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  1. Replies
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    Very best with recovery therapy. Truly hope you...

    Very best with recovery therapy. Truly hope you are able to make that pilgrimage hike!
  2. Path Forward Still Complicated

    Good news is that the removed nodule was not cancerous. Bad news is that it was an egg sized nodule of dead or dying cells associated with the PJP pneumonia I encountered during CHOP Cycle 2, which...
  3. Yes, thanks! Necrotizing granuloma is the...

    Yes, thanks! Necrotizing granuloma is the technical reference.
  4. Surgery was at 8am yesterday. Everything went...

    Surgery was at 8am yesterday. Everything went smoothly, but it feels like I took several shots from Frasier in the ribs! Discharged this afternoon and back home. An egg sized nodule and several...
  5. Thanks! Yes, it seems there are many bends in the...

    Thanks! Yes, it seems there are many bends in the road. Surgery is scheduled for the 5th of Aug. I will peacefully go to sleep and take inventory when I awake. Will definitely post how things went....
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    Wonderful to hear! You continue to be an...

    Wonderful to hear! You continue to be an inspiration. Hopefully I will be back on the transplant plan soon. Hope to fare somewhat close to as well as you have. Won't be taking Bactrim as it gives me...
  7. It appears surgery is next up after meeting with...

    It appears surgery is next up after meeting with a Thoracic Surgeon. It will start with a video assisted scope and then, depending what is found, will need to proceed to full surgery to remove the...
  8. po18guy, Thanks, good advice to keep in mind. ...

    po18guy, Thanks, good advice to keep in mind. Definitely need to get that answered. Hopefully the surgical plan is low impact and quick.
  9. Perfect! Thanks!

    Perfect! Thanks!
  10. That seems reasonable. Here is the text from...

    That seems reasonable.

    Here is the text from the PET scan which caused me to raise the question. "Slightly increased size of an indeterminate mildly hypermetabolic subpleural 2.8 x 2.5 cm soft...
  11. Thanks! That is encouraging. Yes, it would seem...

    Thanks! That is encouraging. Yes, it would seem to be a lung nodule. I had two lung spots noted. The one which caused concern was growing. It is a little frustrating that two weeks went by and no one...
  12. Path Forward Gets Complicated

    PET Scan results after 6 CHOP cycles show AITL / PTCL lymphoma in complete remission. The wee beasties don't seem to like chemicals! Level of remission was such that no additional chemo was...
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    It was explained to us that studies have shown...

    It was explained to us that studies have shown that masks are of limited value, as most germs are communicated from touching contaminated surfaces. It was suggested that the best value of a mask was...
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    Welcome, and happy hear your thoughts, even...

    Welcome, and happy hear your thoughts, even though they are through this unfortunate forum.

    Unfortunately cancer is complicated. After helping my spouse through breast cancer and related...
  15. CHOP Cycle 6 Done!

    CHOP cycle 6 done! Last Prednisone taken yesterday. Looking forward to testing and results to show if this has had any benefit, and then auto SCT here we come. CHOP cycles 4-6 have continued to be...
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    I was recently diagnosed with either AITL or...

    I was recently diagnosed with either AITL or PTCL. The biopsy sample was evidently not larger enough to definitively differentiate. I have been told that the treatment protocol for both is the same...
  17. debpower, Thanks for your encouraging post. I...

    debpower, Thanks for your encouraging post. I wish your brother continued good health! Given the frequent reoccurrence after auto I asked about just going for a allo. Did not get much encouragement...
  18. Great, thanks! Still learning what is the best...

    Great, thanks! Still learning what is the best structure to use the blog so that future people searching for like experiences or answers to specific questions can quickly find what they are looking...
  19. Diagnosed 15 Feb 19 with AITL, or perhaps PTCL w/ a helper

    Sincere thanks to the dedicated posters on this site. Your experiences and insights have been invaluable to me regarding something I knew little about a few short months ago. My apologies in getting...
  20. Hit with the same diagnosis out of the blue 15...

    Hit with the same diagnosis out of the blue 15 Feb 19. Acute AITL has been unsettling but there are some positives. Stage 3 and "B" symptoms may cause detection before there are a lot of secondary...
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    Chemo through IVs or have a Port installed?

    One of the first decisions at the start of chemo is attempting the treatments via IVs to the arm veins or to have an infusion port installed. As a starting point I will describe my experience, but am...
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    I am 63 years and was diagnosed 3 months ago....

    I am 63 years and was diagnosed 3 months ago. Just 3 cycles into chemo so I am experiencing only the early symptoms. Some taste changes were immediate - the almond butter I used for breakfast with...
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    I will forever remain one pint short of five...

    I will forever remain one pint short of five gallons donation on the Red Cross database. I am totally relieved that I stopped donating blood approximately 3 years prior to my lymphoma diagnosis...
  24. Third cycle update

    With the pneumonia under control the third CHOP cycle was the easiest yet. It appears the symptoms I had associated with the Neulasta were actually the fungal infection asserting itself as my...
  25. Kermica - you, Sir were right on target with the...

    Kermica - you, Sir were right on target with the pneumonia point. After a four day stay in the hospital a fungal infection was isolated and is being treated. Evidently this is not unusual for someone...
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