Hi, all. I'm New and thought i'd register, to give and recieve support and information. My Story -
I have been through alot in my 27 yrs. I had a major Car accident in 98, Broke my back, spleen, sternum, ribs etc. Was told i wouldn't be able to walk again, due to pressure on my spinal cord. BUT I did. Plus told I'd have problems with pregnancy. BUT didn't. Was a hairdresser, but had to retrain into a Beauty Therapsit. (easier on back- not much though.)
Then in 2000? I decided to be cool and adventurous :P And got my nose peiced. Then started to have nose bleeds and sore nose. Found out i had nose Cancer due to the irritation of the stud. Had it burnt off. Ouch
2002- Had a irregular pap smear and found out i had Cervical Cancer C4 (level 4), was booked in for a full hysterectomy. I was 22yrs old at the time, and was engagged to be married to my childhood sweetheart. At the last minute the specialist decided to do a full Cone biopsy. She took all cervix, glands etc. All the way to the uterus wall.
I then had to work out HOW i got this disease (Cervical, usually cause by human herpes virus (STD) , Or an infecction, but it's rare) So the husband and I had to undergo alot of embarrassing questions and test- to be told it was a dormant cell infection.
Anyway, I was told, i MAY not be able to have children, due to the extant of the cone biopsy. I wouldn't be able to 'hold' a child, and would have it very prematurely- If it would survive at all, It would have intensvie problems.
I now have a 18month old gorgeous Boy- Hunter. He was born only 4 weeks early. Perfect pregnancy, worked till 6-7 months. He was very sleepy when born and had troubles feeding, and later reflux and bowel problems, but hey, he is here!. (and still awake 3-5 times a night)
2 Years ago, i started to have a pain in my lower tummy. It came and went, on and off. I had ultrasounds etc, and nothing. So i forgot about it. (put it down to girl stuff, or digestion) Anyway, i've had this lump under my left armpit/breast. Kind of near rib. And it's sore, and tender to touch. I went to Dr and she was worried about secondery Cancer. ? I have to have it ultrasounded and maybe needle biopsy.....Any Ideas what it could be- breast/ lymphoma?
Anyway, I'm kind of sick of all the bad luck (even though i know i've had alot of good as well) "Could always be worse" i keep saying to myself. Haven't really told the husband much- as he stresses and bottles it up, and makes me worse. So i'm waiting for the treatment- if i go with it.
Anyway Thanks for listening to me vent Any advice, chat or help. Would be great. In. :P
I felt someone should reply - I haven't been through what you have been through, but I do feel for you. As to your recent problem, there is no way to diagnose on the net, but it is certainly something that needs to be looked into. Your doctor is understandably concerned with your history that you have a secondary. All I can say is go for the tests, and we will pray that it is not the big C but a B9.
Some news finally. I had heaps of test and biopsy done. (wouldn't take the lot out, Vee Smith- even after second advice) And all news is good. They "feel" that this could be a hormonal thing, or a viral thing. And i have to have it cheacked each month. It is a mass, but non-cancerus. (seruiously who knows though.)
Abit of a worry, but better than the Big C - AGAIN.
Now just regular checks and if it gets bigger or worse, i'll MAKE them remove the lot.
Wow you have certainly had your fair share , no doubt you have been to the brink many times emotionally but I'm guessing you are a very strong person after all you have been through.
Thank you for your kind words in the general forum , things are calm at the moment , funeral next week , brother in law is sleeping and optimistic.I've learnt that there is one positive about having Terminal C , you can plan your own funeral , Ang has picked Men At Work "Land down under" as the last song at the ceremony , brought a smile to our faces and also jeans and casuals only , no black ties.
My partner also had Cervical Cancer nearly four years ago , had to go through radio-therapy and luckily came through it clean , we now have a lively 2 year old boy who is our world , seems a distant memory now but was a very difficult time.3 years ago she was also involved in a car crash that has resulted in her unable to work since (she was a police officer) serious neck injury that was operated on early this year (fusion of C4 C5).Neck is a lot better now but she has limited feeling in her arms and hands due to nerve damage , many a smashed cup and plate prove that is no better!
Quite similar to yourself but no way near the bad luck you have had , so I can only imagine the stresses you and your partner have been and are going through.I know its hard but I think we all find some way of ploughing through and remaining positive.
I hope the winning lottery ticket comes your way soon but unfortunately I don't think it works like that.
Anyway Inica just thought I'd share that with you hope things finally smooth out so you can enjoy your family without the added extras!
Hi Paul- WOW looks like a mirror version of my life. I two have a son 19mths, Hunter. and he's a handful. But a blessing :P (not at 1,2,3,4,5 and 6 in the morning). He has bowel and reflux problems- but normal with a premie.
Anyway- It is true the one thing you have is planning your funeral. Love the idea of celebrating life and the songs are great! (from Australia??) Funerals should be about remebering and talking about the memories, not about darkness and mobid.
Inica, although we have "talked" with each other many times via PM, this is my first post to your story thread. Well, that is only technically correct. Soon after you posted your initial message to begin this thread, I wrote a very long reply which, fortunately or unfortunately, disappeared when I submitted it and I was just too tired or too lazy (actually, too depressed) to re-write the whole thing.
Since that time, you have become one of our most active members, reaching out to support others while at the same time facing your own cancer issues. I am highly impressed and inspired by your outlook on life! It is great to have you as a member! So few of us have experience or knowledge about cervical cancer. It might sound kind of strange, but it is great to have you with us although I am sure you would rather not need to be a part of this community. You seem to be one of those rare people who gains strength from you weakness.
I like to think I'm strong, but the truth is, I'm like everyone else. Just trying to find a tiny, winy crack in the cliff to hang on. (and if i lost some more weight, i'd have skinny fingers- it might help alot more )
But on a serious note. I love being here, and even though i'm not 'suffering' right now, i do hope any advice i give is a comfort to somoeone.
And YES Cervical Cancer is over looked. Whether beacuse it's in a little more delecate in area? OR as I have heard many times, beacuse it is a Cancer-"we have LET ourselves in contact" with. Grrrrrrrr :
Cervical Cancer is mostly , and i overstate MOSTLY caused by a STD- HPV (Human Papaloma? Virus- Herpes- wart Virus) Some other Cancer suffers or public believe we 'derserve' this. IF, this is how we got Cervial Cancer.
I was one of the unfortunate few to have abnormal cells. Caused by some infection. (irritation from a type of condom) But have talked to many others who have suffered this Cancer many ways. I was so ashamed by what i was told. How can ANY human wish this on anyone, let alone believe they ' deserve this'...... It reminds me of the age old AIDS Epidemic. no information and ingorant people.
I do believe that anyone who suffers ANY type of Cancer, would support us. and no way would 'wish' this on anyone.
I am Here for everyone/anyone, to give advice if i can. Help were needed, a ear to listen and a heart to comfort.
And without others like yourself Jim- we would not have a forum as smooth as this....so Thankyou- and All who post and reply and make this
the site it is today.
Thanks for reading ALL of my rant. lol. It is a pashionate issue for me.