A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

Search:

Type: Posts; User: Melisande

Page 1 of 4 1 2 3 4

Search: Search took 0.00 seconds.

  1. Replies
    146
    Views
    12,560

    @IndyLou, Yes, immunotherapy after concurrent...

    @IndyLou,

    Yes, immunotherapy after concurrent chemoradiation is now considered standard of care for stage III NSC lung cancer. For H&N cancer, immunotherapy is only offered for stage IV disease. ...
  2. Replies
    146
    Views
    12,560

    @jorola, Thanks, that was exactly the...

    @jorola,

    Thanks, that was exactly the question I was thinking of asking.

    I’m am going to go back and read about your husband’s experience again.
  3. Replies
    146
    Views
    12,560

    It wouldn’t be the trial. It would just a...

    It wouldn’t be the trial. It would just a treatment option plain and simple.
  4. Replies
    146
    Views
    12,560

    I have some very good news and some questions. ...

    I have some very good news and some questions.

    Last Friday (end of week 4 of chemoradiotherapy), my radiation oncologist told me that all three of my lymph node tumors had dramatically shrunk and...
  5. Replies
    146
    Views
    12,560

    Thanks! Someone I met recommended the following...

    Thanks! Someone I met recommended the following skin care routine for radiation-induced skin problems:

    1) Spritz the area with green tea (cooled of course). The tannins in the tea apparently help...
  6. Replies
    146
    Views
    12,560

    Any tips on dealing with skin irritation, burns...

    Any tips on dealing with skin irritation, burns from radiation?

    My radiation oncologist recommended Aquaphor & hydrocortisone cream. Others I have spoken with are following a lot more complex...
  7. Replies
    146
    Views
    12,560

    Thanks for asking, but I’m keeping the...

    Thanks for asking, but I’m keeping the blog/website only for people I know in real life. Probably shouldn’t have mentioned it. Sorry.

    But I’m sure I’ll be back on here soon enough.

    Actually,...
  8. Replies
    146
    Views
    12,560

    Yes, thanks for asking, all is fine. I am in...

    Yes, thanks for asking, all is fine. I am in treatment now and staying close to Moffitt. I starting a CaringBridge blog and most of my cancer-posting energy is going into that right now.

    I did...
  9. Replies
    146
    Views
    12,560

    I apologize for the highlighted comment. You are...

    I apologize for the highlighted comment. You are all very generous people and I have appreciated the support.

    I am absolutely beside myself with anger at with my medical oncologist and his nurse....
  10. Replies
    146
    Views
    12,560

    Well, questioning could be perceived as...

    Well, questioning could be perceived as problematic if the doctor has an ego problem, I suppose.

    The nurse got back to me. The doctor is unconcerned because he only expects my blood alcohol level...
  11. Replies
    146
    Views
    12,560

    How am I working against my doctors? Questioning...

    How am I working against my doctors? Questioning is the right thing to do!
  12. Replies
    146
    Views
    12,560

    Yes, I already asked via the PatientPortal. ...

    Yes, I already asked via the PatientPortal.

    Also, I am experiencing all this not as worry (with all the wasted psychic energy that implies). Instead, i am experiencing it as concern which is...
  13. Replies
    146
    Views
    12,560

    I didnÂ’t express myself well in the previous...

    I didnÂ’t express myself well in the previous post. It is not a matter of worrying about what might happen. I know for a fact that I will have an extremely bad reaction if I take Taxol. I do not know...
  14. Replies
    146
    Views
    12,560

    Thanks IndyLou! I have my chemo schedule set...

    Thanks IndyLou!

    I have my chemo schedule set up too now. It looks like 33 days of radiation and 8 weeks of carboplatib and Taxol.

    However, now I am pretty concerned that I won’t be able to...
  15. Replies
    146
    Views
    12,560

    I had the simulation done today and I have an...

    I had the simulation done today and I have an official start date of Oct. 2nd. This is for the radiation. I am getting concurrent chemo, but don’t have the schedule for this yet. Hopefully Friday...
  16. Replies
    146
    Views
    12,560

    About belief and faith. I think it has been...

    About belief and faith. I think it has been pretty much proven that one’s attitude doesn’t make chemo or radiation more or less effective. See:...
  17. Replies
    146
    Views
    12,560

    The question of faith and personal beliefs is a...

    The question of faith and personal beliefs is a complicated one which will be for a future post.

    IndyLou,

    Actually, there are choices about the kinds of treatment and variations in treatment....
  18. Replies
    146
    Views
    12,560

    It is clear that bring optimistic makes it easier...

    It is clear that bring optimistic makes it easier on others in one’s social circle and that in and of itself is important, because who wants to be alone?

    Also, bring really stressed out to the...
  19. Replies
    146
    Views
    12,560

    Hi jorola, Thanks for reading the whole...

    Hi jorola,

    Thanks for reading the whole thread. I really appreciated it! I re-read it myself once or twice found it slow going at times!

    Yes, I’ve already noticed your husband’s excellent...
  20. Replies
    146
    Views
    12,560

    I just got a call from Moffitt. The head and neck...

    I just got a call from Moffitt. The head and neck surgeon I saw (when I declined the exploratory surgery/panendoscopy) was on the phone (herself) telling me that the urology oncologists thought the...
  21. Replies
    146
    Views
    12,560

    I can’t take Cisplatin because I have serious...

    I can’t take Cisplatin because I have serious hearing issues. Well, I could take it, but the results probably wouldn’t be pretty.
  22. Replies
    146
    Views
    12,560

    The head and neck medical oncologist I spoke with...

    The head and neck medical oncologist I spoke with said that he would give me Carbotaxol — Carboplatin & Taxol (Paclitaxel). He said it is what they use for NSCLC. (Do they use this combo for head &...
  23. Replies
    146
    Views
    12,560

    Thanks IndyLou, I do have some good news. They...

    Thanks IndyLou,

    I do have some good news. They are going to proceed with the simulation (for the radiation therapy) even before I have my appointment with the thoracic oncologist. So it looks like...
  24. Replies
    146
    Views
    12,560

    I saw my head and neck medical oncologist at...

    I saw my head and neck medical oncologist at Moffitt yesterday. He reiterated that I have an unusual case and that there were no protocols or standard of care in place. Also, no research on best...
  25. Replies
    146
    Views
    12,560

    Hi Lisa, Sure you can move the thread. ...

    Hi Lisa,

    Sure you can move the thread.

    Actually one of the remaining questions I have to resolve is getting the right chemo. I also have questions about immunotherapy (Imflinzi).

    The main...
Results 1 to 25 of 97
Page 1 of 4 1 2 3 4