A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

Search:

Type: Posts; User: RamblinWreck

Page 1 of 2 1 2

Search: Search took 0.00 seconds.

  1. Replies
    9
    Views
    1,977

    And our thoughts are with you too LegoDude ! ...

    And our thoughts are with you too LegoDude !

    And also with David and his Father !
  2. Replies
    5
    Views
    285

    JohnDoe60: Your mom sounds almost identical to...

    JohnDoe60:

    Your mom sounds almost identical to my wife. The description BRPC with Mesenteric Vien encapsulation is very similar to my wife. After 4 Folfirinox treatments, she has a 40% reduction...
  3. Replies
    9
    Views
    1,977

    This thread has been really helpful to me. I had...

    This thread has been really helpful to me. I had the feeling that my wife was being "cast aside" when I asked about the genetic testing. The CA19-9 testing debacle definitely reinforced the feeling...
  4. Thread: Whipple

    by RamblinWreck
    Replies
    26
    Views
    18,824

    Thank you Prairie Gal !

    Thank you Prairie Gal !
  5. Replies
    1
    Views
    223

    More like "DAMN interesting !".

    More like "DAMN interesting !".
  6. Replies
    26
    Views
    2,541

    Thanks. I'm calming down and very happy with...

    Thanks.

    I'm calming down and very happy with the news we had today. It's just I don't understand how the oncologist concluded that the Folfirinox was not working because of the "increasing...
  7. Replies
    26
    Views
    2,541

    Please re-read what I wrote in my post from...

    Please re-read what I wrote in my post from yesterday, what Dave replied with, and examine the graph below.

    The Oncologist wanted to change chemo "because it wasn't working as evidenced by...
  8. Replies
    26
    Views
    2,541

    So, the oncologist called this afternoon. ...

    So, the oncologist called this afternoon. Yesterday's CA19-9 came in at 9700. My wife will continue with Folfirinox on Monday.

    I don't know whether to be relieved or pissed.

    Quite frankly, I...
  9. Replies
    26
    Views
    2,541

    One other point. My wife's oncologist doesn't...

    One other point.

    My wife's oncologist doesn't believe in testing the tumors as "Pancreatic cancer is does not correlate with genetics."

    That is almost verbatim what is stated in the second...
  10. Replies
    26
    Views
    2,541

    Update: We met with the oncologist today, and...

    Update:

    We met with the oncologist today, and they suggested switching to gemcitabine nab-paclitaxel.

    This recommendation was based upon the (apparent) lymph node involvement between the two...
  11. Replies
    6
    Views
    540

    I am so sorry ! Having only recently...

    I am so sorry !

    Having only recently encountered this scurge, my knowledge is limited. But I must say that the weapons I have seen are impressive and improving every day.

    I wish and pray for...
  12. Replies
    26
    Views
    2,541

    Keith: My wife has been on Nuelasta since the...

    Keith:

    My wife has been on Nuelasta since the start. Penn insisted on it. I just assumed it was standard practice.

    With Neulasta, my wife's white blood cell count has been acceptable -...
  13. Replies
    26
    Views
    2,541

    Keith: Yes, they mentioned Radiation at Penn. ...

    Keith:

    Yes, they mentioned Radiation at Penn. I will know more after tomorrow.

    We had a second opinion at Sloan Kettering on Tuesday (yeah, I know we got the 2nd opinion before the FIRST...
  14. Thanks Keith ! I saw your reply to my thread. ...

    Thanks Keith !

    I saw your reply to my thread. I will have a much more detailed reply there in a minute.
  15. Replies
    26
    Views
    2,541

    Update. We have completed the four rounds of...

    Update. We have completed the four rounds of chemo, and there was a significant reduction in the tumor. However, there was also evidence of spreading to the lymph nodes.

    We meet with the...
  16. I don't know how old this link from PanCan is,...

    I don't know how old this link from PanCan is, but it's fairly negative on the SBRT as compared to standard radiation treatments.

    This opinion differs from just about everything else I have read...
  17. Replies
    4
    Views
    374

    Good Luck OZDavid !

    Good Luck OZDavid !
  18. Replies
    10
    Views
    4,216

    Thanks much for the information. I will be...

    Thanks much for the information. I will be emailing you later this evening.

    RW
  19. Replies
    13
    Views
    10,404

    legodude: Glad to see the CA 19-9 numbers...

    legodude:

    Glad to see the CA 19-9 numbers decreasing !

    RW.
  20. Thanks for the words of encouragement Susan ! ...

    Thanks for the words of encouragement Susan !

    My wife, Marji, is feeling pretty good recently. Her appetite has returned and she was nowhere near as tired after this second round. Her CA19 has...
  21. Thread: Olaparib

    by RamblinWreck
    Replies
    4
    Views
    758

    What companies make these "-parib" drugs ? I...

    What companies make these "-parib" drugs ?

    I found out that Astra-Zeneca and Merck handle Olaparib, while Clovis-Oncology makes the Rubraca. See the two links below.
    ...
  22. Replies
    26
    Views
    2,541

    You can download the paper that Dr. Truty wrote...

    You can download the paper that Dr. Truty wrote at this link:

    https://insights.ovid.com/pubmed?pmid=30946090
  23. Replies
    26
    Views
    2,541

    Dave: Thanks for the link to your video ! ...

    Dave:

    Thanks for the link to your video !

    It was a MOST excellent video. Right after your video, there was a video for Dr. Mark Truty at the Mayo Clinic. His video, dated 2012 was about his...
  24. I just now saw this thread. I wish your Dad...

    I just now saw this thread.

    I wish your Dad eternal peace.

    As an Engineer, I know all too well the difficulties in that Chilean rescue.

    The fact that you spoke more highly of your...
  25. Replies
    26
    Views
    2,541

    ddessert: Nope, no steroids. She's also had...

    ddessert:

    Nope, no steroids. She's also had problems sleeping at night. But, along with no longer being utterly exhausted, she's also sleeping through the night.

    Thanks for the steroid tip !
Results 1 to 25 of 32
Page 1 of 2 1 2