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  1. My wife is taking 24,000 Lipase Creon tablets. ...

    My wife is taking 24,000 Lipase Creon tablets. She takes 2 before a meal (3 if a heavy or fatty meal). She takes one pill before a snack.

    Quoting my wife: "These things are like a gift from...
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    We really are just trying to give him the best...

    We really are just trying to give him the best possible chance to beat this on all fronts, an integrated approach to treatment.

    BRAVO and well done !
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    Congratulations on completing the chemo. In...

    Congratulations on completing the chemo. In terms of a maintenance chemo, UPenn has broached having my wife enroll in a trial they are currently conducting:
    ...
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    Jamie Pat: I also wish to thank you for...

    Jamie Pat:

    I also wish to thank you for bringing IRE to my attention as I had never heard of it before. It seems like this would also benefit ALL PC patients, but I am guessing that because of...
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    Good Luck ! My heart breaks for you and your...

    Good Luck !

    My heart breaks for you and your family.
  6. My signature does not come through when I post...

    My signature does not come through when I post from my phone.

    Click on the link below for my wife's personal experiences with CA19-9 results.
    ...
  7. My wife's CA19-9 levels started at 21,000 peaked...

    My wife's CA19-9 levels started at 21,000 peaked at 45,000 and are now down to 3700.

    Checkout my signature for more details, but my point is do NOT let the absolute values freak you out. The most...
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    Simonedriva: Could you provide a reference for...

    Simonedriva:

    Could you provide a reference for the drug study you cited ?

    Thanks,

    RW
  9. Good luck Legodude ! Sending positive thoughts...

    Good luck Legodude !

    Sending positive thoughts and energy your way.
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    And our thoughts are with you too LegoDude ! ...

    And our thoughts are with you too LegoDude !

    And also with David and his Father !
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    JohnDoe60: Your mom sounds almost identical to...

    JohnDoe60:

    Your mom sounds almost identical to my wife. The description BRPC with Mesenteric Vien encapsulation is very similar to my wife. After 4 Folfirinox treatments, she has a 40% reduction...
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    This thread has been really helpful to me. I had...

    This thread has been really helpful to me. I had the feeling that my wife was being "cast aside" when I asked about the genetic testing. The CA19-9 testing debacle definitely reinforced the feeling...
  13. Thread: Whipple

    by RamblinWreck
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    Thank you Prairie Gal !

    Thank you Prairie Gal !
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    More like "DAMN interesting !".

    More like "DAMN interesting !".
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    Thanks. I'm calming down and very happy with...

    Thanks.

    I'm calming down and very happy with the news we had today. It's just I don't understand how the oncologist concluded that the Folfirinox was not working because of the "increasing...
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    Please re-read what I wrote in my post from...

    Please re-read what I wrote in my post from yesterday, what Dave replied with, and examine the graph below.

    The Oncologist wanted to change chemo "because it wasn't working as evidenced by...
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    So, the oncologist called this afternoon. ...

    So, the oncologist called this afternoon. Yesterday's CA19-9 came in at 9700. My wife will continue with Folfirinox on Monday.

    I don't know whether to be relieved or pissed.

    Quite frankly, I...
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    One other point. My wife's oncologist doesn't...

    One other point.

    My wife's oncologist doesn't believe in testing the tumors as "Pancreatic cancer is does not correlate with genetics."

    That is almost verbatim what is stated in the second...
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    Update: We met with the oncologist today, and...

    Update:

    We met with the oncologist today, and they suggested switching to gemcitabine nab-paclitaxel.

    This recommendation was based upon the (apparent) lymph node involvement between the two...
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    I am so sorry ! Having only recently...

    I am so sorry !

    Having only recently encountered this scurge, my knowledge is limited. But I must say that the weapons I have seen are impressive and improving every day.

    I wish and pray for...
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    Keith: My wife has been on Nuelasta since the...

    Keith:

    My wife has been on Nuelasta since the start. Penn insisted on it. I just assumed it was standard practice.

    With Neulasta, my wife's white blood cell count has been acceptable -...
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    Keith: Yes, they mentioned Radiation at Penn. ...

    Keith:

    Yes, they mentioned Radiation at Penn. I will know more after tomorrow.

    We had a second opinion at Sloan Kettering on Tuesday (yeah, I know we got the 2nd opinion before the FIRST...
  23. Thanks Keith ! I saw your reply to my thread. ...

    Thanks Keith !

    I saw your reply to my thread. I will have a much more detailed reply there in a minute.
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    Update. We have completed the four rounds of...

    Update. We have completed the four rounds of chemo, and there was a significant reduction in the tumor. However, there was also evidence of spreading to the lymph nodes.

    We meet with the...
  25. I don't know how old this link from PanCan is,...

    I don't know how old this link from PanCan is, but it's fairly negative on the SBRT as compared to standard radiation treatments.

    This opinion differs from just about everything else I have read...
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