begin sessions of Folfiri.3 - Avastin, Irotecan, 5fu
    February 2013 - tumors shrinking, continuing biweekly chemo
    April 2013 finished all 12 Folfiri treatments, scan shows only lung lesions
    May - October Blessed chemo break!
    October 2013, scan shows more growth in pelvis and lungs
    Continue with biweekly Folfiri.3 - Avastin, Irotecan, leucovorin, 5fu
    April 2014 CAT scan shows tumors in liver
    June 2014 More tumor growth, stop Irinotecan cocktail after two years
    June 2014 Begin Regorafenib (Stivarga)

 
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