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  1. Replies
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    Iím sending positive vibes and energy your way....

    Iím sending positive vibes and energy your way. Youíve been an inspiration to this group!
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    Thank you all so much for your kind words. 💜

    Thank you all so much for your kind words. 💜
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    Finally free

    Hello all,

    I havenít posted on here in quite some time. My beautiful, 56 year old Dad, passed away almost two weeks ago, from complications of his glioblastoma. In October, his MRI showed another...
  4. Hi Hopewins, So, my Dad has his third brain...

    Hi Hopewins,

    So, my Dad has his third brain surgery back in April, because the MRI scan looked like a reoccurrence of his glioblastoma. However, once his surgeon was working in his brain, every...
  5. Hi Liesel, Iím not sure how far away you live...

    Hi Liesel,

    Iím not sure how far away you live from Ann Arbor, but my dad gets all his treatment for his glioblastoma at the University of Michigan. He sees his NO there every three months. He...
  6. Thread: Scanxiety

    by Babycakes83
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    3,179

    Ally, I feel the same way every time my dad...

    Ally,

    I feel the same way every time my dad goes for his MRI and NO appointment. It sucks!! And no one else can really relate except those who share a similar experience. Hang in there!
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    Hi Zeus, I am so sorry that GBM has entered...

    Hi Zeus,

    I am so sorry that GBM has entered into your life. I remember very well the day my dadís GBM came to light. There are so many emotions that are experienced-shock, anger, devastation, etc....
  8. Hi liesel, My dad wore the Optune device for...

    Hi liesel,

    My dad wore the Optune device for about two months. Wearing the device requires shaving your head about every three days. The arrays have to be flush with the scalp. The device is...
  9. Hi Ally, Iím so sorry that you have to deal...

    Hi Ally,

    Iím so sorry that you have to deal with all these medical issues with your family! I swear, when it rains, it pours. I just went through my dad having a grand mal seizure from his GBM,...
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    Optune Update

    Hi all,

    Well, my dad has been faithfully wearing the Optune since February. He did one cycle of CCNU. His MRI last week showed tumor growth in the previous area, the left frontal lobe. My dad is...
  11. Sea, I cried as I read your last post. My...

    Sea,

    I cried as I read your last post. My heart goes out to you and your family. Iíve been doing some reading on grief, and I read that the greater the love, the stronger the grief. Take some time...
  12. Thread: Optune

    by Babycakes83
    Replies
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    10,855

    Daddyís girl, Thanks for the info! Iíll...

    Daddyís girl,

    Thanks for the info! Iíll definitely check it out. The creams have been helping out thus far, but Iíd love to prevent more sores from forming. Thanks again!
  13. Thread: Optune

    by Babycakes83
    Replies
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    10,855

    My dadís NO prescribed him some ointment to put...

    My dadís NO prescribed him some ointment to put on the sore. Iím going to see if the rep recommends anything else. The moleskin is a good idea!
  14. Thread: Round 2

    by Babycakes83
    Replies
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    2,530

    Hi Pc, Iím sorry that you have to go through...

    Hi Pc,

    Iím sorry that you have to go through the experience of the doctor finding something on your MRI. Do you see a Neuro Oncologist? When the MRI for my dad came up with another tumor, he was...
  15. Thread: Optune

    by Babycakes83
    Replies
    21
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    10,855

    Hi all, Well, my dad started wearing the...

    Hi all,

    Well, my dad started wearing the Optune last Monday. The rep for the company came over and got him all set up with the necessary equipment. Unfortunately, he has already developed a wound...
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    Daddyís girl, My dad actually starts wearing...

    Daddyís girl,

    My dad actually starts wearing the Optune tomorrow, so I will share some of his experience with it in the next few weeks. Iím hoping he does well with the treatment. He is bummed...
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    Daddyís Girl, Iím so sorry that your dad has a...

    Daddyís Girl,

    Iím so sorry that your dad has a GBM. Iím a nurse too, and I thought my dad was having a stroke, but it was a Glioblastoma. Anyway, radiation and temodar are standard treatments,...
  18. Thread: Optune

    by Babycakes83
    Replies
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    10,855

    Nikos, Thanks for the info on the Optune. My...

    Nikos,

    Thanks for the info on the Optune. My dad has decided to go for it. He begins wearing it on Monday. He is open to another brain surgery. Chicago is close to us, being only four hours away....
  19. Thread: Optune

    by Babycakes83
    Replies
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    10,855

    GBMsilbling, I sincerely appreciate you taking...

    GBMsilbling,

    I sincerely appreciate you taking time out of your day to answer my questions. Iím forever grateful for you!!
  20. Thread: Optune

    by Babycakes83
    Replies
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    10,855

    I guess there is some doctor that operates on...

    I guess there is some doctor that operates on inoperable brain tumors in Oklahoma. I just wish the doctors were more forthcoming about a prognosis instead of just throwing new chemo drugs at my dad....
  21. Thread: Optune

    by Babycakes83
    Replies
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    10,855

    Hmmm, Iím not sure. Iíll have to ask about that....

    Hmmm, Iím not sure. Iíll have to ask about that. Have you heard anything positive about these hospitals that specialize in treating cancer? My sister was looking up such a place in Oklahoma. Iím...
  22. Thread: Optune

    by Babycakes83
    Replies
    21
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    10,855

    Thanks, GBMsibling for the information. Itís so...

    Thanks, GBMsibling for the information. Itís so hard to decide the right course of treatment. His NO also suggested that my dad start the chemo drug CCNU. Iím not convinced that the Optune is the way...
  23. Thread: Optune

    by Babycakes83
    Replies
    21
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    10,855

    Optune

    Hello all,

    Does anyone have any experience with the Optune? There are two more tumors in my dadís brain. His NO suggested he try the optune, so I was wondering how much success will be had with...
  24. Thread: Scanxiety

    by Babycakes83
    Replies
    6
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    3,259

    Thank you for your kind words. I actually had...

    Thank you for your kind words. I actually had decided this morning to stop being negative and begin to be positive about my dadís GBM. Heís had this diagnosis for a year and a half. Many donít get...
  25. Thread: Scanxiety

    by Babycakes83
    Replies
    6
    Views
    3,259

    Scanxiety

    Hello all,

    My dad has his MRI this Monday. His last one found a new brain tumor, deep in his left occipital lobe. He finished radiation in December. My question to everyone is how do you deal with...
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