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  1. Replies
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    I think that is a good idea. Holding back on...

    I think that is a good idea. Holding back on meds, food whatever and logging it in a book to compare effects. I have done this with food myself for migraines and it worked to figure out what foods I...
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    Hi Po, Just checking in today. I see you have...

    Hi Po,
    Just checking in today. I see you have not posted for a bit. I hope you are doing O.K and just busy with life.
    Zorro
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    So glad you are through all this. My other half...

    So glad you are through all this. My other half had the same issues with fatigue for awhile, but got better every few days. Naps are your friend. He also took gab ( however that is spelled) for...
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    Just a hello to everyone. Life is moving along....

    Just a hello to everyone. Life is moving along. We are on watch and wait and every 3 months we see the onc. Good news is he feels good and I am able to give him a honey do list. Ok, he does not like...
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    Normal substandard numbers is great!!! No bone...

    Normal substandard numbers is great!!! No bone marrow biopsy for you:) I hope this is hopeful news.
    All my best I have to give.
    Zorro
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    I like the odds much better with the transplant...

    I like the odds much better with the transplant and you choose smart. I like how you and others think it through, do your research and decide for yourself. Funny how we think we are in control of the...
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    Hi K, At least you are keeping options open. I...

    Hi K,
    At least you are keeping options open. I think that is a good idea. I can only imagine the decision making on this. Rating all the pros and cons. I am sure you will make the best choice for...
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    Oh Po, I am so sorry you have had this...

    Oh Po, I am so sorry you have had this experience. I think of you often and send my very best vibes on a weekly basis. I think you need more than that though. Stay tough, ride like you stole it. Ok,...
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    Hi Po, How is the prednisone treating you these...

    Hi Po,
    How is the prednisone treating you these days? I do hope you skin and itch have subsiding. I will say this though, you are the master of the silver lining, that must be a challenge at times....
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    Hi K, Checking in and it sounds as well as it...

    Hi K,
    Checking in and it sounds as well as it can. Hubby lost some toenails during rchop and they grew back just like his hair. Infection is always the number one concern.i hope the scan went well...
  11. Hello, I just wanted to share what my other half...

    Hello,
    I just wanted to share what my other half did to keep nausea away. Not that I am telling you to do this, but to ask your doctor. He took zofran and three hrs later compozine. The combo is...
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    Hello, So scan came back. I would never think...

    Hello,
    So scan came back. I would never think that one of my favorite words would be "unremarkable" yep, that is what he is. So we are doing good and hanging strong. We are " unremarkable"
    Zorro
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    I am glad to hear you are active And handling...

    I am glad to hear you are active And handling treatment well. My other half had lost weight before treatment due to Dlbc and lost more through treatment. They based his treatment on his white cell...
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    It must be so nice to have that port gone. I...

    It must be so nice to have that port gone. I wonder if you are at a record or close to one for having it. I saw the storms on YouTube, wow. Tornadoes in Washington. I am sure you relieved to have the...
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    What a nice post. Someone told me that the...

    What a nice post. Someone told me that the anxious mood before and after the scan is called "scanxiety" so perfect of a word. Enjoy Christmas and may the new year to come be full of health.
    Zorro
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    Just a hello and update on things. We go to get a...

    Just a hello and update on things. We go to get a cat scan next week to see how the organs are doing with fll. Not staged yet. It is odd to be on a wait and see kind of thing. Instints want to...
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    Happy to hear your treatment is going as well as...

    Happy to hear your treatment is going as well as possible. Slow is good.There is so much to be thankful for, little things really matter.
    Stay positive and strong and take one day at a time. Or an...
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    Checking in and hoping you are doing well with...

    Checking in and hoping you are doing well with meds. It took me a moment to figure out F/U meant follow up appt. uhmmm, you don't want to know what I thought at first.
    All my best as always
    Zorro
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    Hang in there. I do want to recommend something...

    Hang in there. I do want to recommend something for a mouth rinse, but I cannot rember exactly what it was. Baking soda and salt I believe. You want to keep mouth sore away. Do this 3 times a day no...
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    Hi, I say buy a cake and celebrate anything you...

    Hi, I say buy a cake and celebrate anything you want. A sunny day, life, laughter, new shoes, remission, or just anything deserves cake:) I say don't wait, just do it.
    Zorro
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    Wow, I am not surprised. I moved away from CVS...

    Wow, I am not surprised. I moved away from CVS and have the fear of ever going back to them. They will scrutinize everything. At one time they threaten to stop all medications to husband if I filled...
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    Songs do have a way of changing in meaning as...

    Songs do have a way of changing in meaning as life goes on. As it says in the song "keep on rolling"
    Zorro
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    Hi Kermica, I kept ahead of the nausea for my...

    Hi Kermica,
    I kept ahead of the nausea for my husband. He took a combo of composzine and three hours later zofran. It seemed to do the trick. As for neuropathy, just get some good inserts....
  24. Thread: Transplant time

    by zorro
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    Loved hearing about your running. Husband says...

    Loved hearing about your running. Husband says you shame him, he is proud of his 5 miles and also has neoropthy. Power on!!!!
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    Hi K, checking in and reading your updates. You...

    Hi K, checking in and reading your updates. You are in my thoughts.
    Zorro
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