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  1. Thread: not great MRI

    by mccindy
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    2,512

    How did things go, Nikos? Iím sure you are in...

    How did things go, Nikos? Iím sure you are in recovery mode. Thinking of you.
  2. Iím so sorry to hear of the position you find...

    Iím so sorry to hear of the position you find yourself in currently. It does sound as if youíve found the last 20 years to be more than what you expected at the start. Iím sure itís been a very...
  3. It sounds both trying and amazing. Can I ask what...

    It sounds both trying and amazing. Can I ask what grade and type of tumor you have?
  4. Thread: not great MRI

    by mccindy
    Replies
    16
    Views
    2,512

    Nikos, I will be thinking of you on the 22nd....

    Nikos, I will be thinking of you on the 22nd. Hoping that they get all of the regrowth again. Best doctor, best system, best hopes. All our love!
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    Iím so sorry. Iíve heard itís pretty rough going...

    Iím so sorry. Iíve heard itís pretty rough going through the radiation. The break hopefully will get you feeling a little better before chemo starts again. It is so unfortunate that the chemo for us...
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    How do you feel? I hope it went fairly well for...

    How do you feel? I hope it went fairly well for you. I have a friend on the chemo and she says itís kind of rough. I hope itís smoother for you.
  7. Thread: not great MRI

    by mccindy
    Replies
    16
    Views
    2,512

    Will be keeping you in my thoughts Nikos. All...

    Will be keeping you in my thoughts Nikos. All hopes that it isnít a recurrence.
  8. Thread: Second surgery

    by mccindy
    Replies
    1
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    1,227

    Hello Oregon girl! Iím sorry to hear youíve had...

    Hello Oregon girl!
    Iím sorry to hear youíve had a recurrence. A second surgery canít have been fun, but it has to be some relief to have gotten some good news about the tumor cells.
    I hope your...
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    Iím so sorry to hear this. I know itís a scary...

    Iím so sorry to hear this. I know itís a scary time for you. Hopefully it will respond to chemo and radiation for you.
  10. Thread: Update

    by mccindy
    Replies
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    2,446

    Iím so glad to hear youíre doing well overall....

    Iím so glad to hear youíre doing well overall. Congrats on the stable scan!
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    Thatís kind of what Iím getting from docs too....

    Thatís kind of what Iím getting from docs too. Itís really weird. Happens almost every day now. Guess I will just see what comes up with my scan on the 30th and go from there!
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    Question about a symptom

    Hey all
    Iíve been lurking or absent for a while and I just have a question.
    My seizure doc isnít sure what this might be either.

    I keep getting a recurring sensation of pressure in the...
  13. Thread: New positives

    by mccindy
    Replies
    8
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    3,305

    It has been nice to just live and enjoy. I didnít...

    It has been nice to just live and enjoy. I didnít even lurk! But I did feel bad for not checking in. I hope everyone is doing well.
  14. Thread: New positives

    by mccindy
    Replies
    8
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    3,305

    New positives

    Hello all,
    Iíve had a pretty good summer and just wanted to stop in and say hi.
    My last MRI was in June and the doc said my regrowth has still stopped. So good news on that front! I still have...
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    I did see one last fall, when it was just barely...

    I did see one last fall, when it was just barely doubling along the bottom. She said I have a potential blind spot in my left eye, and that I was lucky, because the doubling for most people with...
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    That is interesting, my doubling is vertical too....

    That is interesting, my doubling is vertical too. I noticed especially when Iím trying to red that I see the words again underneath them, about half of them and it makes it very difficult to read! ...
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    Hi there! Nice to see you, hope your're doing...

    Hi there! Nice to see you, hope your're doing well!
    I do remember some problems like that from my first surgery - I couldn't even talk the first couple of days, and when I tried to text or write...
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    doubling vision

    I've had some worsening doubling of hte vision in my right eye ove the last month. It doesn't help with contacts/glasses either, so I'm assuming that it has something to do with the tumor growth. ...
  19. Thread: Odd sensation

    by mccindy
    Replies
    16
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    6,911

    This is definitely kind of what is happening with...

    This is definitely kind of what is happening with my feet! If I canít see them and Iím not moving them I canít tell where they are. Itís quite disconcerting.
  20. Thread: Odd sensation

    by mccindy
    Replies
    16
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    6,911

    Thank you for the info! I will be sure to ask him...

    Thank you for the info! I will be sure to ask him when I go in feb. It still happens frequently so Iím glad I donít drive!
    Iím in the middle of a 48-hour EEG, and I have had the finger pressure...
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    Nice to see you too. ☺️

    Nice to see you too. ☺️
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    I havenít, wast even aware there was anything...

    I havenít, wast even aware there was anything available. Hope it keeps helping!
  23. Thread: Odd sensation

    by mccindy
    Replies
    16
    Views
    6,911

    My last MRI was in October. I have one scheduled...

    My last MRI was in October. I have one scheduled for February, so hopefully thatís going to give answers soon enough.
    I had, I believe, a seizure last night while I was sleeping. I woke up some to...
  24. Thread: Odd sensation

    by mccindy
    Replies
    16
    Views
    6,911

    True, I forget this. I usually do sleep a lot but...

    True, I forget this. I usually do sleep a lot but over the weekend I did get to bed late and up early. Plus not sleeping well, Iím sure did not help!
    Yesterday I had a smal panic attack because I...
  25. Thread: Odd sensation

    by mccindy
    Replies
    16
    Views
    6,911

    That sounds like not much fun, but I can see why...

    That sounds like not much fun, but I can see why it was worth it.
    I had my eeg, results are being sent to Chicago this week, they told me. So I hope to hear something in the next couple of days. If...
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