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  1. I'm wondering how to find one of those Pelvic...

    I'm wondering how to find one of those Pelvic Floor Therapist with certification... in San Antonio.

    I currently have an appointment back at MDA in Houston on Feb 14, 2020, for full testing to...
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    Stay away from Advantage plans, unless you will...

    Stay away from Advantage plans, unless you will never get sick. I'm afraid there are many people who get sold a bill of goods with Advantage plans. Everything is so confusing, they like the "free"...
  3. Ohhhh I had that pain about the same time...

    Ohhhh I had that pain about the same time following surgery. It was VERY bad! Bladder spasm meds helped. But I had an ambulance ride to the hospital to knock the pain down when it first started....
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    I was in a similar situation, no target. That...

    I was in a similar situation, no target. That really confused me. In my situation, my PSA was 0.02, but I am high-risk due to seminal invasion. I finally decided to go ahead with the radiation...
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    I was told that the Proton treatments could...

    I was told that the Proton treatments could affect continence. Consider that with the prostate removed, the beams have to target the prostate bed. It makes sense that some parts of the bladder got...
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    Thanks for the tips. I'll pick it up today at the...

    Thanks for the tips. I'll pick it up today at the post office.

    I used the leg bag this weekend and it worked pretty good. But I think this system will be better.

    MIke
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    Wowser! I just ordered an Alpha Dry. If that...

    Wowser! I just ordered an Alpha Dry. If that thing works, it'll be a great improvement over the leg bag system!!!

    https://www.urodry.com/

    Thanks!

    Mike
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    I'm now test driving what is known as a "Texas...

    I'm now test driving what is known as a "Texas Catheter". It attaches like a condom with a "spout" that connects to a leg bag of 500ml capacity (they have bigger bags, but I wanted a small one).

    I...
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    That's the same story I got. The lab won't tell...

    That's the same story I got. The lab won't tell you ANYTHING! However, I did learn (from my doctor who spoke with the lab) that they have dropped the < sign, and 0.02 is undetectable.

    This is a...
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    I appreciate reading about y'alls experiences. My...

    I appreciate reading about y'alls experiences. My plan now is to ramp up my research of finding "the best" doctor for this problem. Plus, I'm going to give myself until the end of January (since I'm...
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    Thank you!

    Thank you!
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    Thanks. I finished up radiation on March 29,...

    Thanks. I finished up radiation on March 29, 2019. The surgery was in October of 2017.

    I was ok post-radiation for some time (a few months) then things just progressively declined. Now I don't...
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    This Ain't No Singapore Sling!

    Hello All,

    I'm 6-months post Proton therapy and am happy to report everything is fine... almost.

    My incontinence has got progressively worse. I'm taking Oxybutynin 5mg ER twice a day for...
  14. I did Proton Therapy (following surgery) at MDA...

    I did Proton Therapy (following surgery) at MDA in Houston, finished end of March this year.

    Happy to answer questions. I'm a believer!

    Mike in Kerrville
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    You're right! But I don't think any of us...

    You're right!

    But I don't think any of us "bask". Because it can always show up again...in months, or years.

    I prefer saying, "so far, so good". :)
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    I had bladder spasms for about 5-6 days that were...

    I had bladder spasms for about 5-6 days that were horrible, REALLY horrible!
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    I know that is said... but for me, I don't...

    I know that is said... but for me, I don't consider myself a prostate cancer "survivor" until I croak from something else.
  18. I asked my penile implant doctor, Dr. Run Wang,...

    I asked my penile implant doctor, Dr. Run Wang, at MDA what he thought about this new ED treatment. (I had implant surgery scheduled for next month, but I canceled.)

    Stem cells therapy is...
  19. CaverStem - Anyone know about this for ED?

    A fellow Proton friend of mine sent this information to me today. I have never heard of this treatment. Have any of you?

    https://rmh-lc.com/index.php/7-benefits-of-caverstem/

    I am doing very...
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    Implant Questions

    I found your thread. Thanks!

    Is it still hurting? How does it feel when in use? Normal?

    When "soft", how soft is it?

    I'm getting the Titan. Did you and your doc talk about the different...
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    Thanks ASA (and all). I don't know if the...

    Thanks ASA (and all). I don't know if the treatments I had were classified as ART or SRT. Is it a distinction without a difference (in my case)?

    I also thought it may be "odd" to target the...
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    Proton Treatment Wrap-Up

    Well now, wasn't THAT fun?

    I've been living in my RV south of Houston since early February. Every day, except for weekends, I make the journey to the Proton Treatment Center at MD Anderson. It's...
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    I was in a similar boat. And my biggest question...

    I was in a similar boat. And my biggest question was, "Why target something that doesn't exist?"

    Your pathology alone calls for a "mop up". Even the best of surgeons may leave some pesky cancer...
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    First Treatment My appt was for 7:30 PM, I got...

    First Treatment

    My appt was for 7:30 PM, I got there at 6:30 PM and was greeted and escorted to a room where four men were hanging out in surgical gowns. They were swapping pee stories, and...
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    At MDA, the Proton Center is "down the street"...

    At MDA, the Proton Center is "down the street" from the main MDA medical center area. This is great because they have FREE surface parking... just pull up, park and walk about 30 yards!
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