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Alex28
10-12-2013, 02:52 PM
Hello everybody,


I have some questions about symptoms of lymphoma, if anyone is kind enough to share an ideea.


My story looks like this:

On 01 January, 2013, I had a 3 day episode of very nasty night sweats, high fever and chills. Also, after a few days, tonsilitis, sore throat etc. I was put on antibiotics, the night sweats ended, but chronic tonsilitis and sore throat remained.

I did all the 'viruse' test and I am clean of any potential virus (including HIV, EBV, HCV).

Since this moment a lot of very strange things happened to me, not present before:

1. I developed a rash on the face (all the skin turned red, maculopapular lesions), a dermatologist diagnosed it as 'rosacea'. The skin turns red sometimes, and some pustules apear.

2. I developed a geographic tongue. A specialist in oral pathology told me that this a sign of a impaired imune system, a sign of a system that doesn't function well.

3. I developed a high level of monocytes (12%), and persistent raised serum calcium level (10%). I started doing blood tests since april 2013. All the other parameters are normal, except this monocytosis. LDH fine, ESR fine.

4. A strage rash appears on my palms, very tiny red points, a scale of them, non itchy, which go away after a few hours. Also, some small bruises, petaechiae like, appears sometimes under my palms.

5. Aproximately 2-3 times a day I get a strage burning red rash on different parts on my torso, especialy back of shoulders. This red irregular looking spot is burning and dissappears on its own in a matter of hours. The immunlogy specialist did all the allergy test on me and I have no allergyies. I am on antihystamines and the strage burning red spot doesn't appear. No itchying, no persistent (long lasting) rash.

6. Bone pain. Especially my long bones are painfull, legs, and in May I had a very bad episode of bone pain. Due to my high level of serum calcium (10%), the doctors told me that it's probable a deminaralization sindrome. But it's no normal to be lasting so much.

7. Lymph node pain without noticeable swealling. All the lymph node are terrible hurting, in supraclavicular areeas, armpits and groin. A stabbing like ache, terrible, but short. Sometimes I was awaken from the sleep from this stabbing like pains in the groin.

8. Lower back - right side, pain and ocassionaly right flank pain. I ding a radiography of the back, and the vertebres are somehow very close one with another. I went to a rheumatologist and did some test for arthritis and possible Behcet (because of my recurring mouth lesions). All negative. Rheumatism free.

9. The biggest problem: moderatte lymph nodes. I had one of them (aprox 1 cm) left submental node, since january. I had another 1 lymph nodes - 1 cm, in the left supraclavicular area since january and another 2-3 swollen lymph nodes in groin (since january). Until january I didn't search for swollen lymph nodes. I had several ultrasonography on these areas, and the lymph nodes have an inflamatory aspect, according to the doctors. Also, I head a CT in May 2013 which looked normal.


______________

I went to a hematologist specialist (quite an important one in my country), with clinical experience. After reviewing all the resutls from the tests, and the lymph nodes, he said to me that due to the size of the lymph nodes, despite all the symptoms, he will wait to see if the nodes swell "big enough" and he will not put me on biopsy until then.

This sounds crazy to me, because the pain is terrible and if you live under the spectre of lymphoma, you cannot make your daily life plans. It is like I am waiting for a death sentence every day, waiting for a 'big' lymph node to pop up from the supraclavicular area..


My questions to you are:


1. If anyone experienced lymph node pain, stabbing like, many months before the lymph nodes swelled in a noticeable manner. What was the biggest time period anyone experienced until the swollen of a lymphoma lymph node?


2. If it is normal to have chronic lymphoadenopathy, swollen lymph nodes, for such a long time, 10 months, even the lymph nodes are about 1 cm? The doctors I visited said it's normal to have lymph nodes for years, if they are under 1 cm.

Despite this 'in practice' medical oppinion, on the internet ALL the sources (also hematologist doctors) advise the readers to HAVE A BIOPSY if the lymph nodes stay swollen (no matter the size) for more than 2 weeks!!!!!!!!!!!!!!!!! It's incredible! If the 'only 2 week of swollen lymph nodes' theory is right, it might mean that at least 50% of all globe population has lymphoma, because a lot of people have chronic adenopaty for years, some of them all their life, without suffering from any diseases or viruses...


3. If you have lymphoma, but NOT skin lymphoma, it is common for rashes to broke up (on face, trunk, hands)? Has anyone diagonsed with lymphoma experienced come and go burning red patches on the skin (aprox. 5-10 cm in diametter)?



Thank you all![/FONT]

wings4marie
10-13-2013, 04:54 AM
Your situation sounds somewhat similar to mine. I haven't had a fever or any night sweats but the back ache you describe is very similar to mine. I developed it about 3-4 weeks ago and it's on the lower left. Left flank sometimes and hip area, somewhat goes into the region of my ovary. It is the most noticable when I am sitting. Putting pressure on the upper left buttock. The other night my husband and I were going out to dinner and the ride in the car really made it ache! What scared me is that I spoke to a woman who just got diagnosed with Hodgkins Lymphoma about 3 months ago and she described the same back pain on one side. This bothers me because I also have a slightly enlarged lymph node in the left side of my neck. Only about a cm but has been there for more than 2 weeks. I did see a primary care doctor and he palpated the node and said that "he was 90% sure that it's not lymphoma" Whatever. lol He is scheduling me some tests though. Ultrasound, sed rate tests, ct. I also have the petechia dots. I have no explanation for this and it just started right before the back pain. I was worried because I heard that leukemia patients get this because they have low platelets but I did however get a cbc test and my platelets are normal. WBC was only slightly elevated at 10.7. This is still normal though just at the higher end. So no leukemia likely. I am so stressed out over all of this because as you say the wait is devastating emotionally. Depressing. I hate hate hate uncertainty of this nature.

Also, have you been tested for lupus? How old are you? I am 28 and so the lymphoma topic is really bothering me seeing as I am at the risk with my age.


"Despite this 'in practice' medical oppinion, on the internet ALL the sources (also hematologist doctors) advise the readers to HAVE A BIOPSY if the lymph nodes stay swollen (no matter the size) for more than 2 weeks!!!!!!!!!!!!!!!!! It's incredible! If the 'only 2 week of swollen lymph nodes' theory is right, it might mean that at least 50% of all globe population has lymphoma, because a lot of people have chronic adenopaty for years, some of them all their life, without suffering from any diseases or viruses..."

While I don't think that 50 % of the population has some form of Lymphoma I will agree that it would save so much time and money(especially for us!) to just biopsy rather than procrastinating valuable time away with scans and "watching and waiting" methods. This is laziness in my opinion.

paxxy
10-14-2013, 12:46 AM
Sounds like we are all going through a similar thing.

I just posted this:


Hi,

I've been experiencing fever, night sweats, diarrhea, body aches, lost 4-5 kgs (I was quite skinny to start) over about 7 weeks now. At first fever and sweats were weekly, but now they are occurring most nights. I have had fever symptoms every night for over a week now. I started experiencing this after a bout of food poisoning. I've been seeing a doctor about it. Test results are as follows:

Iron studies: low Serum Iron, Transferrin and Transferrin saturation, high serum Ferritin. Indicating chronic illness.
Haemotology: "An occasional reactive lymphocyte."
CT scan of Chest Abdomen and Pelvis, Ultrasound of neck: "There are multiple moderately enlarged lymph nodes in the left side of the mesentery which have nonspecific appearance. There is no evidence of fluid collection or thickening of the adjacent bowel wall to account for reactive lymphadenopathy."
"Nonspecific mesentric lymphadenopathy in the abdomen. Correlation with serum inflammatory markers and full blood count is recommended, but these nodes are most likely reactive in nature"

I went to get the CT scan with searching for lymphoma as high possibility. On these results the doctor told me that lymphoma is unlikely and we are continuing to look for other possibilities and I am seeing an infectious disease specialist in a week. However I didn't ask enough questions and on re reading the CT scan report I'm not sure if Lymphoma should be ruled out so quickly.

I am 29, male, I am a light smoker, my grandmother passed away from leukemia, live in Australia.

Thank you.

I didn't realize back pain was a symptom of lymphoma as well. I went to a physio for some lower back pain issues last week. I did mention this to the doctor.

Didee
10-14-2013, 01:50 AM
Back pain is not necessarily a symptom of Lymphoma. It could be due to anything.
It sounds like you are being well taken care of. Try not to self diagnosed. Drs are trained to do this.
Good luck with your appointment.

paxxy
10-14-2013, 01:55 AM
Back pain is not necessarily a symptom of Lymphoma. It could be due to anything.
It sounds like you are being well taken care of. Try not to self diagnosed. Drs are trained to do this.
Good luck with your appointment.

Thank you,

Yeah I need to stop reading, it doesn't do anxiety any favors.

wings4marie
10-14-2013, 02:57 AM
I had posted a thread a few days back regarding the diagnostic tools for detecting lymphoma but I never asked this because it slipped my mind but I was wondering,
sedimentation rate tests and C Protein? Will these tests typically be abnormally high when cancer is present? My primary care dr. told me to have them done along with sonogram for now. I personally want an mri or ct however. But anyway, I was just curious as he said the two types of tests he ordered might detect inflammation or possible cancer.