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Thread: My Story - Part 3

  1. #1
    Administrator Top User brainman's Avatar
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    My Story - Part 3

    I figure I should start Part 3 although there as been no major change since August when I had my last MRI.

    Something I do not think I have told you is that after a life-long dependence on my voice being clear and strong, my voice is failing me. It started in 2005 after my surgery and has not gotten worse or better since then. I now stutter. Some days my voice is very normal... like it used to be. But some days it is very bad. Sunday was a bad day in terms of my speaking clearly. I went to church but was so embarrassed that I left as soon as the minister said "Amen". Before service so many people approached me asking how I was doing and it was almost impossible to tell them. Going to church should be an uplifting experience but I felt worn down by all the care I was receiving . I know they meant well. However, I still felt embarrassment about not speaking clearly.

    Today, I am back to normal. Go figure.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  2. #2
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    Maybe Anxiety plays a big part in it...The more you go to church- cofession. The less you'll have people wondering how you are.... :P
    Thinking of you Inica



    ~Nose Cancer~
    ~Car Accident- Broken Back, Ribs, Spleen
    Sternum~
    ~Continous Cervical Cancer~

    My Story-
    http://cancerforums.net/viewtopic.php?t=6731


    9 Lives and still kicking

  3. #3
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    There may be something that could help. Does the stuttering get worse when you are around people? If so, maybe an anti-anxiety pill may help you with some of your symptoms.

  4. #4
    Administrator Top User brainman's Avatar
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    I notice it more when I am around people because I try to avoid talking to myself .

    It might have to do with stress but I have had this stuttering problem at times of low stress as well. And I have had "good days" when I was really stressed out about something.

    It might have something to do with feeling tired. But, again, I have had times when I was really very tired and could talk normally.

    My seizures do affect my ability to speak. In fact, that is their major presentation. So I think it is just post surgical scarring... at least that is what my neurologist told me.

    Just one of those "little" things cancer has thrown my way that I have to adjust to.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  5. #5
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    hey Jim, how you doin? I ran into one of my counselors from last yr for sexual abuse survivors group; she told me on Thanksgiving day her brother announced to the family he has brain cancer. the docs found two seperate growths ( tumors duh ) on the left side of his brain. I gave her the web info for chooshope.com but couldn't remember the link for here. she's suppose to call me tonight to get it from me. will it be alright if i told her about you and maybe her family and brother could talk to you? the family is very discouraged and they really need to talk to someone who has beaten brain cancer and could give them some hope. well gotta go pick up my son from preschool. talk to you later, in my heart always, Kat
    My Story : http://cancerforums.net/viewtopic.php?t=7371
    ~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
    AND I'M STILL KICKING!!!!

  6. #6
    Administrator Top User brainman's Avatar
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    Kat, I will be glad to talk with him and help him in any way that I can. I am very sorry about his cancer and tell him about my experience too. It is highly unusual for a person to have two gliomas. Maybe they are connected... It will be interesting to talk with him. Sad, but interesting.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  7. #7
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    Thanks Jim
    My Story : http://cancerforums.net/viewtopic.php?t=7371
    ~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
    AND I'M STILL KICKING!!!!

  8. #8
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    Hang in there

    Jim, I just read your whole story here, and all the comments.

    You're amazing. And you're doing us all a huge service. I don't think anybody except another cancer patient can understand exactly what this is like. Hang in there.
    Paul
    Hairy cell leukemia, diagnosed end October 2007
    Blog: http://hcljournal.blogspot.com/

  9. #9
    Administrator Top User brainman's Avatar
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    Thank you all for your support. It helps to be able to have understanding people around... even if "around" literally means "around the world via the Internet" .
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  10. #10
    Administrator Top User brainman's Avatar
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    Just thought I would update you on my story.

    I am almost totally asymptomatic at this time. I still have noticeable right hand and arm weakness and I stutter some days. I also continue to have balance problems so I do not dare climb on a ladder even to change a light bulb :P. But now of this is a significantly different from when I had my last MRI in August 07. My next MRI is Feb 19th. That will be my next update for all of you. Thanks to all of you for your support and encouragement over these years. I wish I had started a forum like this back in 1992-3 when I really needed one :P.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

 

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